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Laundry List - "Hold the Starch"

It's been eight years since I have had Arrowroot, buckwheat, corn/maize, potato flour, rice, rice bran, rice flour, sago, tapioca, soy, soy bran, or soy flour.

All are gluten free!  Yet, all are prohibited on the diet I have been following for celiac disease management, since December 2000, the Specific Carbohydrate Diet.

Why? Because they may be gluten- free but they contain starch.

Digestion of starch is effected by hydrolyzing enzymes in a complex process which depends on many factors; these include the botanical origin of starch, whether the starch is amorphous or crystalline, the source of enzymes, substrate and enzyme concentration, temperature and time, as well as the presence of other substances in the multicomponent matrix in which starch occurs naturally.

In 1951, Dr. Sydney Valentine Haas, and his son, Dr Merrill P Haas, published The Management of Celiac Disease. It remains one if the most comprehensive medical texts ever written on celiac disease

Less than a year following  launch of the book, a lone report was published in the English medical journal Lancet.  After testing only ten children, a group consisting of six faculty members of the Departments of Pharmacology, Pediatrics and Child Health at the University of Birmingham, concluded it was not the starch (carbohydrate) in the grains that so many had reported as being deleterious, but the protein gluten in wheat and rye flour that was causing celiac symptoms.

Based on this limited study, they contradicted all previous work by stating that there was no need to restrict carbohydrates. This opened the floodgates to a vast choice of food as long as wheat and rye gluten were absent.  They further advised that, "a high caloric diet may be given throughout with biscuits made from corn-flour, soy flour, or wheat starch instead of wheat flour."

Although, many patients showed remarkable clinical improvement  after following a "gluten-free" diet,  microscopic
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examination of tissues or liquids from the living body to determine the existence or cause of a disease.'); return false">biopsy samples unearthed intestinal cells that were still definitely abnormal. There were some patients who started eating gluten with no ill effects at one time but became extremely ill at other times.

Further observation revealed how Celiac patients  could be inconsistent in their response to a gluten-free diet; the same patient could vary from time to time. Following a relapse, the patient was most often suspected of having inadvertently consumed gluten. Indeed, many patients were unclear about what constitutes "gluten" and  assumed that anything  that begins with "glut" must be gluten. (glutamic acid, glutamine, monosodium glutamate, etc.) or that gluten had been hidden in the food in spite of the fact that it did not appear on the label  (2% of ingredients do not have to be included on labels under Federal law).

It was seen that grains which contained proteins other than gluten were having deleterious effects on the digestive tract. Selected patients suffered relapses and microscopic surveillance exhibited damaged intestinal cells following ingestion of soy products. Oats and barley were seen to contain gluten-like proteins which aggravated symptoms in many celiac sufferers. Rice and other grains were indicated in additional reports as being harmful to intestinal cells.

Anecdotal documentation among 3,000 parents subscribed to Pecanbread, the support list for the autism community using the Specific Carbohydrate Diet, indicate about 80% of list members transitioned from the gluten-free casein-free diet to the Specific Carbohydrate Diet. Many have done better as a result of the change.

There are other restrictions on the Specific Carbohydrate Diet that differ from what is permitted on the gluten-free casein-free diet. In addition to the products I listed at the start.  In looking down all the lists of what the latter permits, I found many items I never even used on the Standard American Diet prior to requiring any restrictions .

Although I never have tried the gluten-free casein-free diet, I found the Specific Carbohydrate Diet very workable because so few additives are allowed in permitted foods.

It took me some time to realize the differences between starch and gluten. Both are considered harmful by Specific Carbohydrate Diet advocates ------ which is why my nutritional laundry list specifies:

"Hold the starch please."

As always, Celiac.com welcomes your comments (see below).


Spread The Word







6 Responses:

 
said this on
21 Jan 2008 10:00:02 AM PDT
Great information. I was so confused.

 
Elaine Hermle

said this on
27 Jan 2008 11:17:57 AM PDT
Very interesting article.

 
Kathleen Ayers

said this on
18 Jan 2009 12:17:18 PM PDT
This is interesting, as I have recently realized that I can't eat rice either. I'm wondering if there are any grains I can have. I will look into this specific carb diet. Thanks for the information!

 
Jenni

said this on
10 Sep 2011 6:55:24 PM PDT
Awesome article and of course now in the past year they have discovered 'cross reactive' where the body can read certain foods as gluten. Foods such as coffee, rice, corn, tapioca, casein and much more (and most of them are starches).

 
marni

said this on
19 Nov 2011 6:51:25 PM PDT
It makes sense but I'm new at this so for me it is hard enough just to learn to eat gluten free. I don't even know if I'm going to have to go casein-free too, so to give up the rice, tapioca, corn and coffee now would make me feel like there is nothing else left to eat.

 
Peggy Cyprowski

said this on
28 May 2012 9:03:01 AM PDT
Consider: guar gum, xanthan gum. There is a third: whey.
Avoid MSG, GMO-altered corn as well as grains. Coffee may be cross-contaminated.
Don't give up. Sugar is a deadly substance.




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you're lucky you dont catch colds. im the opposite i catch everything very easily and get alot sicker than whoever i caught it from and take much longer to get better.

Even one positive can be diagnostic. This is one: Gliadin deamidated peptide IgG 33.9. If unsure, a biopsy of the small intestine will provide definite confirmation. There is a control test to validate the other ones, but I don't see it there. What is does is validate the others by checking on the overall antibody levels. But it is to detect possible false negatives. A positive is a positive. I think your daughter has joined our club.

My daughter, almost 7 years old, recently had a lot of blood work done, her Dr is out of the office, but another Dr in the practice said everything looked normal. I'm waiting for her Dr to come back and see what she thinks. I'm concerned because there is one abnormal result and I can't find info to tell me if just that one test being abnormal means anything. The reason for the blood work is mainly because of her poor growth, though she does have some other symptoms. IgA 133 mg/dl Reference range 33-200 CRP <2.9 same as reference range Gliadin Deamidated Peptide IgA .4 Reference range <=14.9 Gliadin deamidated peptide IgG 33.9 Reference range <=14.9 TTG IgA .5 Reference range <=14.9 TTG IgG <.8 Reference range <=14.9

Just watch out. I just went to the expo in Schaumburg, IL, and ended up getting glutened. I realized afterward that I ate all these samples thinking they were gluten free, and they weren't. One company was advertising some sugar, and had made some cake, but then I realized.... How do I know if this contains any other ingredients that might have gluten? Did they make it with a blender or utensils that had gluten contamination? Makes me realize the only safe things would be packaged giveaways with gluten free labeling. My fault for not thinking things through. It was just too exciting thinking i could try it all and enjoy without worry.

No fasting required for a celiac blood test unless they were checking your blood glucose levels during the same blood draw.