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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
My Long Journey to Celiac Disease Diagnosis
Like many people, I spent a lot of years, a lot of dollars, and endured many tests and misdiagnoses, before doctors finally discovered that I had celiac disease (also known as coeliac disease or celiac sprue), and needed to eliminate gluten and all gluten-containing ingredients from my diet. Gluten is a protein found in the three main gluten-containing grains: wheat, rye, and barley; and is often hidden in processed foods, and things like soy sauce and beer.
Celiac disease is NOT an Allergy
It's important to know that celiac disease is an autoimmune disease, not a wheat allergy. It's also different from non-celiac gluten sensitivity, gluten intolerance, or sensitivity to gluten.
Gluten-Free Diet
To treat my celiac disease I had to go on a gluten-free diet for life. That meant learning to read food labels to avoid gluten ingredients, and eating a diet of mostly naturally gluten-free foods like meats, fruits, nuts, vegetables, and packaged foods only if they are certified gluten-free or labeled gluten-free, for example gluten-free breads made using gluten-free grains.
My Celiac Disease Symptoms, Diagnosis and Recovery
My symptoms included weight loss, long-term diarrhea, bloating, and abdominal pain (especially in my middle-right section while sleeping. Once I began and maintained a gluten-free diet, those symptoms slowly disappeared....[READ MORE about my long and winding road to a celiac disease diagnosis and recovery.]
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Recent Activity
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- Celiac16 replied to Sultana's topic in Related Issues & Disorders11
Thiamine supplementation
@knitty kitty it’s hard for me to figure out what causes the reactions in multivitamins for me - I found out through individual supplements that I can’t do methylated forms - methyl folate and methyl cobalamin both gave me hives. It’s really tedious trying out each form of vitamin individually but I do taken b2 and b6 too for nausea/vertigo. I can’t tole... -
- knitty kitty replied to Sultana's topic in Related Issues & Disorders11
Thiamine supplementation
@Celiac16, Thiamine (any form including Benfotiamine) needs magnesium to make life sustaining enzymes. Taking Thiamine without sufficient magnesium means the body cannot use Thiamine properly. I understand how magnesium can make you feel "knocked out" but that goes away with continued supplementation. When I first started supplementing magnesium... -
- Celiac16 replied to Sultana's topic in Related Issues & Disorders11
Thiamine supplementation
Sorry i meant 500mg** -
- knitty kitty replied to Moodiefoodie's topic in Related Issues & Disorders4
Joint swelling when ill even on gluten-free diet
@Moodiefoodie, Sorry you are having such problems. Gluten exposure, illness and vaccinations are situations in which there is a higher demand for Thiamine Vitamin B1. We need more Thiamine when we have an immune response, whether it is caused by a cold or an inoculation to promote an immune response as with vaccines, or upon exposure to...
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