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Everlasting Hope

As I have been struggling with health issues for nearly 6 years, I have lost and gained hope so many different times.
My chronic states of malnutrition and starvation have taken quite a toll on my body. I suffer from chronic pancreatitis, a heart condition that leaves me with dangerously LOW blood pressure and a likeliness of fainting, my adrenal glands are insufficient, my liver damaged and my thyroid underactive. Through it all I have had several extended hospitalizations,
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depression and hope. So many doctors and non-traditionals have made me promises. However, it is the promise one makes to oneself that is most important. Mine, "Don't lose Hope!" Even during the worst of days when I would not be able to get out of bed and wanted it all to just end, I truly never lost hope! I am here to tell you that it is soooo important you hold on. Because, one day when you're not even looking and hardly paying attention, something will come to you and change your life.

As always, Celiac.com welcomes your comments (see below).


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4 Responses:

 
deb

said this on
20 Apr 2010 4:12:41 AM PDT
Trish-please contact me. I have chronic pancreatitis and lived on tpn for 1.5 years. I'm eating a very limited now-but EATING.

 
Trisha McGinley
( Author)
said this on
13 May 2010 3:13:50 PM PDT
Deb,
Sorry it took me so long to respond. I didn't know you had left a comment.

 
Trisha McGinley
( Author)
said this on
13 May 2010 3:11:37 PM PDT
I struck out on TPN twice. First time = blood clot; second time = blood sugar issues; thus feeding tube!!

 
michelle

said this on
31 Jul 2010 11:01:34 PM PDT
deb-
sorry, It took so long to reply, but was sick and didn't read until now but have been to sick to reply .
wow, it sounds like me, but I am eating now-I would say that I gained weight but I just found out I have an under active thyroid - just started the meds today and go for sonogram on throat next week.
Think positive things will get better- thank god for my husband.
I started w/ Dr. Green but felt like a test tube great doctor though- now see someone at Mt. Sinai and Boston Beth Isreal They have a big celiac program.Dr. Kelly-you may want to check him or Dr. Green out.
I wish you only the best.
Michelle




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Celiac.com Celiac Disease & Gluten-Free Diet Forum - All Activity

Ditto. However, this is what I can never understand about gluten free food. (see the bold bits which I've taken from the article) "We wanted to determine if gluten consumption will affect health in people with no apparent medical reasons to avoid gluten. Gluten-free foods often have less dietary fiber and other micronutrients, making them less nutritious and they also tend to cost more,? I wonder why what so much of what I eat that's gluten free doesn't have added vitamins - we of all people need fortification in our cereals and bread, surely?

Yeah we learned that the hard way. I am inclined to think (as I did initially) that it was JUST the Cheerios but as time is passing and she is not bouncing back I am worried that we need to strip away dairy again for a while.

Oh I have no issue with being dairy free personally but tell that to a 13 year old. We both went gluten-free at the same time and it has been mindlessly easy for me. But I am easy about food and no real food issues. I am far more adaptable. She comes to the table with her own unique set of issues that complicate just easily transitioning to dairy free versions of much loved favorites. To most they are jst that "substitutes" to her they are completely different foods and ones that she has no interest in eating. They don't satisfy her need for XYZ. It is like craving an apple and someone handing you a fish. For her anyway! LOL!

I believe the talk around this forum is that cheerios are not gluten free enough for people with celiac at this time. I don't know if anything has changed on that and when their lawyer calls me I'll quickly delete this. haha

Could be we generally say get off of dairy for a few months when going gluten free. The part of the intestines that produce the enzymes, and help break down dairy are associated with the tips of the villi, which are the most damaged if not gone in celiacs. THIS is why most of us end up with a lactose intolerance early on. And most can introduce it later after healing. As to her symptoms with it there was a bunch of research about dairy permeated the gut and causing neurological issues in a autism study I was looking at years ago. And there have been other studies about damaged intestines and how the hormones in milk can easier effect ones body. Personally I also have a huge grudge against dairy on a personal level as it is not natural to suck on a cows tits and drink the stuff, nor your dogs, nor a rabbits......I mean come on even Human Breast milk you would find odd to drink as an adult right? Back in the past dairy was a great way to get calories and fats when there was famine, etc around I mean it is meant to make a calf grow into a 500+lb cow. But on a genetic and hormonal level it is not really for human consumption and now days the whole corporate BS propaganda push and dairy farms shove that oh its healthy stuff down your throat. There are plenty of dairy free options for everything feel free to message me if you need help finding anything I have been dairy free for over a decade.