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Open Letter Part 1 to Fellow GI Sufferers etc. Like IBS, UC, and other GI diseases like Infant Heartburn (GERD) that grows into (in time) to IBS, UC, Chron's and NCGS as a teenager or Celiac disease in time as an adult - Look beyond to the Parent disease

Open Letter to the many GI sufferers etc Part 1’ Like IBS, UC and other GI diseases like Infant Heartburn (GERD) that

grows into (in time) to IBS, UC, Chron’s and NCGS as a teenager or Celiac disease in time as an adult— Look Beyond these symptom’s

to the parent disease –- Pellagra.

 

*** a couple of notes to begin with.  You can see I meant this to be one post -- but as usual it got too long to read at one seating. 

2) because I might be having a medical procedure soon (I am posting part 1) in case I don't get to part 2 until latter.

****This is only my experience (and my research) that has lead me to my conclusions. They are NOT endorsed by celiac.com nor should this blog post

be considered and endorsement of these ideas by celiac.com.  Thank you in advance for letting me share my opinions and conclusions.

(God being my help) may this posterboy blog post benefit those who take the time to read them/it.  What follows is something that has been on my heart to share

for a while.  It is my story only. . . yours may be different but I have found if it helps you  . . . it will  help others too!  And as they say "Without Further Ado"

Here are my thoughts about my original celiac diagnosis and what/why I think was also low in stomach acid but a proper diagnosis was not

made because not enough/proper test's were done to rule it out as an official "differential diagnosis".  If it is happening to me. . . it is happening to others!

 

Below begins the body of blog post of "An Open Letter Part 1 to Fellow GI Sufferers"

 

Because as I am fond of saying “To Educate is to (Truly) Free”

God being my help 2 Timothy 2: 7 as always“Consider what I say; and the Lord give thee understanding in all things” this included

and all the knowledge I have absorbed in 10 years of researching this topic for myself (God being my help) how I discovered this forgotten

medical fact after 4 years  of research (see below) and have been helping people for over 6 years (those who will listen) and who better

to learn from than someone who has done it himself and not only for himself but 100’s of his friend too!

See this celiac.com article where much of this information is summarized in something called a white paper about the

“When Myth becomes Medical Fact People suffer unnecessarily; The Case of Mistaken Identity: How Pellagra now thought

to be rare became known as Celiac Disease — A White Paper linked at the end of the article.

Referenced here if you have not had a chance to read the article since it was featured on celiac.com

https://www.celiac.com/articles/24658/1/A-Differential-Diagnosis-How-Pellagra-Can-be-Confused-with-Celiac-Disease/Page1.html

“A white paper is an authoritative report or guide that informs readers concisely about a complex issue and presents the issuing body’s

philosophy on the matter. It is meant to help readers understand a (complex) issue, solve a problem, or make a decision.”


 By reading this blog post I hope to convenience you that your experience can be the same as mine.

A differential diagnosis is one of  the best standard of medicine rarely practiced today and how specialists decide between competing

diseases like UC or Chron’s or IBS or Celiac Disease and if I am right Co-Morbid Pellagra now forgotten for 75+ years since the “War on Pellagra”

is now over according to medical professionals’ but sadly the battle rages on for at least for the 60 Million American’s alone who get

(Infant) Heartburn  once a month not counting the heartburn that grows up to be IBS, UC, Chron’s or Celiac disease.

See link below from Creighton University that mention’s this medical fact.  Pellagra is not a disease of TODAY.  Celiac is the disease

of Choice today!  But in 58% of those diagnosed with Celiac TODAY 58% are Co-Morbid with Pellagra as I was and most ALL my friends

because they ALL get better when they take the Niacinamide.

I now it works. I have seen it work for too many people. And I believe it can/could work for you too!  See end of this blog posts

and my doctor does too.  He now uses this method in his practice with great success!  And it can work for you too! (I believe)  

Lord willing if you do as I suggest and take Niacinamide 2or 3/day for 6 months (see below).

I now describe myself as the Celiac and Pellgara Posterboy as a “Former Celiac Sufferer” who blogs about digestive disorders

that Co-Morbid Pellagra causes often presenting as other GI diseases like IBS, UC, Chons, NCGS and GERD”

Note **** This IS NOT medical advice only my personal experience of how through deep research (and the Grace of God) after 4 years of study

I found what the doctors have always known but overlook in treating the many symptoms of Celiac Disease. The true cause as recorded

in medical textbooks the world over the cause of 90+ percent of Digestive disorders (I believe) is because of one Vitamin Deficiency/Dependency.

This blog post and (Posterboy blog) is about that ONE nutrient/vitamin/mineral that is lacking and the causative agent for most Digestive Disorder(s)

presenting as the Iceberg Disease(s) of Gluten Insensitivity aka Celiac Disease in its most advanced stage (with enough time).

And I hope at least ONE other Celiac besides me will believe also and be helped from this post.

As proven/researched by Prousky almost 17 years ago that low Niacin levels lead too low stomach acid.  It is time this information was

known by a wider audience – the Celiac audience.

http://www.yourhealthbase.com/database/niacin-treats-digestive-problems.htm

see also by posterboy blog about this topic. It is a devastating delay.

2 Timothy 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included.

When Celiac Disease points it head (rears it head) out of the water 20+ symptoms (known as associated diseases) have already presented

themselves in various malady’s. When only 3 (the 3 Ds) symptoms  where need 75 years ago to diagnose the condition once considered

cured but is rampant in today’s society because we are more STRESSED than ever.

Digestive disorders, dermatitis syndromes, and dementia disorders – known then as Pellagra 75+ years ago but now is known mostly

as various GI diseases depending on how long or low you are in Pellagra Preventive Factor as it was called in the day.

Here is the best research article I have ever read on the topic.

https://www.hindawi.com/journals/cggr/2012/302875/

They called it “Lessons from Pellagra” but the problem is we haven’t learned them.

What does this look like in human beings?

If one is critically low in Niacin the 3 D’s of Pellagra (Dementias, Dermatitis’s, and Digestive Issues) show up.

(see hindawi link about for the exhaustive complete diagnostic picture of all the ways Pellagra might present itself. 

It is very exhaustive and informative) We will not count the 4th D of death if you are reading this blog.

Explained here well http://blogs.creighton.edu/heaney/2013/11/18/pellagra-and-the-four-ds/

To quote Dr. Heaney a Past Professor of Medicine at Creighton University “2014 marks the 100th anniversary of the war on Pellagra,

a war that lasted nearly 25 of those years before victory could finally be declared. You have not heard of the war on Pellagra?

The celebration is not on your calendar? You’re not alone.”

I have been in remission now for 5+ years after suffering 30+ years. Remission is possible! From Pellagra!

Epigenetics has been discovered as the cause for Pellagra being diagnosed as Non-Celiac Gluten Sensitivity (NCGS)

or Celiac disease when Heartburn/Gerd then IBS etc. and NCGS in time grows up to become your Celiac Diagnosis.

Learn how Lifestyle (STRESS) is a risk factor for Celiac Disease.

see this article entitled ‘Lifestyle is a Risk Factor for Celiac Disease”.

https://www.sciencedaily.com/releases/2015/11/151102100302.htm

Quoting an article that appears on Celiac.com

http://www.celiac.com/articles/24166/1/Could-Changing-Gut-Bacteria-Prevent-Celiac-Disease/Page1.html


“According to Dr. Decker Butzner, a Calgary-based pediatric gastroenterologist, there are another triggering factor which we’ve

never understood…[t]here is an environmental trigger.“ i,e.  STRESS

Have you been stressed of late?  Stress is said to kill you well it also maims you.  NCGS is that maiming of people who have eaten

wheat without resetting their stress clock.

Find out how you can reset your stress clock (my words).

Also see this very well article on pregnancy.

https://www.verywell.com/can-pregnancy-trigger-celiac-disease-562302

where they say quoting

First Comes Baby, Then Comes Symptoms

"Most women are diagnosed with celiac disease after at least one pregnancy — in fact, a comprehensive Italian study

published in 2010 on the reproductive effects of celiac found that 85.7% of women received their celiac diagnosis

following their first pregnancy."

WE also know stress is a trigger for Celiac disease.

https://www.celiac.com/articles/23506/1/Stress-Common-Before-Celiac-Diagnosis/Page1.html

Join his friends who no longer suffer from heartburn, gas, constipation, diarrhea, IBS , UC, Chron’s and Ulcer’s etc. of NCGS/GERD.

You too can be in remission in as little as six months if you follow this ground breaking discovery hidden in medical text books

now brought to light about how to manage digestive stress from Pellagra.

When he (God being his help) rediscovered Pellagra as a disease of TODAY now often Diagnosed as Celiac disease instead of one conquered 75+ years

ago as the doctors teach.

A brief history: over 4+ years ago after being able to eat gluten again after being Gluten Free for 4 years and suffering 30+ years

before I received a diagnosis as Celiac disease I begun to realize I had low stomach acid instead.

So now I speak about it freely and blog about it regularly with only modest success and why I participate on celiac.com to Educate

those still suffering unnecessarily to help explain how Pellagra is often confused for many GI issues up to and including Celiac Disease in time

– usually 10 years or more.

*** This is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making any

changes to your diet or your prescribed medical regimen.

After 4 years of research and 5+ years of GI symptom remission I am convinced more than ever that 90+ percent of the most common

GERD/Gluten issues are related to sub-clinical presentation of Pellagra unrecognized in a clinical setting.

So much so that I tell those who will listen.

As I am fond of saying  Learn from my mistakes.

Honey is like knowledge sticky and sweet when good news comes.

“This posterboy blog is just that storehouse of knowledge learned from life experiences.  The blog’s author has been stung so you don’t have to be.

No man is so dumb as the man who won’t learn from other people’s mistakes.

Take as much honey (knowledge) as you can from my mistakes so bad health will not sting your quality of life.

Feel free to ladle and dollop your life with the sweet stickiness of the truth found here.  For honey like truth stick to you once

in contact and you can’t just wash it away.”

This posterboy blog is about my struggle to reach people yet only about 10 percent believe and are helped when they read these things

though 95+ percent are helped when they treat their Pellagra symptoms with Niacinamide taking it 3 times/daily for 4 to 6 months.

Education (this blog) is about raising the conversion rate so people don’t have to suffer any longer.

I will go on telling those who will listen. How can they hear if no one tells’ them?

Romans 10:14 (I speak as a man)

Tell others about this blog post if you decide to try Niacinamide for yourself and see If it helps you.

It will help others/them too most likely!  At least it helps most of my friends that will/have believe/believed and tried it for themselves.

Take the Niacinamide and get/be better in 6 months (begin BURPING) (w/o bloating I might add) for the first time in years IF EVER from Pellagra undiagnosed.

No one seems to believe (or at least not many) becoming deficient in (a) vitamin or vitamin(s)/minerals will/can make us sick.

What a novel concept. You would not think I would need to write a blog post to tell people that!

Maybe it is not true in your case. But you won’t know if you don’t try it.

All I know it has been true in my life! and Hundreds’ and hundreds’ of my friends.

Thanks bee to God who helped me to see these things.

2 Corinthians (KJV) 1:3,4 3) “Blessed be God, even the Father of our Lord Jesus Christ, the Father of mercies, and the God of all comfort;

4) who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble, by the comfort wherewith we

ourselves are comforted of God.”

Tell someone (share) is all I ask  tell others is all I ask –when you are BURPING for the first time in years or (EVER) – tell a friend

about this blog post “is all I ask” but don’t let the chain break with you. There a lot of fellow sufferers’ who still need help.

I always say the number one mistake people make with Niacinamide is not taking it long enough (3 to 6 months 3/day in divided doses)

but now I am going to amend that.  The number one mistake people make with GI problems is the mistake of not taking the Vitamin

in the first place.  The 2nd biggest mistake is they don’t take it long enough!

If you want to try and educate your doctor/friends and think he/she/they will listen tell them how Niacinamide helped you

or some fellow who says it helped him but I was too scared to try it.   Maybe they will listen to your better than they will/do me.


*** This is not medical advice and should not be considered such. Results may vary. Always consult your doctor before making

any changes to your medical regimen.

But mine has taken Niacinamide and his digestive/GI problems are in remission.  And his difficult to help/treat patients who

don’t respond to “popular” medicine’s like Linzess etc. are better for IBS-C.  And have stopped the medicine because their

symptoms are in remission.

He has even given Niacinamide to his sister to help her Chrons symptoms’ though research bears this out people don’t

(Heck doctors don’t even) well understand the connection.

See this article entitled “Pellagra as the presenting manifestation of Crohn's disease.”

https://www.ncbi.nlm.nih.gov/pubmed/7060914

(***Note: this is an update.  I saw my doctor recently and he admitted as such. But I could see it in his eyes (and hear it in his voice)

because it did not fit his paradigm (world view of Vitamins/medicine) he spoke only of her Chron’s being in remission.  It never occurs too

him that her co-morbid Pellagra is better and it (Pellagra) could be being misdiagnosed as Chron’s instead (and won’t/wouldn’t) even

if I brought him the research.) 

But Vitamin(s)/Minerals especially Niacinamide and Magnesium don’t get the attention they deserve because Vitamins’ don’t have a

USP today in this genetic age we now live in.

They (drugs) are popular because they have drug companies who have the money to advertise them.

I do not.  I do not have a Unique Selling Position (USP).

Nor do Vitamins these days!

And I say too you too.  Put your Pellagra symptoms into remission too!  (Your Celiac diagnosis can remain your primary disease diagnosis) as the
doctor's wonder why your (Pellagra misdiagnosed) symptom's are in remission.

No body profits if you get better in 6 months or a year and you no longer need the Vitamin!

We don’t’ get sick from being low in “a Medicine” to quote the frustrated pharmacist but a Vitamin.

I usually end up giving Niacinamide away and often they (friends) give it back instead much like a Johnny Appleseed character.  

Such is the fear of Vitamins these days.

See also the posterboy blog post on celiac.com why this is so. . . entitled it is time for a Vitamin Reformation; Why all the hate for Vitamin’s these days.

2 Timothy 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included.

I am just trying to help those who still haven’t heard yet Pellagra is being diagnosed as Celiac disease today and your Pellagra

undiagnosed/mistakeningly diagnosed as Celiac can be in remission from a Vitamin deficiency.

If we follow most normal paths’ for adoption it will take another 20 years (a generation) for the medical community to accept

Pellagra as the proper diagnosis.

****Note: I am only reporting what medical journals have concluded. It is just not well understood today one disease is being diagnosed

as the other because it can take a generation for this knowledge to filter down to the clinical level.

How do we know this??? Or can we? The International Journal of Celiac disease notes this association/connection.

http://pubs.sciepub.com/ijcd/3/1/6/

Not only did/does the Journal of Celiac cite common symptom’s 58 percent of the time in Celiac and Pellagra but they also cite

that Pellagra has been described in a Celiac Disease diagnosis.

Now if the symptoms’ are similar it is easy to confuse one disease for the other and if not well understood they might be considered

“exceptional” or, i.e., not well understood and discounted as the cause.

I would argue that it should be the other way around if the majority (58 Percent) of the time Pellagra symptoms are described in a Celiac

diagnosis it stands to reason that medical science is identifying the wrong disease.

The math doesn’t add up. 58% is the Majority  (primary/parent) disease and as such should be treated first.

Pellagra has 3 faces that often confuse doctors today but 75 years ago they were able to diagnose this disease with only 3 symptoms

the D’s of Pellagra. Dementia’s, Digestive Disorder and Dermatitis issues. Are You starting to see a pattern here?

If it starts with a D then Pellagra a Niacinamide deficiency is involved. Quoting the Celiac Posterboy

“These D’s a Celiac patient encounters are not the sign of several different diseases but one parent disease Pellagra with many children.”

I could go on and on and on . .. but there is no need for that. I need to stop for now.

Either you will believe and be helped or go on suffering needlessly if indeed Pellagra is the parent disease and GERD, IBS, UC, Chrons, NCGS

and Celiac disease it‘s unruly children.

2 Corinthians (KJV) 1:3,4 3) “Blessed be God, even the Father of our Lord Jesus Christ, the Father of mercies, and the God of all comfort;

4) who comforteth us in all our tribulation, that we may be able to comfort them which are in any trouble, by the comfort wherewith

we ourselves are comforted of God.”

****Again this is not medical advice but it is too easy, simple and cheap not to try and see if it works for you . . . I have found it works for others.

Remember Occams’ Razor. . . The Simple answer is a Vitamin. But convincing people of that fact has not been simple or easy.

I can’t convince you either way. You will have to decide for yourself . . . I only know it help’s those (of my friends) who have tried it for themselves.

Praise bee to God and I want other’s still suffering from Pellagra disease if the research is to be believed being diagnosed as Celiac

disease to be the next to be helped Praise bee to God!

But I know now you will have to discover it for yourself. I stand as your witness. I tried!

Posterboy by the Grace of God,

 

2 Timothy 2:7  As always, “Consider what I say; and the Lord give thee understanding in all things” this included.

 

**** I will update this blog post in a month to 6 weeks with Part 2 about how you can test these things for yourself (if I am not recovering (God forbid) from

a medical procedure) depending on how and if my CT scan shows any blockage that might require a stent to be implanted like my brother had to have done. . . 

Otherwise I wish you all who read this posterboy blog post God speed!  And good GI health soon! Praise bee to God if you are encouraged enough from

this post to try the Niacinamide 3/day for 6 months for yourself.

2 2


2 Comments


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DesperateladySaved,

I have tried to encourage people to take another look at low or No stomach acid as a contributing factor in their GI problems.

But I seem to have done a poor job educating others of this association because few people believe me.

https://www.celiac.com/blogs/entry/2106-is-ncgs-andor-celiac-disease-really-low-stomach-acid-misdiagnosed/

the same nutrients that one get 's low in when one develops celiac disease is the same one's we get low in when

we get too low in stomach acid.

See this research entitled "Vitamin and mineral deficiencies are highly prevalent in newly diagnosed celiac disease patients" where

they list out these nutrients that supplementation as a celiac can benefit.

https://www.ncbi.nlm.nih.gov/pubmed/24084055

quoting I see this a lot.  This research is 5 years old and the doctor's have not incorporated this information into clinical practice yet!

"Vitamin/mineral deficiencies were counter-intuitively not associated with a (higher) grade of histological intestinal damage or (impaired) nutritional status"

thus opening the way for another cause of low nutrient status such as low stomach acid mis/undiagnosed properly!

But you can take a supplement (BetaineHCL) (today) for that and that is not preferable to a medicine that would/could allow you to eat gluten someday. . .. whenever that day comes  . ...if ever when people could now digest proteins again if their stomach acid was strong enough

I believe. Proteins because they can be confused for Viruses trip up our Immune System.

see this research 30+ years old discussed in this thread

https://www.celiac.com/forums/topic/121380-intriguing-old-reserach-detailing-low-and-no-stomach-acid-in-celiacs/

that studied this same association. . .. of low or NO stomach acid in Celiac's and especially DH Celiac's.

I hope this is helpful but it is not medical advice.

As always "Consider what I say; and the Lord give thee understanding in all things"  2 Timothy 2:7

and if it helps you tell others that they might be helped (Lord willing) too!

Praise bee to God!

Posterboy by the Grace of God,

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    • Eab12, This is a blog post. . . .you might not get much response here. You might want to start this as a thread in the forum section. Eating low carb .. .might of been low enough in gluten to lower your antibodies levels but enough to still attack your villi. . ... and villi don't heal right way anyway. Most people follow up on biopsy at a year to see if villi are still damaged ... and your's obviously still are. .... one confirms the other (often) and doctor's don't want to say absolutely you have celiac without them both being positive. But for you I would say "Positive" is positive. .. but doctor's want both of them to be positive to be sure of your diagnosis. . . but for me I was diagnosed by blood serology only.... this is more common (today) than it i used to be. If either is positive then you can be positive for celiac disease ...doctor's are trying to confirm it is not a "false" positive. See this huffpost article about this topic. https://www.huffpost.com/entry/gluten-what-you-dont-know_n_379089 You might want to have your stomach acid tested too ....being low in it can lead to inflammation. I hope this is helpful but it is not medical advice. Posterboy,
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    Hi Wade, I use plain water to rinse foods.  I suppose it might be better to use a little Dawn dish soap or some such on fruit like apples that is waxed.  But I don't usually do that. It's a good idea to rinse foods off anyway to reduce germs.  You never know what kid has wiped his nose on an apple in the produce section!   Plus like Ennis said there is the wonderful in store bread bakery trend these days where they can have flour wafting through the air.  My local Kroger seems to have a pretty good ventilation system set up so most of the heat from baking is exhausted and probably most of the flour with it.  But you never know for sure.  People working on making bread may have flour on their uniform sleeves and spread it around.  Also the flour section is often messy with leaking flour bags spilling gluten around.  So the stuff can be present in different areas in a grocery store.  And get spread unintentionally.  The person stocking flour may be stocking candy the next hour. I don't think buying organic is a bad thing.  But I don't think it helps as far as avoiding gluten. The issue is cross-contamination of gluten on/in supposedly gluten free foods.  And that cross-contamination can happen to both organic and non-organic foods. It seemed to me that I was very sensitive to gluten exposure when I first went gluten-free.  Even slight amounts would make me sick.  You may find the same to be true for you.  I think that is because our immune systems are in high gear at first.  So even smelling bread baking or going through the bread isle can bother some people.  After a while on the gluten-free diet the immune system may calm down and not be so quick to react to minor exposures.  That can take some time to happen though, maybe years, Some other foods to watch out for and avoid at first are dairy and oats.  Many of us are lactose intolerant for several months after going gluten-free.  That may go away though.  And some of us are intolerant to oats like we are to wheat, rye, and barley.  Oats can also be cross-contaminated in the processing or harvesting.
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