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Celiac, Dieting and Body Weight

 The Specific Carbohydrate Diet is efficient at keeping weight stabilized once a normal weight is attained. Take my trusty Tanita weight scale before it becomes rusty.

I still perch on the digital Tanita weigh scale the first thing every morning--jiggling a bit from side to side to push the number lower (Despite the fact the read-out rarely changes or wanders, bad habits die hard).  Seeing the same number continues to surprise because my weight fluctuated wildly from 1944 until shortly before I started a celiac diet in 2000. The numbers  ranged from 136 pounds at age twelve to 219 pounds in 1988.

Now I am comfortably settled in at a healthy weight and still rejoice along with my family physician over the last eight years of stability and a good BMI.

Obesity is rarely associated with celiac disease. Typically, weight loss is reported and a history of low body weight despite excessive caloric intake.

In young women with undiagnosed celiac disease, this is often mistaken as an 'eating behavior disorder'. Nutrients from food do not get absorbed properly. I didn't fit the profile and had worked hard to lose 86 pounds sometime before celiac disease presented. There is a strong possibility that the weight loss lowered my immune system and made me vulnerable to the pneumonia that followed
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and leveled my tolerance to food and the environment. Your immune system ordinarily keeps you from getting sick, but in someone with celiac disease, the body starts damaging and destroying the villi. Without villi, a person's body can't absorb vitamins and nutrients from food.

In order to to be sure my diet is balanced and has the proper nutrients, I have continued to keep track of daily food intake and calories.

I also take gluten free, starch free, yeast free, and soy free vitamins daily. I  am able to choose some calorie dense foods, notably Medjool dates and almond butter without obsessing. It seems to be the lack of starchy foods and grain that make the difference.

Another SCD-er who has lost 180 pounds (and is still losing) is our best gourmet cook, writing a cookbook and including her tale about continuing on Specific Carbohydrate Diet throughout the horrors of Hurricane Katrina.

Satiety and variety are great assets derived from life on Specific Carbohydrate Diet.

As always, welcomes your comments (see below).

Spread The Word

2 Responses:

Mary Morley

said this on
24 Jan 2008 6:24:53 AM PDT

I also am an undiagnosed celiac! I have been on the diet for just about 3 years now. I follow the diet to the best of my knowledge. Before I went on the diet I was very sick but my weight was fine. Now that I have been on the diet I have gained wait (about 20/25 pounds) and still have various systems of medical issues. I would like to lose weight but just can't seem to and I would love to find a physician in Southern New Hampshire that was knowledgeable on Celiac Disease.

I am again starting to count my calorie intake to see if I can do better as well as I have started walking two days a week.

Any suggestions would be appreciated on living a better lifestyle.

said this on
12 Jan 2008 11:30:52 AM PDT
Attn: Carol Frilegh

Dear Carol,
Compliments on your article regarding obesity and celiac. PLEASE give me all of the details & ingredients/foods involved in the Special Carbohydrate Diet, which you mentioned in your article which contributed to your success. I cannot find detail about Special Carbohydrate Diet anyplace else. Please email me and accept my thanks. Candy

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All Activity Celiac Disease & Gluten-Free Diet Forum - All Activity

you're lucky you dont catch colds. im the opposite i catch everything very easily and get alot sicker than whoever i caught it from and take much longer to get better.

Even one positive can be diagnostic. This is one: Gliadin deamidated peptide IgG 33.9. If unsure, a biopsy of the small intestine will provide definite confirmation. There is a control test to validate the other ones, but I don't see it there. What is does is validate the others by checking on the overall antibody levels. But it is to detect possible false negatives. A positive is a positive. I think your daughter has joined our club.

My daughter, almost 7 years old, recently had a lot of blood work done, her Dr is out of the office, but another Dr in the practice said everything looked normal. I'm waiting for her Dr to come back and see what she thinks. I'm concerned because there is one abnormal result and I can't find info to tell me if just that one test being abnormal means anything. The reason for the blood work is mainly because of her poor growth, though she does have some other symptoms. IgA 133 mg/dl Reference range 33-200 CRP <2.9 same as reference range Gliadin Deamidated Peptide IgA .4 Reference range <=14.9 Gliadin deamidated peptide IgG 33.9 Reference range <=14.9 TTG IgA .5 Reference range <=14.9 TTG IgG <.8 Reference range <=14.9

Just watch out. I just went to the expo in Schaumburg, IL, and ended up getting glutened. I realized afterward that I ate all these samples thinking they were gluten free, and they weren't. One company was advertising some sugar, and had made some cake, but then I realized.... How do I know if this contains any other ingredients that might have gluten? Did they make it with a blender or utensils that had gluten contamination? Makes me realize the only safe things would be packaged giveaways with gluten free labeling. My fault for not thinking things through. It was just too exciting thinking i could try it all and enjoy without worry.

No fasting required for a celiac blood test unless they were checking your blood glucose levels during the same blood draw.