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National Celiac Disease Awareness Month

May is recognized as the National Celiac Disease Awareness Month - Horray for May!!   For a disease that affects about 1 in133 Americans that are commonly misdiagnosed, it only makes sense to have national awareness day.  I have been diagnosed for about 10 years now and I have been so thrilled with how much the awareness of celiac disease has grown and how manufacturers, restaurants and schools are becoming aware of the need for a gluten free diet.  I used to dread going out to social events or dining
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out because I didn't want to appear that I was being disrespectful, high maintenance, but most importantly I didn't want to risk getting sick.  Thankfully, in the past couple of years, I have found a number of gluten free restaurants that make for a quick meal or for a nice date night out.  I am very grateful for everyone who did their part to help raise awareness of this disease as well as the need for a gluten free diet, for whatever the reason.  Let's continue to do our part to make life easier for those in need of a gluten free diet.

As always, Celiac.com welcomes your comments (see below).


Spread The Word







2 Responses:

 
Herb

said this on
12 May 2011 1:24:02 PM PDT
Hello, I never knew how hard it was to help people that need to have gluten free products to eat! Love your blog lots of great information!

 
Julia

said this on
02 Nov 2011 2:38:24 PM PDT
I like your blogs.




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Hi! My daughter is 19 was diagnosed at age 16. It took about 12-18 month s for her to fully heal from the damage and feel "normal" again. Also because of the damage done she had reactions to dairy, so you may want to try no or minimum dairy until youre fully healed. Just a suggestion. Hope you start feeling well soon!

Hi yall! New to this blog, but really glad it exists because I have lots of questions. First off, I'm Allie! I'm 17 and newly diagnosed Celiac after about 3 years of searching for answers. I initially went gluten-free on the recommendation of a friend, I felt better in about a month and then my pediatric gastroenterologist had me do the gluten challenge, and my symptoms were the worst they have ever been, and ones I barely noticed before became very present. I did the biopsy and was diagnosed, it's been about 2 weeks and my symptoms are still pretty bad, although my diet has no known sources of gluten or cross contamination. Wondering if anyone has any input on healing post gluten challenge, any tips or how long it took for you would be quite helpful! Thanks

Might want to look into a keto diet, I have UC on top of celiacs and keto is working great Yeah I have major nerve and brain issues with gluten, gluten ataxia with nerve issues and brain issues. Seems to cause my body to attack my brain and nerve system. My brain stumbles fogs, and starts looping, the confusion causes me to become really irritable, I call it going Mr Hyde. Like my mind will start looping constantly on thoughts and not move driving me literally mad, or it used to. Now days it is primary the numbness anger but the gut issues and sometimes random motor loss limit me motionless to the floor now days for the duration of the major anger effects. Used to be a lot more mental then painful gut. I did a mental trauma post on it on while back where I came out about all my mental issues with gluten.

^^^^^^ good info, tips and tricks^^^^^^^^^ yes, crumbs will make you sick. also, breathing flour/pancake mix, etc that is in the air because eventually, you're going to swallow some.

Hello I was diagnosed Dec 15 of last year and went totally gluten-free the next day. I actually got worse before I got better - it's a steep learning curve - but now, 4 1/2 months later I'm finally seeing improvement. Hang in there.