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Highlights of 2 months GF life

Almost 2 months of GF and here are some highlights.  I’m finding it hard to tell if being GF is helping.  I had a sinus infection when I began my GF diet, and now have had one for almost 3 weeks (thought it was a migraine for the first week).  I believe my body is reacting to the nasty antibiotics and my mind is more focused on fighting off the discomfort than appreciating any benefits GF might be providing.  Unfortunately, I can’t separate the discomfort from fibromyalgia, sinuses/migraines, and reactions to medicine to pin point the culprit of my pain.  I move forward believing that GF is not hurting me, so it is worth continuing.

I have my fiancé’s support and have been educating him.  He was so excited when last week he found a whole section of GF products in a local grocery store.  He had ventured out on his own to purchase some GF pasta to make for our dinner.  Needless to say, he came home with several bags full of items that we both have tried and enjoy, some better than others.  He even had me stop later and buy more of some of the snack items for HIM!

When I first started this, he had gone to the store to purchase items for dinner.  He called me to give me the lowdown on what all he’d bought.  Most items were perfect – GF soups, pasta, fresh meat, frozen vegetables.  But, there was one exception, he had bought frozen broccoli with cheese sauce.  He could not imagine cheese (dairy) and broccoli (vegetable) having gluten.  After I insisted several times that these were not GF, he finally read the label.  To his dismay, his bubble burst.  We would not be having broccoli in cheese sauce for dinner after all.  He now reads labels when making food purchases at the store. 

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I’m finding that when I don’t have my meals planned or when I’m in a hurry and don’t have time to stop home, I still head for fast food restaurants.  I know what few items I can have at the various places and try my best to stick to that list.  I take food with me to work to avoid having to scavenger hunt for something to purchase. 

When the option is to eat at a sit-down restaurant, I am pleased to find that many chain restaurants (Olive Garden, Chili’s, steakhouses, just to name a few I’ve tried) have GF menus.  I ask for a GF menu when we are being seated and explain to the waiter/waitress immediately upon ordering that I am allergic to wheat and to please inform the chef.  I use the term chef, never cook, as I don’t want to insult the person preparing my food.  Sometimes, the message is not always conveyed to all preparers of my food.  I have had salads show up with croutons (after specifically requesting no croutons), bread placed in front of me while we wait for our meal (but my fiancé gets to enjoy that), and fries at a restaurant that stated on their GF menu to exclude them.  I had a manager bring out a new burger (both times without the bun as requested) without the fries for me and apologize profusely over the mishap and the time it took to cook the fresh burger.  I was grateful that they didn’t just remove the fries and bring the same burger and plate back to me.

Although I get tired of saying “I can’t eat that”, I’m adapting.  What I wasn’t initially prepared for was the “it’s only a little bit of…” (bread crumbs, or whatever).  I now turn the tables back on the person who says it by asking, “if someone had a peanut allergy, would you tell them to eat just one little peanut?”  It took me awhile to come up with something that a typical person could understand.  I’ve also run into someone offering me organic bread thinking that it’s so healthy it hasn’t to be okay for me to eat.

So, the learning continues and so does the eating. ..GF eating that is.

As always, Celiac.com welcomes your comments (see below).


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2 Responses:

 
Anne

said this on
11 Oct 2011 7:30:34 AM PDT
Did your doctor tell you to take probiotics along with the antibiotics to restore your good gut bacteria?

Have you looked at the possibility that another food may be a problem? I learned very early in my GF journey that yeast products gave me symptoms similar to those I got from gluten. Some foods that commonly cause problems are eggs, dairy, corn, soy, oats, yeast - but any food can be a problem.

I hope you see improvement in your health.

 
nancy

said this on
06 Feb 2012 2:17:51 PM PDT
Hi Pat - Been through most of what you're talking about - my favorite fast-food go-to place is In-and-Out Burger - protein style / raw onions let's me feel fairly normal.... my favorite interaction w/ servers, etc., happened early on - I asked if there was wheat flour in something and the server came back, all excited, to tell me "we don't use wheat flour, we use all purpose flour" - where's Home Economics class when you need one .... no, I didn't ask her what the "all purpose" plant looked like, I just ordered a salad ... said 'thanks', laughed (to myself), grumped, and moved on ...




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Call your doctor's office and ask them to relay your request to the doctor to amend the test request, they should be able to sort it without an additional meeting and delay. Worth a try anyway I think the Biocard tests TTG IGA and it may give you an indication. Do post your results here as I'm sure others will be interested in its effectiveness. If it's negative however remember that there are several celiac tests for a reason. Some test on one, some on another etc... However my guess is your doctor will dismiss them and want their own testing. That's the usual experience.

Waiting for the EMA, I bet. Keep advocating! this is interesting. If celiac disease is excluded, she might still have a gluten sensitivity. There just is not specific test for that. http://theglutensummittranscripts.s3.amazonaws.com/Dr_Umberto_Volta.pdf

I think all the flavors are all gluten free. I buy them at my local grocery store which is a Kroger store. Amazon has them too. Jenny at "The Patient Celiac" uses them too (she is a preemie doctor who has celiac disease).

Thanks Frieze, I'm planning on filing a complaint in the next few days.

Cyclinglady, where do you get the nuun tablets? Does it matter the flavor is the brand gluten free for all?