No popular authors found.
Ads by Google:

Categories

No categories found.




Get Celiac.com's E-Newsletter





Ads by Google:



Follow / Share


  FOLLOW US:
Twitter Facebook Google Plus Pinterest RSS Podcast Email  Get Email Alerts

SHARE:

Popular Articles

No popular articles found.
Celiac.com Sponsors:

Polaner All-Fruit Jam with Fiber: Is it really Gluten and Sugar Free?

Polaner All-Fruit Jam with Fiber:  Is it really Gluten and Sugar Free?

How many of us find a trusted brand and happily spend the extra money to get that brand of that product so we don’t have to decipher labels each and every time we go to the grocery store?  I think of these products as “clean” – there is nothing in them that makes me sick and I can consume them without concern. 

For years I have purchased and consumed Polaner All-Fruit Jam.  With all their delicious fruit varieties, it has been my one “comfort” in the midst of the myriad of sweet sucrose-containing foods I cannot eat.  I put it on my gluten-free waffles and pancakes and sometimes even heat it up to make a fruit syrup.

Last Sunday I noticed my stomach was “blown-up” and cramping – the tell-tale sign that I’ve consumed gluten.  My husband had made brownies the night before, so I went through my kitchen, checking which utensils he had used, and asking him if he had possibly contaminated something I wasn’t aware of.  Monday, Tuesday, Wednesday, and Thursday I endured more stomach cramping, headaches, fatigue, and mental confusion.  Friday, I woke up and thought I was better.  I decided I must have inadvertently eaten gluten from an outside source, and that I had recovered.  Then, I ate breakfast, and within the hour, the symptoms had returned.  All day long I worried about what my new intolerance was, how I was to find it, and how much more refined one person could make their diet.

Friday night, while making my daughter a peanut butter and jelly sandwich, I got out the Strawberry Polaner All- Fruit and noticed for the first time that the words “with Fiber” had been added to the label.  I immediately checked the ingredients and was astounded to see “maltodextrin” as an ingredient.  Just to the right of the ingredients, however, I saw the words “gluten-free.”  And therein lies the problem:  sometimes maltodextrin makes me sick, sometimes it doesn’t.  According to the celiac.com website, it depends on the source, and obviously Polaner’s source or manufacturing practices aren’t clean enough for me.  Maybe they don’t test their maltodextrin every time, maybe the maltodextrin comes from “shared equipment”, but whatever the reason, this product now makes me sick and I am thoroughly disappointed.

It is frustrating that a company has to take a pure product such as an all-fruit jam and add something unnatural in order to tout some health benefit.  I know it’s marketing hype, but, for goodness sake, we’re talking about jam—let people get their fiber naturally and on their own terms. 

Don’t get me wrong, I am relieved to have found the culprit, but once again reminded how very careful those of us with celiac disease/gluten intolerance have to live our lives.  Snatching a favorite product off the shelves without checking labels each and every time just isn’t an option, especially when it takes someone like me up to a week to find that culprit!

I contacted the company with the following statement:

“Why ruin a wonderfully pure product – Polaner All-Fruit - by adding maltodextrin to it?  I have been sick all week and finally realized the Polaner All- Fruit with Fiber new formulation is the culprit.  Maltodextrin, even when proclaimed "gluten-free," can cause problems for those with celiac disease/gluten intolerance.   I am so disappointed - yours was the jam I trusted and now I can no longer have it.  Let people get their fiber naturally on their own terms!  In my opinion, you have taken an outstanding "clean" product and ruined it.”

Within two days I received this cordial and informative response:

Dear Ms. Arrington,

Ads by Google:

 

Thank you for your correspondence regarding our Polaner All Fruit brand. So sorry to learn that you were not feeling well after eating our newly reformulated All Fruit.

In speaking with Polaner All Fruit users in 2008 and 2009, many told us they are not getting enough fiber in their diets.   The response among these current All Fruit users to the concept of taking Polaner All Fruit and adding natural dietary fiber to the recipe was positive.  The majority told us that if the taste and texture could remain the same, they’d prefer a new version that provides a good source of fiber in every spoonful.  We often heard – “you can’t get enough fiber.”

The maltodextrin we use in Polaner All Fruit with Fiber is a soluble fiber produced under the brand name Fibersol-2.  Derived from nature, it is a concentrated form of soluble dietary fiber and remains undigested by enzymes of the human digestive system.

Fibersol-2 is produced from cornstarch, a completely natural product, using a method that results in a digestion-resistant maltodextrin. This non-digestible portion of the maltodextrin is tasteless and odorless.  It is extracted and then added to Polaner All Fruit to provide the fiber benefit.

Fibersol-2 contains a very small portion of sugar (<0.5 g total sugar per serving) making it perfect for sugar modified foods including true sugar free foods.  Based on FDA regulation, any product using this type of maltodextrin is considered sugar free.

We regret that you did not share the positive response to our reformulated All Fruit we’ve seen from others.

We appreciate your comments. They will be shared with management.

I wish you well.

After reading this I began to wonder if my problem was more with the <0.5g sugar content then possible gluten contamination.  If their maltodextrin is derived from cornstarch and is not produced on “shared equipment,” then it should be gluten free.  (I could buy a home ELISA kit and test it myself!)   I did appreciate their prompt and detailed response, but the knowledge that companies can label a product sugar free even when there are tiny amounts of sugar frustrated me even further. 

Regardless of the cause, now that the product contains maltodextrin, I can no longer consume it.  I went to the store and scrounged around until I found one lonely prior-to-fiber jar on the shelf.  It was a jar of Polaner Grape and maybe I can make it last long enough until they revert back to their old pure product or at least offer it as an option.

If this new product is also causing you problems, I suggest you go to http://www.polanerallfruit.com/polaner/index.html and let them know. For now, I am in the market for a new, pure, all-fruit jam!

As always, Celiac.com welcomes your comments (see below).


Spread The Word







43 Responses:

 
Peggy Kwik

said this on
17 Jul 2010 3:45:59 PM PDT
Thank you for sharing your experience and getting an informative response from Polaner.
I will contact the company to ask that they continue to make the former recipe without fibe.

 
Arthur

said this on
20 Jul 2010 1:50:12 PM PDT
Fortunately I noticed the change on the label before I opened the jar and returned it. I figured I just took down the wrong product, but when I went to the shelf again there was no more all fruit to be found. I wrote the company and got the same response you did, then googled all fruit fiber and found your post. Your letter to them was better than mine. I hope that enough people write them and they notice a drop in sales large enough that they return to the original recipe with no fibersol.

 
paul

said this on
31 Jul 2010 6:02:05 PM PDT
Ii had a bad reaction to the Polaner Seedless Blackberry which does not say with fiber or list that ingredient. I wonder if they are using maltodextrin as a thickening agent and now it is subsumed under pectin on the label.
Thanks for your detective work I was wondering where they source their fruit, possibly China.
best, Paul

 
Dee

said this on
04 Aug 2010 5:13:08 AM PDT
Thank you for sharing this. I just learned about this new formula yesterday when visiting the supermarket. I am writing to the company as we speak and thought I'd do an Internet search to see if others are upset about the change. I hope enough of us contact the company for them to consider offering their old product in addition to the new version

 
said this on
01 Sep 2010 3:32:11 PM PDT
I sent B&G an e-mail complaining that I found their Polaner Sugar Free With fiber Apricot preserves to be TERRIBLE! I don't know were you found the address to write to them but I will persevere and write to them. I always LOVED Polaner jams, but this new one with fiber is just AWFUL! Thanks for sharing.

 
Carol Cullen

said this on
27 Sep 2010 8:38:43 AM PDT
Can any of you provide an address to write to Polaner requesting the OLD recipe Sugar-free jelly WITHOUT FIBER....??

 
Jenna

said this on
28 Sep 2010 1:16:33 PM PDT
I thought I was the only one fanatic about what goes into the jam I feed my family...I just sent a complaint email to B&G Foods, as well! I have searched high and low for the original All-Fruit and after scouring their website today, understand it has been discontinued.

Not only could the maltodextrin be an issue for celiacs, it is associated with MSG and is a neurotoxin. Moreover, per the author's response letter from the company, it is manufactured using cornstarch from genetically modified corn, which is toxic in and of itself.

So, I too, will no longer purchase Polaner until they can bring back the original recipe. Shame on them!

 
JustSteven4now

said this on
31 Oct 2010 6:40:24 AM PDT
Hello...
and thank you for your letter and for bringing this to a larger audience's attention. Also of note is the label now includes "natural flavors", something that had never been there before. The direction they are taking, in my opinion has little to do with consumers voicing their concerns about lacking fiber. Their customers would lean towards being conscious of their diets to the point of sourcing fiber in the manner in which you mention, natural sources. The bottom line, is in fact the bottom line. This purely a move towards cheaper ingredients and hoping it would go unnoticed. I urge everyone to continue to push B&G to abandon this change and resort back to their original recipe and charge more if needed.

 
Kelly Eakins

said this on
31 Oct 2010 9:35:11 AM PDT
Wow...my husband just called me from the grocery store to tell me about the fiber labeling on Polaner All Fruit! I googled and found this thread- thank you all for the information. My 5-year-old son and I are gluten intolerant. I am bummed about the product change. How ridiculous of them to add the maltodextrin.

 
Susan

said this on
21 Nov 2010 3:12:50 PM PDT
This Polaner stuff is disappointing. I don't have a gluten problem (as far as I know) but am allergic to corn. I just switched from Simply Fruit to the Polaner because I hadn't realized that all of the Simply Fruit is and/or sweetened with pineapple which I am off the charts allergic to. Isn't there an affordable, no junk added, jam or jelly out there? 1/2 PBJ is one of my go to breakfasts because of food allergies and diabetes. Most disheartening.

 
Julee

said this on
06 Dec 2010 9:12:56 AM PDT
The same thing happened to my son. He had such a bad week last week. He had terrible dark circles and what we call the "glazed-over" look he gets when he accidentally ingests gluten. When making him a pbj this morning I noticed the "with fiber" on the jelly label for the first time. My husband had done the food shopping last week and this was the only change in my son's diet. I was so mad at Polaner! The added fiber is just a marketing ploy. It seems even the basics are becoming more and more processed. If people were really interested in improving their diets they wouldn't eat "fake" sources of fiber; they'd eat foods in a more natural state.

 
said this on
14 Dec 2010 4:20:17 AM PDT
You all are correct in your statements. Maltodextrin is not natural (naturally derived does not mean natural), and based on the statements from Polaner to Ms. Arrington above, I now see that maltodextrin contains CORN STARCH! Corn starch has the potential, depending on the source, to contain GMOs (genetically modified organisms) that have been found to cause all kinds of health complications. When I could no longer find the ALL-FRUIT I've come to know and trust, I went organic like I have many other things that have tried to add fiber as a marketing scam. My daughter and many others I know have been having problems going to the bathroom. I kept assuming I needed to add more fiber. I just found out that the problem is that my daughter has been getting too much added fiber in the foods I thought were trustworthy. The problem is that she needs more of the fruit and vegetable fibers, and LESS of the starchy kinds of fibers found in breads and the foods with added fiber that contain maltodextrin. No wonder she can't go to bathroom! I'm sorry to say that I will no longer be purchasing All Fruit again until the added fiber goes away and they go back to truly being ALL FRUIT again. If they want to have a line of fiber added products, fine, but PLEASE provide the old stuff again for those of us who believe you shouldn't fix what is not broken!

 
Rebecca

said this on
17 Dec 2010 6:03:21 AM PDT
I too wrote the company to tell them I am profoundly disappointed in their decision to add maltodextrin to their products. The range of corn-free foods is already very narrow, and this is one more that must be deleted from my grocery list.

 
Tricia

said this on
20 Dec 2010 3:04:16 AM PDT
I am so happy to learn I am not alone!!! I emailed the company when they changed the formula asking for the old one so I can start my own company. I couldn't be the only one out there who missed this as much as I did. I told them if I need extra fiber I will get it and it won't be in my jelly. This new product is terrible. The consistency is totally different bla bla bla bla.. I am singing to the choir. anyway I am in search of an organic product that is similar to the old one. any tips?

 
Pat

said this on
21 Dec 2010 4:22:50 PM PDT
There are some good "all fruit" sugar free options at Whole Foods Market They have their own 365 brand and they have 2 imported brands - Bionaturae (imported from Italy) and St. Dalfour (imported from France) which are excellent but double the price of Polaner. Apparently we can't make a pure all-fruit spread in this country!!! To me the extra cost is worth it! I hope this helps!

 
chris

said this on
31 Jan 2011 8:19:05 PM PDT
Natural Flavor is an FDA term often meaning Monosodium Glutamate [MSG].

 
cathi

said this on
02 Feb 2011 7:45:53 AM PDT
I have been eating the Polaner jam with fiber and have NO adverse effects. I too have celiac disease but each individual has different tolerance levels. I obviously do not have a reaction to maltodextrin, and I do struggle to get in my fiber, so Polaner jams are a great option for me. Each individual needs to determine their tolerance level and make their OWN choices based on that.

 
Beckie Paulick

said this on
18 Nov 2011 3:31:45 PM PDT
I love this jelly, found it in Florida last month, now am trying to find in Pittsburgh, can't!!

 
Chris Garvey

said this on
02 Feb 2011 8:37:15 AM PDT
Dear Christine
Thank you for your reply.
Your policy on always labeling MSG is a good one.
But having unidentified flavors under "natural flavors" makes label readers suspect you of MSG.

 
Chris Garvey

said this on
02 Feb 2011 8:55:06 AM PDT
My first comment to Polaner's webform:
Go back to selling All Fruit. It was a simple and pure product. All Fruit with fiber is not what I want from this product. If I wanted sugar and synthetic sweeteners, I would buy preserves.

 
Chris

said this on
02 May 2011 5:02:43 PM PDT
This stuff DESTROYED my stomach all weekend. I will never buy another one of Polaner's products. I'd sooner eat at Taco Bell.

 
Steven

said this on
26 Jul 2011 1:24:58 PM PDT
Maltodextrin in the USA is sourced from GMO corn. GMOs, in their present incarnation, are defective products with hundreds of unintended gene mutations that can cause various illnesses. Perhaps that is why it makes you sick. See the movie, "The Future of Food."

 
said this on
16 Mar 2012 8:58:28 AM PDT
After reading all the above comments, I see I made a mistake in buying the one with fiber. I don't have to be on a gluten free diet. I loved the other fruit ones, without fiber. However, the bug really freaked me out. Please reply. I'm sure Stop & Shop will refund my money. Thank you.

 
said this on
16 Jun 2012 4:36:46 AM PDT
I too stopped buying Polaner COMPLETELY! Although for different reasons. I am totally allergic to almost all kinds of processed sugars, one of which is maltodextrin. When I noticed the words "with fiber", I immediately read the ingredients and purchased a more expensive brand that I could ingest without having a HEART ATTACK! I also contacted Polaner with my complaint as well, stating that I believed their marketing decision was not a wise one. I used to be a chef, and I developed many recipes using their product, so now I buy another more expensive brand.

 
Robert Harvey

said this on
31 Jul 2012 7:25:33 AM PDT
Does Polaner market individual serving size packets like those served at diners, etc.? Our retirement community needs them but our food buyer says his wholesalers don't carry any jams or jellies with no added sugar.

 
Joanne Schlunk

said this on
03 Oct 2012 7:31:34 PM PDT
At least some people received a reply. I emailed them twice and never got an answer. Maltodextrin is a laxative and gives a lot of people cramps, etc. I'm frustrated with additives that are not necessary and not in our best interest. Too bad--I liked this product.

 
Cheryl

said this on
28 Jan 2013 6:11:14 AM PDT
It as been causing me trouble as well. I am allergic to corn, so that explains my problem. Thanks for sharing!

 
said this on
07 Mar 2013 7:53:49 AM PDT
I have been eating Polaner All Fruit for years. And when I say years, I mean nearly two decades. I am gluten intolerant and have immediate reactions to ingesting MSG. When the Polaner label changed to "with fiber", I immediately scanned the entire label and was comforted to see it still retained the gluten-free designation. How wrong I was to rely on that. I keep a stockpile of different favors and that caused some confusion. All of my stock was pre "with fiber" but my favorite flavor is cherry, so my newer purchases of that flavor have the new designation. I eat at least one piece of rice bread with almond butter and Polaner every day, so when I began to have bloating and other problems, enough said, I did not immediately suspect Polaners. When the problems persisted, I began my dietary investigation of all the foods I ingest. And, sure enough, there is Polaner "with Fiber" containing maltodextrin and still claiming to be gluten-free! For pity's sake, add some raw fruit and veggies to your diet if you need fiber! Now I eat St. Dalfour. It is more expensive but they have a black cherry flavor and, most importantly, it does not make me ill! Bad move, Polaner!

 
SHAUNA

said this on
17 Mar 2013 7:50:12 PM PDT
I love polaner all fruit with fiber and it doesn't bother me. It's the only spreadable fruit i use. I love all the different varieties, but our Walmart does not carry the blueberry or the grape and I wish to try some. I just bought the apricot yesterday and it was AMAZING!!!!! THIS IS THE BEST SPREADABLE FRUIT I WOULD RECOMMEND TO ANYONE. LET THEM TRY IT OUT AND SEE WHAT THEY THINK!

 
Zoe

said this on
26 Mar 2013 10:23:39 PM PDT
First of all, thank you for your informative article. I had exactly the same symptoms after consuming the fiber-fortified spread, and this was one of the only useful articles that came up when I searched online for reactions to the product and/or maltodextrin.
I will say that maltodextrin, whether wheat-, corn-, or rice-derived, is known for causing cramping and bloating in larger doses. That is, for the type used as fiber. There is another kind which is processed quickly by the body (used in sweets and as an anti-caking agent) and may be the type you have fewer problems with. At 3g per Tbsp or whatever the serving is, that spread definitely constitutes a large serving of the fibrous maltodextrin.
Additionally, it would make sense that we people in the Celiac/IBS/Chron's/UC/IBD family would often have much higher sensitivities to it- especially if the intestinal lining is damaged/already inflamed as it would commonly be with many of those conditions. And maltodextrin would be particularly problematic for people struggling with bloating from fermentation in the gut- though fibrous maltodextrin is not an energy source for humans, bacteria can ferment it and produce lots of gas. I've found that I'm sensitive enough to it to have a reaction after taking a Vitamin C tablet containing it.
So possibly, though it's of course not a certainty, Polaner is indeed using gluten-free maltodextrin and the adverse effects people are experiencing are related to fibrous maltodextrin sensitivities/intolerances. This is in no way meant to discount everyone's experiences- that stuff gave me extreme abdominal pain too. And your article gave me the information I needed to further research the matter, which is much appreciated. Hope this is somehow helpful.

 
Melissa

said this on
27 May 2013 6:06:01 AM PDT
Thank you for your post. It was very informative. I too am (was) a fan of All fruit spreads. Now also in search of another spread.

 
Maxine

said this on
19 Jun 2013 8:56:34 PM PDT
Thank you for your blog. I got really sick today and I couldn't figure out why; the only new thing I had was Polaner all fruit, which i thought was safe because it said gluten-free. I turned to the Internet and found your blog, now I know.

 
Sue

said this on
29 Jun 2013 4:35:39 PM PDT
I am not allergic to anything but I did buy polaner because I thought it was all natural. I feel the new fiber ingredient added is bogus and I will buy an organic jam next time I go to the store.

 
BellaD

said this on
23 Aug 2013 10:21:13 AM PDT
I happen to have just finished writing to all fruit - on their website there is a "contact us" tag and I went in and sent them an email of compliant. I am not allergic to anything but I am diabetic and All Fruit has been my 'go to' jam. However, they are losing me as a customer because they no longer have bits of strawberries in the jam, it is now a loose gel consistency maybe because of the added fiber (?)or they are cutting back on the fruit and I will not be buying it any longer. I found this site and wondered about other people with health issues and what they noticed about this product. It's been informative and whatever doubts I had left about buying this again just vanished with the information that all of you posted. This Monsanto genetically altered seed program is so unhealthy and I would never have known about its role in All Fruit if I hadn't read it here along with other facts. So, thanks all of you for the heads-up.

 
D. Joyce

said this on
18 Sep 2013 12:36:20 PM PDT
My granddaughter is a celiac and three years old. She asked foe a PBJ for lunch and I used the Polander's all fruit with fiber grape flavor. In the last two hours she has thrown up six times. I am truly disappointed with this product.





 
Sara

said this on
21 Dec 2013 1:26:50 PM PDT
Thank you for the link to the website. I have celiac disease. I consumed less than a teaspoon of Polaners grape with fiber, and had a severe allergic reaction. All of the symptoms tell me it is a gluten exposure. If you have any level of sensitivity to gluten, I would recommend boycotting this product.

 
Denise Landrum

said this on
08 Mar 2014 1:13:08 PM PDT
I recently discovered that although I'm already gluten-free, I'm having issues with corn as well. This may be your body's way of saying something to you.

 
Denise Landrum

said this on
08 Mar 2014 1:14:06 PM PDT
Oh!! And thanks for saving my bacon, I had the jelly out for my rice toast!!

 
Joel

said this on
17 Jun 2014 7:25:29 PM PDT
I have 3 bottles of the re-introduced version of All Fruit that doesn't have maltodextrin! Yippee.

 
Joel

said this on
17 Jun 2014 7:19:56 PM PDT
Has anyone else noticed that Polaner has begun selling a fruit-sweetened version again. No maltodextrin!

 
Charlie G.

said this on
05 Jul 2014 7:29:15 AM PDT
Yes, I have and have been buying it again. This morning I noticed that all the "fiber" ones are gone and the all fruit is back. I e-mailed the company when this first happened and I got a cold response. If I need fiber, I'll drink Prune juice.

 
Herta Fischer

said this on
19 Jul 2014 12:48:53 PM PDT
However, the sugar content went up - for instance, the sugar content for raspberry and blackberry went from 6g to 8g - blueberry sugar content also increased. Why doesn't B&G go back to the original formula and quit fiddling with something that was perfect.

 
Irene

said this on
01 Aug 2014 7:28:19 PM PDT
We got quite a surprise this morning when preparing some toast for breakfast. We found a six inch long, 1.5 inch wide and flat piece of an unknown object in our jar of Polaner All Fruit and Fiber (cherry). It looks leathery and it is slimy. I'd upload a photo but this site wouldn't let me do so. I sent a message to Polaner but haven't heard from them yet.




Leave a reply:
Your Name *: Email (private) *:




In Celiac.com's Forum Now:

All Activity
Celiac.com Celiac Disease & Gluten-Free Diet Forum - All Activity

Hi! I've just been recently diagnosed as Celiac through the whole biopsy-shebang, and I have a little bit of insight on the whole diagnosis thing and how I was eventually diagnosed, and my advice for you. Brace yourself, this might be a bit long, but it might be worth the read and I promise I will eventually get to the point. If you don't want the huge story, skip to the long line of capital As: I first saw my doctor when I had a few problems swallowing. I've compared it to when you're nervous and you feel like you have a lump in your throat - but after I eat and (sometimes) drink. I just mentioned briefly it to my family doctor when I was addressing another issue, but right away he referred me to a gastroenterologist and ordered a barium swallow x-ray test. The x-ray came back completely normal, and so the g.e. then suspected GERD, put me on acid blockers to see if they would work, no harm done sort of thing. The only thing I got out of the acid blockers were the side effects, so it was back to square 1. The g.e. said that the next test he could do was an upper endoscopy with biopsies. (hint: the celiac test!) Wanting to find a solution to my problems, the endoscopy was scheduled. Pretty painless, I was in and out in a day, but the results took much much longer. Biopsies, or the little pieces of my esophagus, stomach, and small intestine, were sent to the lab, and they came back clean. I didn't really go back to the g.e. for a whole year after that because life became busy, I wasn't prompted to follow up, and I just dismissed the swallowing problems the best I could and went on my way. Now, I've never been huge on the gluten, big bread-y sandwiches or croissants or pies were never foods that I super "enjoyed". I wouldn't feel bad after eating them, I just didn't like the taste of bread so much, but I loved cookies, cake and a lot of other things that do have gluten in them. I lead a lowish gluten life but I wasn't really monitoring it that way. Everything changed when I got really nasty (systemic) poison ivy. My eyes were swollen shut, and the rash was everywhere. I almost went to the hospital, but cooped out at the family doctor's place and got a script for prednisone (a steroid). But, I found that after I had tapered off the steroids, I had magically become lactose intolerant. So back to the family doctor again probably because I broke my toe or something, but we also got to talk about this magical lactose intolerance business (because I love anything dairy and it was indeed devastating). He was surprised as there is literally no correlation between steroids and becoming lactose intolerant. He asked me if I still had the swallowing problems, which I did, and so it was back to the g.e. for round 3. because my family doctor "does not believe in coincidences". Meeting with the G.E., he mainly addressed the swallowing problems telling me that he had done what he could to diagnose with the technology that we had at the highly specialized hospital that we were at, and I would have to travel about 3 hours away to see a different doctor who would do some tests involving the muscles in the esophagus. But right before I was about to leave, we started talking about lactose intolerance. He brought up other foods that I was avoiding (if any), and then the conversation went to gluten. I mentioned that I had an aunt that was gluten-sensitive. He advised that I do the blood test that can show an indication of celiac whenever in the future. I decided to do it that day. At this point in time, I was not eating much gluten because of the fact that it was personal preference. The normal range for values in this test is from 0 to 20. A few weeks later, I learned that I scored a 35. A second upper endoscopy with biopsies was scheduled, but this time I was told to eat a moderate amount of gluten everyday before the procedure. I ate about two slices of bread per day, which is more than I normally would. I was normal for the first two-three weeks of the gluten plus diet, but then I became really sick. I started getting the normal celiac symptoms, like diarrhea and extreme tiredness. Near the end, I had debilitating stomach pain and I was 2 times more asleep than awake each day. I couldn't do the 2 pieces of bread a day some days, but the pain was still there. I knew that I wouldn't ever have to force myself to eat bread for a test ever again. I was called a few days before my endoscopy telling me that a kid in a worse state than me had to take the OR during my time. I forced myself to eat more bread for another month and a half. The day finally came. I was diagnosed celiac, which I have concluded to be initiated by (1) the steroids/poison ivy and (2) the gluten binge fest. AAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAAA Celiac Disease isn't completely understood yet. Most of the time if you weren't showing symptoms when you were a baby (so your case) it means that celiac was/could be triggered by an event in your life that causes stress on the body (like stress, physical injury, etc.). The positive result that you got from the blood test doesn't automatically mean celiac, but it could. Here's some options: Talk to your doctor (or a different doctor) or even a specialist gastroenterologist (you can get a referral from a family doctor (general physician)) and see if you can do the blood test again, you have to have some kind of gluten for this to work in advance, so if you don't want to break your gluten-free streak, than don't really invest in this option. If you feel comfortable, you could even ask to do this test under a few scenarios (no gluten (now) and after a gluten binge, compare results). If you do this test and your indication is low off gluten and then high after gluten, I'd probably skip the biopsy. That's a strong enough sign that you don't need to put yourself through the painful-gluten binge. Maybe this is what that first doctor just assumed. But having that test when you haven't had any gluten could make the difference - it acts as a control. Go straight to the biopsy. You could do this, but I'd probably do the blood test first. I went through a lot of stress with the gluten-binge that you have to do to get an accurate result, you would also be breaking your gluten-free diet that may/may not be helping you right now. Do nothing, stay on your gluten free diet hoping that it is helping you. But if you are not celiac or gluten-sensitive (celiac before it starts to wreck your small intestine), going gluten free isn't healthy - you can do some research on this if it interests you. If you feel bad/unhealthy after going gluten free it's probably a sign. Good luck, also know that you might come to a point of stress in your life that can start celiac's destructive path. Ultimately, it is your body, and you should not feel forced or hesitate to act on health issues that impact you.

I'm sorry that life is so hard right now. Really. I can't imagine working 3 jobs and trying to manage this terrible illness. I think about American society and their obsession with food often. Whenever you look at the internet, there are all these fabulous gluten-free recipes, but when you don't have time or money to cook these things, a simple gluten-free lifestyle is just that - simple. There isn't a lot of variety, so it's kind of boring. But, I guess I have gotten used to being boring. I just eat corn chex and fruit or yogurt for breakfast. I eat a lot of eggs, beans, rice, corn tortillas, nuts, chicken, fruit and veggies. A loaf of gluten-free bread will last me 4-6 months in the freezer. I buy a bag of dried beans for $1.29, I soak them overnight, and put them in the crockpot the next day. I add different spices, sometimes chicken and Voila! - dinner is ready when I get home from a long day. Family gatherings are miserable and I haven't quite figured out the best way to deal yet. If my grandmother were still alive, I imagine she would be a lot like yours - well-meaning but not really able to understand the nitty-gritty. I just reassure my family that I am fine and that they really shouldn't do anything special for me. I bring a bag of Hershey's kisses or other gluten-free candy I can nibble on along with my meal and then I try to treat myself to a nicer home cooked meal later in the week when I have time to cook - because who has time to cook during Christmas???? And, I agree with knitty knitty. If someone else in your family/friends were gluten-free for medical reasons, it would make socializing a bit easier. One of my husband's good friends is NCGS. When we get together as a group, we can make each other special dishes and it helps to feel less isolated. Good luck!

Hi! Um, please forgive my quirky sense of humor..... Celiac Disease is genetic... All first degree relatives of people diagnosed with Celiac Disease should be tested for the disease, too. Gall bladder problems are often associated with Celiac Disease. Your diagnosis might save your whole family from further medical problems as they age and the disease progresses... You need to set a good example if relatives are similarly diagnosed.... and then everybody will have to eat gluten free at family gatherings....

That's what I thought! My father has gluten sensitivity and I almost regret telling the doctor that because I feel that made her jump to conclusions because of that. He never had the biopsy either. I feel like doctors think it's just easier to say it's celiac when they show a gluten sensitivity to avoid additional testing, even if that diagnosis doesn't make any sense at all. My doctor didn't even offer the biopsy, and said the blood work was enough. Should I seek a third opinion? I mean, I've been gluten free for 9 months...

It will prolong your life....celiac is a autoimmune disease that causes your own immune system to attack you. The longer your eating gluten the worse it gets, I mean all kinds of other autoimmune disease, food allergies, food intolances. One day you could lose the ablity to eat carbs, or sugars, or become randomly allergic to tomatoes or corn all cause you decided not to be on road to healing I am not kidding here. I am allergic to corn, can not process meats, have another autoimmune disease that makes it so I can not eat dairy or CARBS/SUGARS. I wish I could go back in time and go on a gluten-free diet a decade ago. Worse that could happen you could develop cancer or other complications and yes we have had this happen to a member before on our forums. Think of it like this your just changing brand here I will give you some links to some gluten-free foods, and how to order them, You can even order alot of them online this should help simplify it for you. I suggest thrive, amazon, or one of hte other links from there, Many you can order from the manufacture. https://www.celiac.com/gluten-free/topic/117090-gluten-free-food-alternatives-list/