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Needing a "Heads Up" on Headaches

I am now collecting information, research, articles, professional papers, and especially, patient stories, for a new project. Many people with food sensitivities and with celiac disease suffer from headaches, or have family members who do. I would love to hear from anyone with an interesting headache "case history" they're be willing to share confidentially, and from any practitioners who have learned something valuable from treating patients for headaches. What do think it's most important for the public to know about prevention, diagnosis, and
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treatment of headaches? Do you have any books, articles, professional papers, neurology conferences, or research facilities you'd recommend?

Help me spread the word that there is help for chronic headaches.

Please contact me via email: bewell@wellbladder.com or choosehealth@glutenfreechoice.com

Thanks for your help with this exciting new project!

As always, Celiac.com welcomes your comments (see below).


Spread The Word







2 Responses:

 
Jane Clarke

said this on
21 Mar 2012 4:27:42 AM PDT
Hello Wendy
Are you finding more and more celiacs are becoming intolerant to xanthan gum? I am doing a little research on the subject at the moment and would be interested in your views.
Many thanks.

 
Judy Crouch

said this on
24 Aug 2013 10:48:09 PM PDT
Wendy,

Please Help!
I need information on intractable migraine headaches. My daughter has had one for over a year and it hasn't resolved with doctoring and medications. I read in your book, What Nurses Know: Headaches that you mentioned having one for 2 years and would like to know how you got rid of yours? Any info on how to get rid of intractable headache is so appreciated! I so want to help my daughter!!




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Exactly what are your allergy symptoms? Were they IgG or IgE? Allergy testing as a whole is not super accurate -- especially the IgG. Were you on any H1 or H2 antihistamines for the last five days when you were tested? As far as celiac testing, four days without consuming gluten probably would not impact testing.

I've been seeing my dr for a few weeks now about my stomach issues. We've ruled out the gallbladder and h-pylori and today I had the celiac blood tests done. From the reading I've done the past two days, it seems to me that it's highly likely that I have it. I've had digestive issues for years, but they've gotten progressively worse over the past 6 months or so. Pain and nausea when eating, bloat, eternal constipation, dh rash, at it's worse, tight cramp-like pain in a fist under my sternum, radiating through my back and around my right side keeping me up at night. Also heartburn/reflux and trouble swallowing, etc. Anyway, about 2 months ago, I needed a change. I didn't go to the dr immediately because it seemed pointless. (I've mentioned stomach ache when eating to drs before and been blown off.) So, I started the Whole30 elimination diet (takes out soy, grains, dairy, peanuts, and leaves you basically eating meat & veggies). Figured it would show me what I needed to take out of my diet and hopefully feel better. It worked- I felt great! And it seems that grains and gluten are my biggest offenders. But, now I've been off gluten prior to celiac testing. It's been 7 weeks. After 4 weeks I tested steal cut oats, that I later found out were probably glutened. And then nothing until yesterday. Yesterday I had 2 pieces of bread and a muffin and today I had two pieces of bread and then the blood test. Is this going to be enough to show up on the tests? My dr said that it would probably show up, since I had some yesterday and today and was currently having symptoms. But, google seems to say that I should be glutened for 2 wks straight before testing. Has anyone tested positive after just a little gluten? If it's negative should I insist on doing it again after weeks back on gluten? I feel awful, but do want clear answers. Obviously, gluten's not going to be a part of my life any more either way.

So just to clarify had not consumed any gluten for about 4 days before testing. I was assured by my allergist that it wouldn't affect the test. But what was alarming was that she retested my food allergies (my most recent reaction was two weeks ago) and every food allergy I have came back negative. I don't understand how that is possible. These food allergies developed when I was 20 and I am almost 24 now.

Thanks! You too! I have learned from this experience to take charge of my own health. It's nice at least that we can try the gluten-free treatment without a firm diagnosis or a doctor confirming the disease. I've also felt some of the gluten withdrawal symptoms, and my stomach pain ebbs and flows, but I'm determined to stick with the gluten-free diet to see what a difference it makes. Gemini, thank you! This was really validating and useful for me to hear. I've felt so confused through this process and just want some answers. If the biopsy results do come back negative, I'm going to follow your advice and do the gluten-free diet with repeat blood testing after a while. If they come back positive, well, then I'll have my answer. I'm supposed to get them back next week.

I have celiac and eosinaphalic esophagitis. I was put on a steroid inhaler recently. I use it like an inhaler but swallow the air instead of breathing it in. You may want to look into EOE and it's relationship to celiac. Just a thought. My swallowing and celiac seem to be related.