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Positivity

Being positive in a negative situation is difficult. It's hard to find the glass half full, the silver lining, or the clown that isn't scary! However, it is necessary when dealing with gluten allergies.

We all have those days where we feel down and wonder "why me?", but we can't let those days beat us down.  In order to be healthy all we have to do is not eat foods with gluten. Too simple? Maybe, because it IS hard to do. Especially when we are accidently glutened.

We can however pull ourselves out of the why me funk, and realize that it could be worse. Here are some examples how:
  1. We could have horrific chainsaw accidents that leave us with no arms, and we wouldn't be able to feed ourselves at all! (Gee Kelly, you're so graphic!) But, it's true! that would be awful.
  2. Badgers could sneak in and steal ALL of our food! (Badgers? really? YES badgers!, sneaky little buggers.)
  3. Paris Hilton could
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    come to your work tomorrow and sing to you all day! (How much would that hurt? That would be painful! Imagine if when she finally left the song she was singing got stuck in your head all night! {shudder})
  4. You start to believe your family pets are plotting your demise. (Ok, this isn't a good one because I really do think my cat is trying to kill me, but that's another story)
  5. Your best friend could start a new hobby where she/he sits in front of you slowly eating cupcakes and giggling maniacally. (she/he wouldn't be your best friend for long I tell you that!)
The moral of the story is to just be happy. Life is too short for negativity, and if those around you are negative set them straight or move along. None of us need negative influences in our lives, our lives are hard enough. Find the funny in everyday life. Seek out happiness. Enjoy the sunshine, sniff the flowers, they at least are gluten free! Yes, I know you are allergic to flowers too! Well suck it up little glutenators! Take a Zyrtec, and keep on keepin' on!

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Your daughter could have non celiac gluten sensitivity. That would correspond to negative celiac tests coupled with positive reaction to the gluten free diet. Whilst there are similarities to celiac presentation it appears that neuro symptoms are more common in ncgs patients. That seems to be the case for me anyway! The condition is as yet poorly understood but there is progress being made, check out a topic I just started on the pre diagnosis thread with some info and links. The remarks by umberto Volta in particular are just about the best summation I've yet seen on where the research is at. I will post a link later.

The gi may be able to see some signs of celiac visually but the chances are you will have to wait a couple of weeks for the biopsies before there's any confirmation. The damage to the villi is too small to detect with naked eye I think. as long as your eating some gluten each day you will have done all you can for a diagnosis. Not long now so go ahead and treat yourself to a nice cheesecake, fish and chips etc.

check out CoQ10, not related to celiac (as far as I know) but for balance issues.

remind your hubby, "if mama ain't happy, ain't nobody gonna be happy."

Thank you for all your help with this. I was also wondering if I could ask and hope you don't mind, will they be able to tell Celiac on the camera or will it be down to the biopsies they take? My endoscopy is on the 9th, and I am worried about not having enough gluten to show.