182 Pancreas and Celiac Disease Link? - Celiac.com
No popular authors found.
Ads by Google:

Categories

No categories found.




Get Celiac.com's E-Newsletter





Ads by Google:



Follow / Share


  FOLLOW US:
Twitter Facebook Google Plus Pinterest RSS Podcast Email  Get Email Alerts

SHARE:

Popular Articles

No popular articles found.
Celiac.com Sponsors:

Pancreas and Celiac Disease Link?

If I only knew I had celiac disease long before I was finally diagnosed.  Now suffering celiac spru, gastroparesis and severe pancreatic insufficiency, I will never regain the full use of my pancreas.

I am in the process of learning if the celiac or Lyme Disease was the biggest culprit in damage to my Pancreas.  I'll keep you posted if anyone wants to know.   My sons have been dianosed with Lyme and with the information
Ads by Google:

on this site I've learned my youngest (16) may also have celiac disease.  Why it's taken his whole life for doctors to get it right I will never know but we're here now and gluten free looks to be in his future too.

The article here relating celiac with pancreas issues is very interesting to me and is something I must look into for my son's welfare.  Thanks for information about what to look for in juvenile's!
Blessings,
Trish

As always, Celiac.com welcomes your comments (see below).


Spread The Word







10 Responses:

 
kathryn

said this on
09 Mar 2010 6:54:43 AM PDT
Trish - noticed you were also in Sturbridge, MA. Checking to see if you are interested in connecting re: celiac.

 
Trish

said this on
19 Jun 2010 12:42:30 PM PDT
I'm happy to connect with you. I'm on new boston rd. in Sturbridge my email is trisheebabe@msn.com

 
Trish

said this on
14 Jul 2010 3:47:43 PM PDT
Happy to connect. Not sure why responses are so delayed here. Contact me through my website at www.S-L-A-M.org which is our Sturbrige Lyme Awareness of Massachusetts.

 
sandy

said this on
20 Mar 2010 6:02:34 PM PDT
Please post your findings about the pancreas link. Before we found out my husband could not tolerate gluten or corn, I always thought he had liver or pancreas issues. I thought so because he could never process alcohol.

 
Trish

said this on
19 Jun 2010 12:44:02 PM PDT
Sorry for the delay in responding to this. My doctor who diagnosed Pancreatic issues does attribute the damage to Celiac Spru. My lyme doctors attribute it to damage from Chronic Lyme disease that went undiagnosed for many years and nearly took my life.

 
Anthony

said this on
13 Apr 2010 9:19:37 AM PDT
I was told that eating four raw ochros a day will help with the pancreas. I eat a lot of raw foods and drink green juice occasionally. I do not have a problem with my pancreas but I love raw ochro and someone made the comment to me in passing.

 
Trish

said this on
19 Jun 2010 12:45:59 PM PDT
Sorry for delay in responding. The ochra is good information and news to me. My Pancreatic specialist seems to think my problem with Pancreas is from Celiac Spru. My lyme doctors blame the damage from Lyme that went undiagnosed for many years and almost took my life. I know of many with Celiac disease that also have Lyme disease and thyroid issues.

 
merrie

said this on
14 Jul 2010 3:16:52 PM PDT
I too am interested in the link between celiac sprue and pancreas damage. Wondering if this damage to the pancreas can cause diabetes....

 
crbpk

said this on
30 Sep 2010 5:21:20 PM PDT
I am also looking for information about this connection. My 14 year old daughter has a gluten intolerance - not celiac - but before we found this out she was diagnosed with type 1 diabetes. Strangely, she has none of the antibodies that are normally found in type 1 diabetics. Doctors are not sure why her pancreas won't work, and frankly, they don't seem to care much. They are not even really interested in the gluten sensitivity.

 
YILMAZ

said this on
15 Dec 2010 3:36:13 PM PDT
Thrish, dıd you get any explanation about your pancreatic insufficiency. I do probably have Lyme disease and also anti-glutaminase IgA antibodies and recently diagnosed as having pancreatic insufficiency.




Leave a reply:
Your Name *: Email (private) *:




In Celiac.com's Forum Now:

All Activity
Celiac.com Celiac Disease & Gluten-Free Diet Forum - All Activity

Maybe try a rice based milk, I find the coconut flavoured ones really good with cereal.

I guess they've never felt the political pressure the mainstream cereal producers were under in the age of rickets and pellagra? Plus there's not such a competitive market and its a cost manufacturers would sooner do without if they can, although if Udi's or Genius did start perhaps they'd get more business. I think I'll start eating flax seed again, that was good for fibre I think. I take a vitamin supplement also of course.

Good for you! One suggestion, if you run into another reaction like your Endo, try and ask a question which puts the burden of proof on them, ie: 'Given the positive blood test, on what clinical basis are you excluding celiac?' At least it forces them to be more precise and perhaps exposes any flaws in their reasoning. Although if you reach that stage with a doctor it's probably worth looking for another... If I were a cynic I'd say your Endo had already metaphorically left the building when they were analysing your tests.Your primary seems more on the ball though Best of luck! If and when you go gluten free come back here and there will be plenty of support for you.

Great Image JMG. Thanks for the feedback. I think I feel that the decision to push for further tests, and not shrug it off is the direction I want to go. And I think I may try the diet post-endoscopy, and see if I respond (particularly if my thyroid responds to the diet). Thank you All!

Only GIs can order a complete celiac panel at Kaiser. Your results look negative, but those are just "screening" results. You are not IgA deficient (used only as a control test for celiac disease) so that means the TTG IgA test worked. If you suspect celiac disease, ask for a GI referral. Keep eating gluten!!!! If you go gluten free then all the celiac tests will be invalid. You should rule out other issues like Crohn's, SIBO, etc based on your symptoms and health history. I would ask for a complete celiac panel from the GI. Why? Not all celiacs test positive to the TTG which is a cheaper, but excellent test but does not catch all celiacs like me!!!