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The Educational, Dietary and Social Experiences of College Students with Celiac Disease

Recruitment Notice!

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College students are invited to volunteer for a study conducted for research purposes and approved by the Pennsylvania State University. The purpose of the study is to determine what educational, dietary, and social experiences college students are having as a result of their celiac disease and what accommodations colleges and universities are making to meet the needs of these students. The study will also help to determine what recommendations college students have for schools so that higher education personnel might better meet the needs of individuals with celiac disease and gluten intolerance. Any college student (community college, four-year college or university) with celiac disease will be asked to participate in a 15-20 minute phone interview. By sharing their experiences college students may provide higher education personnel with information that will allow them to better serve the needs of students with celiac disease.

If you are interested in participating in this study, please contact Kay Chick, principal investigator and Professor of Curriculum and Instruction by email at kxc19@psu.edu. Informed consent forms will be mailed/emailed to you and a phone interview will be arranged at your convenience.

As always, Celiac.com welcomes your comments (see below).


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1 Response:

 
Jeff Kelly

said this on
05 Jun 2014 7:01:22 AM PDT
During my regular college years, my celiac was unrecognized, untreated, and unconfirmed by any such study, so it is therefore encouraging to see such a study being conducted somewhere. Given that President Kennedy suffered celiac, a similar study ought go forth at his Alma mater, ie, Harvard, as well--at the very least.




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Celiac.com Celiac Disease & Gluten-Free Diet Forum - All Activity

Thank you for taking the time for sharing that info. Don't we have the best disease ever! There's got to be a better way to cut down the scarring. Yes, I've scratched till it bleed. Can't help it. It's like having a bunch of mosquito bites. Yes, only gluten free now. Still have bursts, so probably am being exposed to gluten. Will need to stop dapsone soon. Good luck with your situation.

Best Foods or Hellman's on the East Oast is Gluten free. You can make your own too! Easy! http://www.foodnetwork.com/recipes/alton-brown/mayonnaise-recipe I buy any brand of sugar.

Are you sure you do not have fractures? I fractured two vertebrae two months after my celiac disease diagnosis DOING NOTHING!!!! Turns out I have osteoporosis from untreated celiac disease. ? Consider a bone scan.

Be sure to let us know how it goes! Help keep them in business by writing a review on Find Me Gluten Free! Enjoy! ?

I'm a naturalist -- I don't use drugs, creams, etc. I do, however, scratch** the rash until I'm almost bleeding and then dump isopropyl alcohol in it -- that relieves the itch for quite some time. (Stings at first though.) I get the rashes on my legs. ANYWAY, I have found that a gluten-free diet is the only (or best) approach -- it's certainly the most natural, in my opinion. It took six months before I felt I was cleansed of gluten. I went nine months (or more) without a rash. Then, I mistakenly ate some soup with barley in it. Got the rash. I let it run its course while getting back to & staying on a gluten-free diet. My best advice is just to stay on a gluten-free diet. Be strong, brave. You can do it! ** I should clarify that when my rashes start itching, I can't help but scratch (excessively). I am not suggesting scratching yourself (with or without cause) as a means to an end. Don't scratch if you can.