• Announcements

    • Scott Adams

      Frequently Asked Questions About Celiac Disease   04/24/2018

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What is Celiac Disease and the Gluten-Free Diet? What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
  • entries
  • comments
  • views

About this blog

My Menu Blog

Entries in this blog


3 Weeks Today

Today marks 3 weeks since going gluten free. Overall I feel a world better!!! At first, I was sleeping really good (like the first week and a half), but for the last week and a half or so, I've had horrible insomnia. Now, I am a chronic insomniac anyway, but I was rather enjoying that week and a half of restful sleep <_<


Not sure if it's a gluten thing or not, and hoping the constant waking up/not being able to sleep, doesn't continue on as regular of a basis as of late.


With that said, overall thumbs up. Feeling rather grateful!


Thanks, Doc

So I went to my follow up appointment with my doctor today, 2 weeks since going gluten free. After HE said to go gluten free and it will help a great deal. So I go in, all excited, that in 2 weeks time my health has improved drastically (I was also put on Savella for fibromyalgia, and taken off my other fibromyalgia medication.)


Anyway, I love my doctor, he's the only one who has ever listening to me - really listened - and he's overall good with a great bedside manner. Anyways, so I'm excited and he walks in and asks how it's going, I said since going off gluten things have improved a great deal, and he said "I don't necessarily like to call it a gluten free diet, rather a stay away from breads and pastas diet". Ummmmmm WTF?!?! :blink: :wacko: :huh: :o ^_^


This threw me off... First off, I had a positive bloodwork antibody test (inconclusive biopsy), and at our last appointment he was telling me that Celiac is one of the most underdiagnosed diseases out there, even with biopsy. Then he says what he said today?!?!


Ah well, just kinda made me angry at the time being. Still kinda bothering me. I think because he totally minimized the a- seriousness and b-progress i've made in such a short time and c - this huge lifestyle change.


So I am starting to think that several of the things I have beend diagnosed with, and/or are struggling with (including severe insomnia) are directly tied to gluten.


Just over a week in, my insomnia has gotten noticeably better. My fibromyalgia pain has gone from constant pain to, seriously, being decreased by over half (granted, I am also on a new fibro medication, but whatever it is is working, so I'm not going to question it!) I have noticed my focus has been slightly better, although it's not even been 2 weeks yet, so I haven't noticed a big change. I have, however, noticed a big change in my energy levels as well.


On the downside, I'm hungry all.the.time. Hoping that evens out!


On this early Saturday morning, I do feel as though I could shout from the roof tops. I feel sooooooo much better! Thank you to my amazing doctor, I feel as though a whole new world has opened up for me :)


Well, 7 days down... a whole week gluten free... and I'm feeling hopeful. Good sign, considering I really thought I'd be down in the dumps over this (thank you to this forum and the book 'Living Gluten Free for Dummies by Danna Korn for the push in the hopeful direction!)


We are making our very first grocery store trip this Friday, since my diagnosis. Surprisingly, I'm kind of excited.


I think the prospect of feeling better (which I am already starting to feel MUCH better) is contributing to my eagerness to really do this thing... it's a new lifestyle, a change (which I'm going through a lot of changes in my life at once) so I thought having this diagnosis and having to make such a significant change would be more of a challenge than it has been. Go figure!


Admittedly so, I have missed some of the foods I used to eat - the soft, doughy breads... but I'm gladly ok to give those up to feel better; and I'm looking forward to making more discoveries of what I CAN eat.


I am getting a sleep study done tonight. My Oncologist referred me for one. I have had chronic insomnia since I was 15 years old. I am now 34. My sleep is awkward, and I go through phases where I literally can't sleep at all (despite being on sleep medication prescribed by my psychiatrist), or I will sleep too much. I also have very little energy. My partner, who works in the medical field, believes I have sleep apnea. I'm interested to finally be having a sleep study done because this wacky sleep thing has got to go! With that said, kinda dreading it. I can hardly sleep when I'm comfortable, let alone hooked up to a million electrodes - lol. Ah well. We'll see how it goes, but it'll probably be a long night.


Here We Go!

Here it is, July 2014. I have been going through the run around since 2009 with possible celiac and/or gluten intolerance diagnosis. Over the years, I have not gotten a solid answer; and in the meantime other health issues had taken front seat to my possible gluten problems.


July 3, 2014: Diagnosis received.


So far so good with being gluten free. Today will be day #4.