263 Tell the FDA to Publish the Gluten-free Labeling Rules NOW! - Celiac.com
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Tell the FDA to Publish the Gluten-free Labeling Rules NOW!

This just in from Jennifer Iscol of the North Bay Celiacs:

Hello to all in the national celiac and gluten-free community, I eat gluten-free and I VOTE!

The Food and Drug Administration is over two years late publishing the gluten-free labeling rules mandated by Congress in the Food Allergen Labeling and Consumer Protection of 2004 (FALCPA). The rules were due by August 2008. Congress needs to press the FDA to act, and the FDA needs to get the job done.

We are tired of wondering if the food we buy is safe and tired of waiting quietly for the FDA to get around to doing its job. The FDA has had over SIX YEARS to study this issue. Enough!

The American Celiac Disease Alliance is urging everyone to act now. It takes just a couple of minutes to use their website to automatically send emails to the Food and Drug Administration and Health and Human Services (both run by women!), and your Senators and Representative in Congress.

Beth Hillson,
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President of the American Celiac Disease Alliance, writes, "Let's show our strength by shouting out how important this is to us.  Tell the FDA to finish the GF Labeling regulations. Tell them that people with celiac disease require safe, gluten-free foods.  Tell them to finish the FALCPA Labeling Rules NOW."

Go to http://www.capwiz.com/celiac/home/ to send emails or letters today. You can use their letters or write your own.

Forward and post this link on every celiac and gluten-free blog, list and group. FDA, GET THE JOB DONE!

I would like to thank the American Celiac Disease Alliance (http://americanceliac.org/) for organizing this effort and providing this service for free, and encourage everyone to support ACDA with a donation.

As always, Celiac.com welcomes your comments (see below).


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3 Responses:

 
Lisa Frederick

said this on
24 Jan 2011 2:25:12 PM PDT
As a Canadian with the same problem essentially, what can I do? I already emailed some big wig with the FDA what else can I do? Thanks

 
Hank Harwell

said this on
07 Feb 2011 4:18:52 PM PDT
Kroger (supermarket chain) has invented *its own gluten free label,* which is extremely dissembling [pick your term]. For instance on the front of its "33% less sodium" Chicken Broth is its label stating "a Gluten Free Food," saying underneath, "This food has never contained gluten." Turn the container to read Nutrition Facts and you will see the disclaimer, "MAY CONTAIN: Milk, Wheat, Soy." To which I must say 'WTF,' because the label on front also says "Lactose Free."

I rest my case. A call to customer service indicated that this is their own designer label -- but they can't control what else has been produced [fabricated] in the plant where this was produced. Very disconcerting -- typical mega producer cop out. How is the consumer to know whether or not to 'trust' the processor or the product?

 
Deanne

said this on
20 Feb 2011 1:40:43 PM PDT
This is too important of a health concern for many people now that the labels must be specific about declaring wheat and other sources of gluten. Gluten free must mean just that! No other ingredients in small amounts that may /have gluten and no cross-contamination with other sources of gluten. Thank you




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Thank you so much. 8-12 weeks! Oh my goodness, I don't think I can do that. I think going gluten-free made my body's defenses go down or something. I felt bad before, but reintroducing it was completely awful! I still feel queezy a few days later. Let's pray it just comes back positive. lol

Thanks for the feedback! Gemini you're very right - surgery was a totally weird recommendation. My current doctor treated me without hormones because my TSH levels are normal. The doctor found that my Vitamin D levels were severely low and put me on a high dose. They climbed just out of the deficient range. I am very active and frequently outdoors, and they still only climb out of deficient If i'm on intensive VIitamin D supplementation. - In addition, She also suggested I a modified lower carb diet (I'm at a healthy weight, there was no reduction in calories, just an increase in protein and fat and a reduction in carbs, a low reduction, slightly above the recommendations for a diabetic), which the doctor recommended for PCOS. Both of these coincided correlated with a slight reduction in the anti-thyroid antibodies and a slight reduction in nodule size. My TSH levels have remained stable, so it was incorrect to say function, really just a reduction in the level of attack (but the thyroid levels are still high). The doctor that recommended surgery did so because "you're about to start college and you won't have time for monitoring, it will eventually fail. If we remove it now, you can just go on Synthroid and you'll never have to deal with the levels being out of whack." Yeah.... I was 18 then.... I'm now 27, but my Mom just went "NOPE!" and got a second opinion. This person was fine, but all he did was monitor to make sure the TSH levels stayed ok. They did, I just have a goiter and several nodules. The most recent endo. I've seen, who put me on intensive Vitamin D therapy and worked with me on the diet, felt like she was thorough (again minus completely dismissing the first celiac results. I think the D supplementation and diet were associated with a decrease (but obviously didn't and really couldn't reverse the outcome of the disease) in antibodies and nodule size because my TSH levels have yet to get out of whack. I also wonder if with fewer carbs, I ate less (thought still too much If I'm celiac) gluten, and that could have been more a factor in the correlation. Gemini- I'm glad that you have found a good treatment that keeps your levels where they need to be! I also really appreciate the welcome. Update: I have a referral to a GI specialist! I don't want to have Celiac... I love to travel, and I'm very social. I live in the US but my family is from Uruguay, South America, so I carry this Latin Cultural thing about loving to share food and seeing it as such a huge part of hospitality and community. I know that food in social settings gets hard to navigate...But I feel a sense of relief to think that I might have an answer to other health questions and that there is a way that I can stop or at least slow damage.

These can be sourced from various ingredients one being wheat. Please check with the manufacture of your products to figure out if they contain gluten or how they are made....and yes gluten in your makeup, and especially lotion, shower gel, etc is a huge issues. Consider this, gluten contamination can happen from gluten protein residue. How often would you touch your arms, hair, etc or use your hands and touch your food, plate, fork, spoon before putting it in your mouth? Do you bite your nails, sometimes pick up a mint or gum? Hate to say it this way but if you use gluten containing stuff like that shit will happen with cross contamination. Consider changing over to a dedicated gluten-free version of hygiene products and save your self the drama. I use EO products, The Seaweed Co, Savvy Naturals, Hugo Naturals, and Vaseline products products without issues personally.

I had an enlarged thyroid, but no nodules. Dr felt it and ultrasound confirmed. I had so many symptoms of hypothyroid- weight gain, fatigue, hoarse voice-couldn't yell or sing or swallow (still can't swallow, but mostly at the bottom end. Used to not be able to get it past my neck, either) brain fog so that I couldn't form a complete sentence or respond with any timeliness, cold all the time, etc. Dr was in his 70's and old school. He didn't do any further blood tests or anything. Just said to take iodine. So, I started taking iodine. By the next year, different dr, all my thyroid tests came back normal, it wasn't enlarged anymore and most of my symptoms were very much improved. Read "Iodine: Why you need it and can't live without it" Kinda boring and repetitive, but good info. Iodine Crisis by Lynne Farrow is also really good. (She talks more about breast cancer than thyroid. But, the iodine information & history is great.) https://www.amazon.com/Iodine-Need-Cant-Live-Without/dp/0966088239/ref=sr_1_1?ie=UTF8&qid=1493386200&sr=8-1&keywords=dr+brownstein+iodine+book

Ok can anyone please shed light on this subject! I been reading conflicting information. Do I really need to be concerned about products that contain these two ingredients in them like my face products and my body lotions and shower gels? If I'm not ingesting them can they really hurt me? Only been diagnosed for three weeks with celiac and I'm trying so hard to follow the guidelines but this seems to be a gray area. I also check on the list of unsafe ingredients and I don't see them listed there so whats the scoop? Safe or unsafe please help!!!!