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Pancreas and Celiac Disease Link?

If I only knew I had celiac disease long before I was finally diagnosed.  Now suffering celiac spru, gastroparesis and severe pancreatic insufficiency, I will never regain the full use of my pancreas.

I am in the process of learning if the celiac or Lyme Disease was the biggest culprit in damage to my Pancreas.  I'll keep you posted if anyone wants to know.   My sons have been dianosed with Lyme and with the information
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on this site I've learned my youngest (16) may also have celiac disease.  Why it's taken his whole life for doctors to get it right I will never know but we're here now and gluten free looks to be in his future too.

The article here relating celiac with pancreas issues is very interesting to me and is something I must look into for my son's welfare.  Thanks for information about what to look for in juvenile's!
Blessings,
Trish

As always, Celiac.com welcomes your comments (see below).


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10 Responses:

 
kathryn

said this on
09 Mar 2010 6:54:43 AM PDT
Trish - noticed you were also in Sturbridge, MA. Checking to see if you are interested in connecting re: celiac.

 
Trish

said this on
19 Jun 2010 12:42:30 PM PDT
I'm happy to connect with you. I'm on new boston rd. in Sturbridge my email is trisheebabe@msn.com

 
Trish

said this on
14 Jul 2010 3:47:43 PM PDT
Happy to connect. Not sure why responses are so delayed here. Contact me through my website at www.S-L-A-M.org which is our Sturbrige Lyme Awareness of Massachusetts.

 
sandy

said this on
20 Mar 2010 6:02:34 PM PDT
Please post your findings about the pancreas link. Before we found out my husband could not tolerate gluten or corn, I always thought he had liver or pancreas issues. I thought so because he could never process alcohol.

 
Trish

said this on
19 Jun 2010 12:44:02 PM PDT
Sorry for the delay in responding to this. My doctor who diagnosed Pancreatic issues does attribute the damage to Celiac Spru. My lyme doctors attribute it to damage from Chronic Lyme disease that went undiagnosed for many years and nearly took my life.

 
Anthony

said this on
13 Apr 2010 9:19:37 AM PDT
I was told that eating four raw ochros a day will help with the pancreas. I eat a lot of raw foods and drink green juice occasionally. I do not have a problem with my pancreas but I love raw ochro and someone made the comment to me in passing.

 
Trish

said this on
19 Jun 2010 12:45:59 PM PDT
Sorry for delay in responding. The ochra is good information and news to me. My Pancreatic specialist seems to think my problem with Pancreas is from Celiac Spru. My lyme doctors blame the damage from Lyme that went undiagnosed for many years and almost took my life. I know of many with Celiac disease that also have Lyme disease and thyroid issues.

 
merrie

said this on
14 Jul 2010 3:16:52 PM PDT
I too am interested in the link between celiac sprue and pancreas damage. Wondering if this damage to the pancreas can cause diabetes....

 
crbpk

said this on
30 Sep 2010 5:21:20 PM PDT
I am also looking for information about this connection. My 14 year old daughter has a gluten intolerance - not celiac - but before we found this out she was diagnosed with type 1 diabetes. Strangely, she has none of the antibodies that are normally found in type 1 diabetics. Doctors are not sure why her pancreas won't work, and frankly, they don't seem to care much. They are not even really interested in the gluten sensitivity.

 
YILMAZ

said this on
15 Dec 2010 3:36:13 PM PDT
Thrish, dıd you get any explanation about your pancreatic insufficiency. I do probably have Lyme disease and also anti-glutaminase IgA antibodies and recently diagnosed as having pancreatic insufficiency.




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Celiac.com Celiac Disease & Gluten-Free Diet Forum - All Activity

Ugg, tell me about I thought I had bad gut bacteria for years. Carbs would just make be bloat and distend, sugars, rice, any kind of grain. Figured out in Feb, it was UC and that the sugars in carbs caused flare ups....I realize I am blessed I can nuts, I eat nut based breads, muffins, cakes etc, using stevia, monk fruit, and xylitol for sweeteners since they do not trigger the flare ups. >.> I am also addicted eating sugar free jams made with extracts, and a universal pectin that reacts with calcium water instead of sugar so I can use monk fruit to sweeten. (Cheaper to make this for my fruit cravings to buying sugar free jams) I also found a noodle by miracle noodles that is carb free they also make a rice sub...I use them in recreating dishes I used to eat all the time. NOTE the fiber in them is not tolerable to some people. But might look into it as a alternative. I think I did a post not to long ago about different forms of noodles and how to make them or get them for those with similar issues one of hte more intiruging ones is using eggs or egg whites mixed up and cooked on low eat in a pan into a thin sheet then cutting into noodles or using nordic wear microwave plates to make them. .....I recently found you can mix konjac flour, eggwhites, and hemp protein, up pour into one of those plates and cook into a tortilla. check my profile for my food issues lol list is huge, at least you can eat meats?

Hi guys, I am newly diagnosed celiac. I found out about a week and a half ago, and have been gluten free for 5 weeks (I stopped after the biopsy was taken). I never really suspected celiac, so it was quite a surprise, but when I started reading about it it made a lot of sense in terms of symptoms etc. I am 34 yr old female, my main symptom was lack of energy for as long as I can remember, blood tests only ever showed low iron (not quite anaemic) but supplements never made a difference (now I know why!). For the last 5 years I have also had constipation, bloating and gas, but I put it down to stress or bad diet and if I am honest because it was a bit of an embarrassing issue to talk about I became complacent. As this is all very new to me, I feel like I have so many questions so thought I would put some here and if anyone has any input or advice from their experience that would be great! I will probably also post more in depth questions in the relevant sub-forums - For those in the UK, how long did it take you to speak with a dietician. The letter with my diagnosis was sent on 12 April and said I had been referred but I haven't heard anything - I am interested to know whether other celiacs/strict GFers ever eat foods which say "may contain traces of..." or "made in a factory which processes...." etc. So far I have avoided anything which says "may contain" or "not suitable for celiacs due to..." but I did eat something which said "made in a factory" (Walkers crisps) as they were the only option but then I felt guilty after! - What procedures do you take when eating out, i.e. do you only go to places which are certified by Coeliac UK (if you're in the UK), do you find speaking with the waiter etc actually helps? I have eaten out a few times since being gluten-free and feel like I am being a bit difficult when I bring it up and that they don't really understand. I am lucky to be in London so there are lots of certified restaurants, but even in Pizza Express I didn't think that the waiter really understood. - For those who had energy/tiredness problems before, how long did it take you to notice a difference? The only difference I have so far noticed is I am now more regular toilet wise and have had very little bloating/gas. - I have always had low iron which is most likely due to celiac but also as I don't eat meat (I do eat fish), I am hoping now that iron supplements will help now so have been taking the gluten-free Floradix for the last week. Anyone noticed a difference in this after stopping gluten? Thanks anyone for taking the time to read, and feel free to put any general advice you have Rachel

BOBS RED mill makes an all purpose flour with no rice try Quinoa flour buckwheat flour tapioca chic pea flour coconut flour almond meal ground into a flour flax meal all these things make great " toast" and healthy alternatives to too much rice flour yummy

Oh yeah. I'm 6 months in and still have bad days, even though I know I'm not eating gluten. It takes a long time to heal. I have been on here a lot in the past 6 months venting because I didn't feel good. I just posted today about how tired I still am. Everyone has basically said the same thing - give it time. Be patient. It can take a long time. Some people said it can take a year. Hang in there.

Ok, so I have another question for all of you professional Celiacs. I read an article recently that talked about a study that was done on people with Celiac's disease, which said that some of them (a small number) had high levels of arsenic in their systems because of all of the rice products that they eat. Now, I don't eat a ton of rice, but we do have gluten-free pasta a couple times a week, my son and I like rice Chex, and I know there's brown rice flour in the pizza crusts I use and in the gluten-free bread that I eat. How worried about arsenic poisoning do we need to be? I'm not downing rice at every meal but I do eat it daily, I'm sure. I rarely eat rice, rice. Usually it's the rice flour that's in things. Is this one more thing to keep me up at night? Because now I'm like, "Oh this is great. I'm trading gluten for arsenic." I need to eat carbs. If I just eat fruits and veggies and meat I'll lose weight which stresses me out. I want to be able to eat toast with peanut butter and eggs but I worry my toast is killing me. Am I being a little dramatic.