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Having a Bad Day at the Doctor's Office

Why do the nurses at the pediatrician's office have to be so rude?  I love our doctor but her nurse stinks. She is rude and unconcerned. She always makes me feel like I am an over reacting mom. I honestly can't stand her today.  I need to go and pray and it's a good thing we don't go in to see her until tomorrow, because I will have time to cool down. I just have had it with the run around with my daughter. It took over 2 years to get to where we are now, and you would think that they would jump through hoops and not make me jump through hoops to get something done. One of their doctors misdiagnosed her about a year ago, and she ended up in the hospital so sick with acute colitis. Stop acting as if this is not real or just a little allergy! That is what I want to
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say to her. She needs labs drawn to see what she is lacking. I know that she needs this so why do I have to come in there to let you look at her in order to get it done? She has not gained her weight back since last June when she was misdiagnosed, and now since we have her on this diet she has lost another 1/2  lb.--for a total of 4.5 lbs. She is so tiny she is 7 and weights 42.5 lbs.! That should speak for itself--are they scared to mess up again or do they want that doctor's visit fee? Ugggggh I am so upset today. I am having a feel bad day. It has hit me today that she has this for life, it's not going away, she won't out grow it like most food allergies. It's here and we need to fight it for life.  I have met a woman who's daughter was diagnosed at age 3 and she is 13, she is also a nurse, so she has helped me a lot in what to ask for at the doctor's office. I hope tomorrow  I have a more upbeat blog. I know I can do all things through Christ who gives me strength. 
Robin

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1 Response:

 
Sandy

said this on
14 Apr 2010 7:34:05 PM PDT
I feel the pain in your words. Doctors and their staff can be so impersonal at times. I wish you luck with your visit and hope you find some good solutions that help!




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If you're going to continue to push for a diagnosis stay on gluten! A break could lead to a false negative. It's a lot harder to go off it and then go back on...

I still prefer steaming, but I wash my white rice throughly. I purchase California rice which has a lower level of arsenic. Moderation is key to most everything! ?

I eat pretty much grain free just fine, I eat fats instead. But on a side note I posted some specialty and grain free options as of late in the food alternative page where I list companies and food product alternatives. I honestly just welcomed bread back into my life, I found a company that makes grain free bread out of nut flours. Given you have to toast the dang bread to use it well but seems to work decently. Pasta there are carb free versions out there, and there are ones made with quinoa, buckwheat, or other grains, I even know one company that makes nut flour based ones. You can get these gluten-free options and avoid the rice. As to levels of arsenic they do test foods for these, and all should be safe, the trace amounts and the sheer amount you would have to eat to get effected is staggering, a bit of rice will not hurt you regardless if your concerned I know gluten-free watchdog does arsenic testing on products you could check and find the "safest ones" for your concerns.

I've forgotten them, just remember the good stuff. Weekends in Baja or Vegas or up Pacific highway to see the Redwoods and Frisco. Watching the sunrise at Mount Soledad and watching it drop into the Pacific in the evening. Carne Asada Burritos on Garnet* Solana beach ale* Gorgeous women entranced by my exotic accent, humboldt county weed, raves at the romper room, *1.99 are you out of your mind Denny Breakfasts, Christmas on the beach, *Beers in the gaslamp quarter. I need one of these * which by the power of my imagination have magically become gluten free AANNNYWAAY... Arsenic in rice. Yeah.

Oh, it definitely struck me as very odd! It also says "no significant increase in intraepithelial lymphocytes". That's their favorite word I guess! My blood work pre-biopsy also showed increase lymphocytes and my primary doctor said it usually means increased inflammation. Doing all the things I can now---filing a complaint, I've emailed my doctors to tell them I'm upset and don't think I received proper care, I'm in the process of trying to see a naturopath that diagnosed a friend of a friend w celiac. I'm going to see if i can get the other blood work done with them---and I've been gluten free for a week and a half!