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<rss version="2.0"><channel><title>Having a Bad Day at the Doctor's Office</title><link>https://www.celiac.com/blogs/blog/1254-having-a-bad-day-at-the-doctors-office/</link><description/><language>en</language><item><title>Our First Gluten-Free Picnic</title><link>https://www.celiac.com/blogs/entry/2312-our-first-gluten-free-picnic/</link><description><![CDATA[We had our first support group meeting.  It was a picnic. Abby was able to meet some children her age.  They grilled hamburgers and sausage.  There were about five vendors there to present their foods. We got some great samples, and recipes that each family brought with their food.  It was amazing to me how people connect having never met before. That common bond, just having someone that understands, or gets it.  <br/><br/>There are so many people that have never heard of celiac disease, or if they have heard of it, they do not understand how serious it is.  I want to go and tell moms everywhere, please pay attention to these symptoms.  I do not want another child to be sick for over two years and have to get really sick for the doctors to take it seriously, and then find out what is wrong.  We need support and we need to make people aware. I want to help form a support group with the Family Connection in Columbia SC. I am in the process now. If you know anyone that is looking for a support group please help them get in touch with me by posting a comment below, or call Family Connections in SC they will help you get connected.  <br/><br/>We had another successful cookout the next day even with some ungluten free food around.  My daughter looked at the dessert table and saw those oh so beautiful pink  icing sugar cookies. I said oh, honey you cannot eat anything over there. I brought your dessert. I expected to get a drama cry, but thankfully she said oh, ok, mommy and went off to play with her friends.  I count that as a success story for us. She may be starting to get it . I know there will be setbacks but we are ready for them.   My daughter has designed some really cute t-shirts. A little girl  with a cape.  logo says "Super Celiac Girl... fighting gluten everywhere", and then there is a boy says the same but Celiac boy.  There other one is a toaster and it says keep your crumbs out of my toaster.<br/> ]]></description><guid isPermaLink="false">2312</guid><pubDate>Mon, 19 Apr 2010 00:00:00 +0000</pubDate></item><item><title><![CDATA[Having a Bad Day at the Doctor&#039;s Office]]></title><link>https://www.celiac.com/blogs/entry/2309-having-a-bad-day-at-the-doctor039s-office/</link><description><![CDATA[Why do the nurses at the pediatrician's office have to be so rude?  I love our doctor but her nurse stinks. She is rude and unconcerned. She always makes me feel like I am an over reacting mom. I honestly can't stand her today.  I need to go and pray and it's a good thing we don't go in to see her until tomorrow, because I will have time to cool down. I just have had it with the run around with my daughter. It took over 2 years to get to where we are now, and you would think that they would jump through hoops and not make me jump through hoops to get something done. One of their doctors misdiagnosed her about a year ago, and she ended up in the hospital so sick with acute colitis. Stop acting as if this is not real or just a little allergy! That is what I want to say to her. She needs labs drawn to see what she is lacking. I know that she needs this so why do I have to come in there to let you look at her in order to get it done? She has not gained her weight back since last June when she was misdiagnosed, and now since we have her on this diet she has lost another 1/2  lb.--for a total of 4.5 lbs. She is so tiny she is 7 and weights 42.5 lbs.! That should speak for itself--are they scared to mess up again or do they want that doctor's visit fee? Ugggggh I am so upset today. I am having a feel bad day. It has hit me today that she has this for life, it's not going away, she won't out grow it like most food allergies. It's here and we need to fight it for life.  I have met a woman who's daughter was diagnosed at age 3 and she is 13, she is also a nurse, so she has helped me a lot in what to ask for at the doctor's office. I hope tomorrow  I have a more upbeat blog. I know I can do all things through Christ who gives me strength.  <br/>Robin <br/> ]]></description><guid isPermaLink="false">2309</guid><pubDate>Tue, 13 Apr 2010 00:00:00 +0000</pubDate></item></channel></rss>
