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Our First Gluten-Free Picnic

We had our first support group meeting.  It was a picnic. Abby was able to meet some children her age.  They grilled hamburgers and sausage.  There were about five vendors there to present their foods. We got some great samples, and recipes that each family brought with their food.  It was amazing to me how people connect having never met before. That common bond, just having someone that understands, or gets it. 

There are so many people that have never heard of celiac disease, or if they have heard of it, they do not understand how serious it is.  I want to go and tell moms everywhere, please pay attention to these symptoms.  I do not want another child to be sick for over two years and have to get really sick for the doctors to take it seriously, and then find out what is wrong.  We need support and we need to make people aware. I want to help form a support group with the Family Connection in Columbia SC. I
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am in the process now. If you know anyone that is looking for a support group please help them get in touch with me by posting a comment below, or call Family Connections in SC they will help you get connected. 

We had another successful cookout the next day even with some ungluten free food around.  My daughter looked at the dessert table and saw those oh so beautiful pink  icing sugar cookies. I said oh, honey you cannot eat anything over there. I brought your dessert. I expected to get a drama cry, but thankfully she said oh, ok, mommy and went off to play with her friends.  I count that as a success story for us. She may be starting to get it . I know there will be setbacks but we are ready for them.   My daughter has designed some really cute t-shirts. A little girl  with a cape.  logo says "Super Celiac Girl... fighting gluten everywhere", and then there is a boy says the same but Celiac boy.  There other one is a toaster and it says keep your crumbs out of my toaster.

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Just watch out. I just went to the expo in Schaumburg, IL, and ended up getting glutened. I realized afterward that I ate all these samples thinking they were gluten free, and they weren't. One company was advertising some sugar, and had made some cake, but then I realized.... How do I know if this contains any other ingredients that might have gluten? Did they make it with a blender or utensils that had gluten contamination? Makes me realize the only safe things would be packaged giveaways with gluten free labeling. My fault for not thinking things through. It was just too exciting thinking i could try it all and enjoy without worry.

No fasting required for a celiac blood test unless they were checking your blood glucose levels during the same blood draw.

I wish! I got the flu this winter as well as a couple of colds. I do have 3 lids, the youngest in preschool, so there's always a lot of germs around. Lol

Hey again ? It's a start, but I so wish they'd done the whole panel. Some of us, myself included, test negative to the TTG-IgA. I was positive on the DGP only. I wonder if your insurance will only cover those 2? Regardless, get them done as soon as you can! Do you have a walk in lab where you live? If so, go tomorrow. Then you'll be a step closer to getting answers. Good luck and keep us posted!

I totally agree...this board is awesome! The people on here have been there for me through everything and it has helped so much! I don't think antihistamines would affect the test at all. I take an antihistamine daily as well for horrendous allergies.