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Not Sticking with the Gluten-Free Diet

Well, It has been 11 months since my hubby's diagnosis and what a ride.  At first the doctor scared him straight...that lasted all of 3 months, and since then he has been going down hill and especially in the last 3 months.  I cook gluten-free and then he hits a few Oreo cookies.  YIKES! what is a person to do?  If any of you have or had the
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same issue please give me some tips on how you handle it. I know the disease is his and he should take care of it, but let's be real here.  He is not going to cook for himself and if he does fix his own food it is cereal, gluten-free ham and sliced cheese with gluten-free crackers, canned fruit and rice and eggs. Not a very nutritious diet.  Thanks for your suggestions.

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5 Responses:

 
Maureen

said this on
27 Apr 2010 8:06:19 PM PDT
Nancy-It is very difficult to maintain the diet. It may help to stock up on lots of gluten-free snacks and cookies. If there are only gluten free snacks in the house - then there is less temptation.
It helps to eat before going to a party - and bring a gluten free dish for all to enjoy.

Maureen

 
Judith

said this on
28 Apr 2010 1:37:12 AM PDT
Keep his favorite snacks (like gluten-free Oreo style cookies) well stocked, so he doesn't binge. Make sure he has some in a sandwich baggie that he can take to work so he has some there, etc. Figure out how to fix his favorite foods, especially those that he likes to order at restaurant, gluten-free so he has them at home, so that when he has to eat out, he'll eat the safe foods without feeling deprived. Keep those easy to fix and freeze gluten-free foods (like tamales, for example, or enchiladas with a side of beans & rice) in single-serving freezer-to-microwave containers so he can take them to work. Keep gluten-free cookie dough on hand, frozen, so snacks can be made quickly. It's something that need only take a weekend afternoon for preparation and cooking and marking and freezing. It will save you time and save his innards.

 
Nancy

said this on
28 Apr 2010 4:16:31 AM PDT
Thanks for the tips. I have never seen "oreo"- like gluten free cookies. I will have to check it out.

 
Cheryl

said this on
05 May 2010 12:41:42 PM PDT
He obviously does not take his health seriously. It's his choice to make, and he's a big boy. No one can make a person do what s/he should do to take care of their health - we are only each responsible for our own health. Directing him to the overwhelming amount of gluten-free products that are available (look online) and cooking gluten-free is helpful, but only he can make the decision about what he puts in his mouth. Expecting him to make his health decisions for himself is the most helpful thing to do - doing it for him is not.

 
Nancy
( Author)
said this on
06 May 2010 5:44:17 PM PDT
Someone sent a comment asking about home remedies or medications for suffers who eat something with gluten. The answer from best I can tell is no. The only way to avoid the symptoms is to stop eating gluten. If I am incorrect about this can someone please post a comment so the person who asked the question can get correct information. Thanks




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Celiac.com Celiac Disease & Gluten-Free Diet Forum - All Activity

Hi wondering if someone could help. my daughter has mildly raised TTG levels and the gliadine levels, she has one Coeliacs gene, but her biopsy came back negative. We have kept her off gluten (and low dairy) for nearly a year to see if her symptoms improved. They haven't. But I don't know if they are related to gluten specifically. Just wondering if anyone has other suggestions that may be going on with her. Her symptoms are: - Short stature, she's nearly 9 and my 6 year old boy is nearly bigger than her - bumps on back of her arms - urine leaking and occasional soiled pants, which could be from constipation she has at time's - sticking out stomach - dry patchy rashes on her face - joint pain sporadically - vomits every 6 weeks, but hasn't had gluten and seems to be no food connection - reoccurring thrush She had gluten last night at a party and was fine today. I'm a bit lost and not sure where else to turn. Thanks for any help.

We have gone gluten free, our whole house, as of a month ago. It was pretty seamless since I had been gluten-free for 5 months last year. I have found many good recipes, and my picky husband and one of my boys who is also a picky eater, even prefer many gluten-free recipes to the regular ones. My husband did see my point about the size of the gluten protein means nothing. Its a gluten protein period, that's what you are avoiding. It doesn't matter if its hiding in the scratch of your baking sheet and you can't see it. You can't see the wind, but it's still there. I hear you on the anemia. I've been anemic for several years, I just thought it as because I was getting a little older. Has your anemia gone away or do you still have problems with it?

Ennis, it is made out of metal, coated with plastic I think. You have such a hard time, my heart really hurts for you. But you are such a support to those on this board, and a great teacher for those of us who are new.

Thanks everyone! I think its hard for people to fully accept because they cant see the damage it does every time you get glutened. It's invisible. Im glad to know I wasnt being paranoid. I sure was when I was first diagnosed. I laugh at myself now, but its a pretty steep learning curve.

FYI......anxiety is a common symptom with celiac disease and NCGI. It seems to resolve on a gluten-free diet. ?