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Gluten-Free School Lunch Program Expiring - Tell Congress ACT NOW!

No more delays.  America's children deserve healthier lunches and students with celiac disease need access to gluten-free meals. 

Tell Congress to pass S. 3307, the Healthy,

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1 Response:

 
C. M. Kelly

said this on
02 Oct 2010 2:42:33 PM PDT
I have full blown celiac and fibromyalsia as well as DDD because no one cared to feed me good wholesome food. I suffer night and day with extreme pain and no help. I found this out by intensive studies and then confirmed by Doc. I believe most of you fat cats have it too. I pray you suffer from the same is you choose not to do whats right for our children of this decade. May it be so.




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Took me less than a minute, although why did they need our addy and phone?

As mentioned before you said she had rashes, have they checked if that is DH? That is a positive sign of celiac and those with the DH manifestation can have problems getting a postive with the gut biopsy. Here are some links. https://celiac.org/celiac-disease/understanding-celiac-disease-2/dermatitis-herpetiformis/ https://www.gluten.org/resources/getting-started/dermatitus-herpetiformis/ Please read up on this. She can get the rash tested for the disease if it is DH.

Thanks for your reply. I will get her retested. She hasn't had any gluten for a year and is very good at not eating it, but had some cake that night. It's so hard because the Dr who did the biopsy said there wasn't any damage so she can't be classed as Coeliacs. She had ten samples taken, but yes, like you say the intestines are huge.

Thank you for your informative reply. Yes I think you are right in that she is still getting dome cross contamination exposure through chopping boards, condiments etc. I will get her bloods redone to see if her levels have dropped and do a gluten challenge again. We all are on a whole foods diet, buy not all Gluten-Free. I find extended family difficult as because she had a negative biopsy they don't believe she could still possibly have it and aren't so careful with her. Thank you for the links, all very helpful.

Why do you make it so freaking hard to sign up? It's easier to find a replacement for rye bread!