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Dr Rodney Ford's Blog

I have launched my "The Gluten Syndrome" on YouTube.
http://www.youtube.com/user/DrRodneyFord
I have got heaps of great feedback.  In 2 minutes you can hear my theory on how gluten causes its harm.  What do you think of this video?   Please “rate it” and make a “comment”, and also pass on the link to your friends.  The idea is to help the millions of gluten sufferers who are unaware of the problem.  Thanks. Cheers Rodney.

  = = = = = = = = = = = = =

Hi. This site, www.celiac.com,
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is an awesome collection of stuff about gluten problems and what you can do about it.  I am privileged to have contributed to this website.  The Scott-free Newsletter is also well worth reading, it is packed full of useful information.

I already write a regular "blog" that is posted on my own website.  My focus is on telling the world about gluten.  I am the person who has written the book "The Gluten Syndrome".  At least one in ten people (that is 10%) suffer from the bad affects of gluten.  Let's help them.  Cheers, Rodney Ford.

As always, Celiac.com welcomes your comments (see below).


Spread The Word







5 Responses:

 
Julie

said this on
06 Jan 2008 9:51:10 PM PDT
Hi again Dr. Ford,
In your opinion how is it that my one daughter has celiac and I do not get a positive Dx. I have been dx with IBS though. They also went down my throat and did not see any sprue. Blood work normal except for that IGG being 40. I have been so consumed with this and people think I am nuts. I have weird neuro things happen when I eat gluten. I am not going to eat it anymore because your previous email said not to. Do you know of any good doctors in Seattle area in regards to celiac. Should I go to a naturopath or a dietitian? My daughter is 100% gluten-free and I still have two more daughters to see if they have celiac or just have a sensitivity. Wouldn't myself or my husband have had to pass the DQ8 Gene on to our one daughter? I will buy your book too! Thanks. Julie McHenry

 
Caryn

said this on
03 Feb 2008 1:34:23 PM PDT
Thanks Dr. Ford! Again you have created something so simple and understandable for small children (and adults) to understand. My little boy watched both your videos and really enjoyed them. They are a wonderful tool for teaching those! around us the importance of being gluten free. I have embedded them on my blog as well (healthy-family.org) Well done!

 
said this on
18 Feb 2008 12:40:09 PM PDT
Hi Julie,
You can still be gluten intolerant and not have celiac disease. There are also known cases of celiac disease where the genes were not present. Trust your instinct and your own reactions when determining your reactions to a food or foods. If you would like more assistance I am located in Seattle at the IBS Treatment Center and would be happy to see you.

 
samantha

said this on
05 Nov 2010 8:10:22 PM PDT
this is good

 
david

said this on
12 Jan 2011 3:20:30 AM PDT
Thanks for this informative post. I'm a health conscious guy and this page is one of my resource.




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Love reading this story as it is rare (I think) to find someone else with the swallowing issues! Hate that this is your experience however! My daughter also has the swallowing issues and it got so severe (we had no idea about Celiac) that she had to do intensive therapy to learn how to swallow again. It got better but never resolved. Once she went gluten-free it got way better though a recent exposure to oats caused it to flare up again. Do you mind me asking - Has your swallowing issues 100% resolved being gluten-free? Does it ever actually go away and stay away or will it always pop up from time to time?

I will say what everyone else says and get tested again with the endoscope and biopsy to confirm, you will need to be on gluten for 12 weeks for blood test 2 weeks for endoscope at least a slice of bead a day. The thing about celiac is many symptoms can be quite minor, hell even before I had my MAJOR symptoms show I had some of the other issues show up in my every day life and I just thought it was normal. Regardless if you keep eating gluten with celiac disease it will slowly eat away at your body internally til it does become a problem. Celiac is a autoimmune disease that reacts to the gluten proteins, and has misdirected attacks on your own body internally by mistake trying to kill the gluten. Now the damage can lead to all kinds of other auto immune diseases, random allergies, food intolerance, and even cancer. I suggest if you do have it, stay on the gluten-free diet, your just basically changing brands there are many gluten-free food versions of everything now days. Be thankful you got this early, I developed issues with dairy, corn, peanuts, and a whole list of others along with another autoimmune disease Ulcerative Colitis that makes it so I can not eat sugars or carbs or my intestines swell. Getting on a gluten-free diet before your damage progresses will not only keep you healthier for longer, and let you live a pretty normal life but also save you from this pain and very limited diet if the damage progresses too much. As to your fatigue, you changed over to gluten-free diet, you stopped eating a bunch of the Fortified foods, and depending on the route you took of either whole foods ore more processed foods. You could be eating to many empty carbs, starches, and not enough nutrients. OR if you took the whole foods approach you be lacking in your daily calorie intake or not the right ratio of nutrients. You might have to supplement a few of them.

REALLY odd call out here, I am attending a anime convention called A-Fest in Dallas come August, I need someone to split the room with it who is gluten-free. I take extra precautions, I COOK all the food, bring only CERTIFIED foods into the room, The room will be Gluten Free, Corn Free, Dairy Free, Peanut Free. I am trying to find someone to split the room cost with, that would be safe to be around I CAN NOT AFFORD to get sick at one of these things, it is one of my few joys left in life and get very paranoid around them. So I need someone who is also gluten-free to make sure the room stays safe (YES I have done with with a non celiac with the rules down and well stuff happens so not chancing it). Room split is food coverage comes to $400 if it is just two people. 4 day convention, I will arrange a meal plan around your diet as long as it is free of my allergens. I will also provide various snacks, baked goods, and even stuff to take home with you. https://animefest.org/ ^Convention info.

Hi Jennifer, This thread might have some information that would help you. Your doctors are pretty lame IMHO. Perhaps you can find a celiac group in your area that has local meetings for support. They might also suggest a different doctor who knows how to treat celiac patients.

The initial reason gluten free diets came about was to treat a condition called celiac disease?an autoimmune disorder known to affect at least three ... View the full article