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Pancreas and Celiac Disease Link?

If I only knew I had celiac disease long before I was finally diagnosed.  Now suffering celiac spru, gastroparesis and severe pancreatic insufficiency, I will never regain the full use of my pancreas.

I am in the process of learning if the celiac or Lyme Disease was the biggest culprit in damage to my Pancreas.  I'll keep you posted if anyone wants to know.   My sons have been dianosed with Lyme and with the information
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on this site I've learned my youngest (16) may also have celiac disease.  Why it's taken his whole life for doctors to get it right I will never know but we're here now and gluten free looks to be in his future too.

The article here relating celiac with pancreas issues is very interesting to me and is something I must look into for my son's welfare.  Thanks for information about what to look for in juvenile's!
Blessings,
Trish

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10 Responses:

 
kathryn

said this on
09 Mar 2010 6:54:43 AM PDT
Trish - noticed you were also in Sturbridge, MA. Checking to see if you are interested in connecting re: celiac.

 
Trish

said this on
19 Jun 2010 12:42:30 PM PDT
I'm happy to connect with you. I'm on new boston rd. in Sturbridge my email is trisheebabe@msn.com

 
Trish

said this on
14 Jul 2010 3:47:43 PM PDT
Happy to connect. Not sure why responses are so delayed here. Contact me through my website at www.S-L-A-M.org which is our Sturbrige Lyme Awareness of Massachusetts.

 
sandy

said this on
20 Mar 2010 6:02:34 PM PDT
Please post your findings about the pancreas link. Before we found out my husband could not tolerate gluten or corn, I always thought he had liver or pancreas issues. I thought so because he could never process alcohol.

 
Trish

said this on
19 Jun 2010 12:44:02 PM PDT
Sorry for the delay in responding to this. My doctor who diagnosed Pancreatic issues does attribute the damage to Celiac Spru. My lyme doctors attribute it to damage from Chronic Lyme disease that went undiagnosed for many years and nearly took my life.

 
Anthony

said this on
13 Apr 2010 9:19:37 AM PDT
I was told that eating four raw ochros a day will help with the pancreas. I eat a lot of raw foods and drink green juice occasionally. I do not have a problem with my pancreas but I love raw ochro and someone made the comment to me in passing.

 
Trish

said this on
19 Jun 2010 12:45:59 PM PDT
Sorry for delay in responding. The ochra is good information and news to me. My Pancreatic specialist seems to think my problem with Pancreas is from Celiac Spru. My lyme doctors blame the damage from Lyme that went undiagnosed for many years and almost took my life. I know of many with Celiac disease that also have Lyme disease and thyroid issues.

 
merrie

said this on
14 Jul 2010 3:16:52 PM PDT
I too am interested in the link between celiac sprue and pancreas damage. Wondering if this damage to the pancreas can cause diabetes....

 
crbpk

said this on
30 Sep 2010 5:21:20 PM PDT
I am also looking for information about this connection. My 14 year old daughter has a gluten intolerance - not celiac - but before we found this out she was diagnosed with type 1 diabetes. Strangely, she has none of the antibodies that are normally found in type 1 diabetics. Doctors are not sure why her pancreas won't work, and frankly, they don't seem to care much. They are not even really interested in the gluten sensitivity.

 
YILMAZ

said this on
15 Dec 2010 3:36:13 PM PDT
Thrish, dıd you get any explanation about your pancreatic insufficiency. I do probably have Lyme disease and also anti-glutaminase IgA antibodies and recently diagnosed as having pancreatic insufficiency.




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Wish I could give you a hug. Unfortunately I know how that feels with Neurologists, Internists, Endocrinologists, Rheumatologists, GIs..... I got so tired of crying my drive home after refusing yet another script for Prozac. I do hope your GI can give you some answers even if it is just to rule out other possible issues. Keep on the gluten and we are here for you.

It is too bad that so often a full panel isn't done. Glad your appointment got moved up and hopefully you will get a clearer answer from the GI. Do keep eating gluten until the celiac testing is done. Once the testing is done do give the diet a good strict try. Hang in there.

That makes sense...I cried with relief when I got my diagnosis just because there was finally an answer. Please know that you are not weak or crazy. Keep pushing for testing. It could still be celiac, it could be Crohns. Push your Dr's to figure this out. Best wishes.

Thank you all very much. I actually cried when I got the answer. I wanted an explanation that I could "fix." Now I'm back to thinking I'm just weak and possibly crazy. I know I'm not crazy, but you know.

From what I have read online there is about a 1-3% chance of getting a false positive for celiac disease from a blood test. Was it a blood test that you got done? It may be worth your while to get a biopsy or more testing just to confirm it. I know being gluten free is a pain but it is better than getting cancer or other auto immune disorders.