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Thanks, Doc

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JesikaBeth

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So I went to my follow up appointment with my doctor today, 2 weeks since going gluten free. After HE said to go gluten free and it will help a great deal. So I go in, all excited, that in 2 weeks time my health has improved drastically (I was also put on Savella for fibromyalgia, and taken off my other fibromyalgia medication.)

 

Anyway, I love my doctor, he's the only one who has ever listening to me - really listened - and he's overall good with a great bedside manner. Anyways, so I'm excited and he walks in and asks how it's going, I said since going off gluten things have improved a great deal, and he said "I don't necessarily like to call it a gluten free diet, rather a stay away from breads and pastas diet". Ummmmmm WTF?!?! :blink: :wacko: :huh: :o ^_^

 

This threw me off... First off, I had a positive bloodwork antibody test (inconclusive biopsy), and at our last appointment he was telling me that Celiac is one of the most underdiagnosed diseases out there, even with biopsy. Then he says what he said today?!?!

 

Ah well, just kinda made me angry at the time being. Still kinda bothering me. I think because he totally minimized the a- seriousness and b-progress i've made in such a short time and c - this huge lifestyle change.

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I can relate to your story- sounds like you have good reason to be frustrated. Don't let you frustration ruin all the progress you've made. You are feeling better so don't let anyone else tell you otherwise. :)

I tested positive for the blood test that screens for celiac disease and I also tested positive in a different test for lactose intolerance. My biopsy came back normal but no one wants to confirm or deny a diagnosis of any sort. Now they want to do a colonic manometry at the end of August. Why? I have no idea. I've had so many weird tests for over a year and have seen so many doctors. 

I'm taking my health into my own hands and beginning the gluten free dairy free diet tomorrow. Next step for me is to call Monday morning requesting genetic testing for Celiac disease, but in the mean time I'm not going to wait around to be labeled "official" by the world. I want to feel healthy- I'm so ready to go grocery shopping :)

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  • Recent Articles

    Jefferson Adams
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    Sources:
    1. Toft M, Dietrichs E. Aggravated stuttering following subthalamic deep brain stimulation in Parkinson’s disease--two cases. BMC Neurol. 2011 Apr 8;11:44.
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    4. Jäncke L, Hänggi J, Steinmetz H. Morphological brain differences between adult stutterers and non-stutterers. BMC Neurol. 2004 Dec 10;4(1):23.
    5. Kell CA, Neumann K, von Kriegstein K, Posenenske C, von Gudenberg AW, Euler H, Giraud AL. How the brain repairs stuttering. Brain. 2009 Oct;132(Pt 10):2747-60. Epub 2009 Aug 26.
    6. Galantucci S, Tartaglia MC, Wilson SM, Henry ML, Filippi M, Agosta F, Dronkers NF, Henry RG, Ogar JM, Miller BL, Gorno-Tempini ML. White matter damage in primary progressive aphasias: a diffusion tensor tractography study. Brain. 2011 Jun 11.
    7. Lundgren K, Helm-Estabrooks N, Klein R. Stuttering Following Acquired Brain Damage: A Review of the Literature. J Neurolinguistics. 2010 Sep 1;23(5):447-454.
    8. [No authors listed] Case records of the Massachusetts General Hospital. Weekly clinicopathological exercises. Case 43-1988. A 52-year-old man with persistent watery diarrhea and aphasia. N Engl J Med. 1988 Oct 27;319(17):1139-48
    9. Molteni N, Bardella MT, Baldassarri AR, Bianchi PA. Celiac disease associated with epilepsy and intracranial calcifications: report of two patients. Am J Gastroenterol. 1988 Sep;83(9):992-4.
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    13. Ford RP. The gluten syndrome: a neurological disease. Med Hypotheses. 2009 Sep;73(3):438-40. Epub 2009 Apr 29.
    14. Hadjivassiliou M, Gibson A, Davies-Jones GA, Lobo AJ, Stephenson TJ, Milford-Ward A. Does cryptic gluten sensitivity play a part in neurological illness? Lancet. 1996 Feb 10;347(8998):369-71.

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