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Needing a "Heads Up" on Headaches

I am now collecting information, research, articles, professional papers, and especially, patient stories, for a new project. Many people with food sensitivities and with celiac disease suffer from headaches, or have family members who do. I would love to hear from anyone with an interesting headache "case history" they're be willing to share confidentially, and from any practitioners who have learned something valuable from treating patients for headaches. What do think it's most important for the public to know about prevention, diagnosis, and
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treatment of headaches? Do you have any books, articles, professional papers, neurology conferences, or research facilities you'd recommend?

Help me spread the word that there is help for chronic headaches.

Please contact me via email: bewell@wellbladder.com or choosehealth@glutenfreechoice.com

Thanks for your help with this exciting new project!

As always, Celiac.com welcomes your comments (see below).


Spread The Word







2 Responses:

 
Jane Clarke

said this on
21 Mar 2012 4:27:42 AM PST
Hello Wendy
Are you finding more and more celiacs are becoming intolerant to xanthan gum? I am doing a little research on the subject at the moment and would be interested in your views.
Many thanks.

 
Judy Crouch

said this on
24 Aug 2013 10:48:09 PM PST
Wendy,

Please Help!
I need information on intractable migraine headaches. My daughter has had one for over a year and it hasn't resolved with doctoring and medications. I read in your book, What Nurses Know: Headaches that you mentioned having one for 2 years and would like to know how you got rid of yours? Any info on how to get rid of intractable headache is so appreciated! I so want to help my daughter!!




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Hi, DH (dermatitis herpetiformis) is an itchy rash caused by celiac disease.You should keep eating gluten until all celiac testing is completed. Usually testing is a blood antibodies test first, followed by an endoscopy later.

If you only stopped 2 days ago no problem. Try and get a test arranged. if that can't happen, trial the diet and keep a journal tracking any response. I found that really helpful as some changes are subtle and gradual.

I don't see that stopping gluten would cause a rash for anyone. You might want to look at this site http://www.cureceliacdisease.org/

ok so eating gluten tonight wouldnt really have an effect then but i wouldnt likely still have them in my system after just 2 days of gluten free anyway. Basically the sooner the better I have the test really to have best chances. On a seperate note - i have just seen that I have developed a...

I feel the same. Every so often, someone will roll their eyes. I try not to discuss it unless I have to, only because I don't love having the topic of conversation become me, but others seem genuinely curious. Every so often I have a pity party over not being able to just pick up a sandwich a...