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      Frequently Asked Questions About Celiac Disease   04/07/2018

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes

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  8. hi i have to go for blood test on wednesday 25th, celiacs is new to me i was actually being treated for thrush which was not clearing up and fell upon the celiac thing as i had changed my eating hapits and realised i felt totally different when i did not eat wheat products. as i have returned to eating gluten after a two week break, the thrush is flareing up again i have some medication which will see me past the screening date, but until i go gluten free i dont see how the thrush will clear up its becoming uncomfortable i have all the symptoms back including joint pain constant wind etc, should i go to get the test done early and then contact doctor so i can stop eating gluten to clear up thrush as i feel to have to wait for the results and then wait for endo my become unbearable
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  12. Glutened By Vapors

    AsokaM82 replied to Chopper's topic in Super Sensitive Celiacs & Gluten Sensitive

    I know this is an old post but hopefully you will be able to read it anyways. Actually I know for a fact you can get sick from vapors if you have Celiac. I myself have Celiac,at work some ass%$@# security guards were smoking vapours in the security office which is not allowed when I called them out on it they blew the vapors in my face. Soon after my stomach started to hurt and I tried to fight it until the end of my shift then after that I was sick for 2 days. I usually don't get sick just from being around gluten products I have to actually consume it to get sick but this time I did get sick from it and I am not the one that was smoking those vapors which by the way do contain gluten products such as wheat, rye and malt the three products dangerous for anyone with Celiac. Saying vapors can't effect Celiacs and is just psychological is stupid and ignorant, because it can.
  13. Jo B 2801 joined the community
  14. Ennis_TX started following Beef Bone Broth Bouillon Alternative
  15. Well I have for years not used beef bullion in recipes as it always either has too much sodium, some other crap in it, or just made me feel sick. Even pacific brand broth I used in moderation seemed to lack flavor. I recently found a alternative in a supplement form of beef bone broth from Jarrow, that does not bother me and does not seem super salty. IT is gluten free, corn free, no added salt, or yeast extracts. Started using it broth bases and I love how I can adjust the flavor with the amount so easy. Find it on amazon or here at thrive market. https://www.amazon.com/Jarrow-Formulas-Beyond-Broth-Ounce/dp/B01M5D59FC https://thrivemarket.com/p/jarrow-formulas-beyond-bone-broth OH first time gluten free orders you get 25% off with http://thrv.me/gf25
  16. Jose Ferreira joined the community
  17. GFinDC started following No E Mass / So Nh - Support Groups ?

  18. No E Mass / So Nh - Support Groups ?

    GFinDC replied to lpjourney's topic in Celiac Meeting Room

    Welcome to the forum John! Try this search: https://duckduckgo.com/q=new+hampshire+gluten+free+support&t=hg&ia=web Also, we have a "newbie 101" thread for getting started in the Coping With forum section. This forum is a great place to get information on what to eat and other things that can help. Think whole foods rather than processed foods. Foods you cook from scratch yourself are best. That way you know what's in the food. Dairy can cause problems for the first several months until some healing happens. There are lots of gluten-free foods and restaurants now. But it's best to stick with meats, veggies, nuts and fruits for awhile. No eating out for 6 months or so. For a bread sub Mission brand corn tortillas are good and Aldi makes some good gluten-free wraps. Some people like rice cakes also. Gluten-free breads are available but should be avoided until you have got some months under your belt. Cross-contamination can happen when somebody uses a knife or spoon to get peanut butter or some condiment out and then you use the same jar of peanut butter. Little crumbs do matter to the immune system and it will react, sometimes for months. So if you are sharing such items with others who aren't gluten-free you need to stop. Wooden spoons and dishes are too difficult to clean adequately. Metal is usually fine though. It's all a steep learning curve at first but it gets easier in time. We can help you over the rough spots. We've hit a few of them ourselves.
  19. Sundown Naturals offers a full line of products that are 100% Non-GMO and free of gluten/wheat, dairy/lactose, and artificial flavors! https://www.sundownnaturals.com/products/calciumgummiesplusd500mg/
  20. hello I am newly diagnosed with celiac and is looking for a support group to learn more about it. On what I can eat and not eat. recipes and stuff

  21. No E Mass / So Nh - Support Groups ?

    John B. replied to lpjourney's topic in Celiac Meeting Room

    hello everyone I am john and I was just diagnosed with celiac. Is there any local support groups in or around the Billerica area I can join and find out more about it.
  22. squirmingitch started following My Blood test came back Positive for celiac, very confused now
  23. Ennis_TX started following My Blood test came back Positive for celiac, very confused now
  24. Standard is blood test then endoscope you can read up here https://celiac.org/celiac-disease/understanding-celiac-disease-2/diagnosing-celiac-disease/screening/ But looks like your probably have it, keeping eating gluten daily til testing done, might as well bucketlist your foods you will have to remove as with this disease you can not cheat, and while almost everything can be made gluten free now days, you will still surely miss eating out so see about knocking out those crazy meals you might have been wanting to try. You can read up more on the transition here. https://www.celiac.com/forums/topic/91878-newbie-info-101/ And while a whole foods diet is suggested at first, with removal of dairy and oats here is a list of gluten free alternatives I have composed lessen your worries about stuff. https://www.celiac.com/forums/topic/121148-gluten-free-food-alternative-list-2018-q2/
  25. You need to I eat a couple of crackers worth of gluten a day until the endoscopy. I don't think 8 days gluten-free will be a problem. It really depends on how " high" your blood work is. Usually they like to do an endoscopy and a colonoscopy, just to make sure there are no other issues and see how bad the damage is.
  26. I just joined this message board, there is a lot to read about celiac but i am very scared and there are so many unknowns. I am 35 and I have been experiencing stomach issues for the past 8 years. I have gone to a gastrointrologist a couple times, and every time i was sent home saying i have IBS! he did mention you can go on different diets to see how you feel but I never followed thru with it. stomach Issues would come and go, for example my stomach would work great for a period of 4 months and then if i get food poisoning or something else goes wrong, it would be bad for the next 5 to 6 months. last summer I expericened weight loss and hair loss, and I eat a lot and i have been a very high energy person. I went to the doctor again and a Dermatologist, and he says the hair loss is due to recent stress. i didnt think of it too much and life went on. I should say that I travel a lot, around 6 months a year. i felt really tired at times within the past 6 months tho, I would never fall asleep early but I have been sleeping early for the past few months. I noticed my hair is falling out more than before. This time when i got back home two weeks ago, i went to the doctor to do a physical. he tested me for everything including HIV, H C, ... iron defecency and list goes on, everything came back as ok. I told the doctor that I feel like no matter how much i eat the food is not being absorbed. He said, Let me just check you for Celiac too. 4 days a later the test comes back Positive. Now it's been 8 days since I got diagnosed. I have been Gluten Free since 8 days ago, but they want to do a Biopsy next Friday which is in 6 days, do i need to do the Biopsy? is the blood test not 100% accurate if it comes back as positive? and if i am going to do the test next Friday, I should be eating normal again with lots of Gluten? I really scared and confused. I would hate to have a tube down my throat if it's not necessary.
  27. Thank you! I don’t really get symptoms so it’s hard to say, I might start with 1/2tsp and build up to 4tsp by week 2 as you have suggested. Thanks again!

  28. No relief

    cyclinglady replied to V123's topic in Celiac Disease - Post Diagnosis, Recovery/Treatment(s)

    Three weeks is such a short time to expect dramatic healing from celiac disease. The learning curve for the gluten-free diet is steep! Don’t forget, damaged areas can be missed in the small intestine because it is the size of a tennis court! If your symptoms do not improve within six months or so (not perfect, but improved) ask about IBD (Crohn’s) testing. My niece had her Crohn’s diagnosis caught by a pill camera. All other tests, including celiac disease (unlike you, both blood tests and biopsies were negative).
  29. The gluten-free diet will work. It is RARE that it does not. Cross contamination is an issue but once you learn the diet, it become second nature. If you can, get the endoscopy. Why? You can rule out other concurrent issues. Some people do not have the option due to financial constraints or long wait times (e.g. Canada).
  30. Thank you, I will be more careful with contamination. I was tested for crohns and negative

  31. Body odor

    V123 replied to Zoey000's topic in Celiac Disease - Related Disorders & Research

    I haven’t said anything to any of them, though they have probably detected it
  32. I've googled the names of the tests but it is really confusing. I'm wondering if higher numbers means worse damage? More likely that the diet won't work? I'm hoping I'll start to have symptoms when I do accidentally eat gluten, because I don't feel like I have any right now and I'm so scared of cross contamination after all I've read today.
  33. I have read that the high numbers do not necessarily coordinate with a severe damage. I just had a repeat endoscopy done and my DGP IgA was high, yet I had no villi damage. The antibodies tests are good, but not perfect. It is one reason that the endoscopy to obtain intestinal biopsies is still the gold standard. I can tell you that it is nice to have a benchmark for future reference. I was glad to see that my small intestine had healed!
  34. Yesterday
  35. tessa25 started following Doc says levels are SUPER high, trying to figure out what that means
  36. Umm, well, I think we can safely say you have celiac with those numbers. You are supposed to keep eating gluten until the endoscopy, if you choose to get one. Once you go 100% gluten free, no mess ups, those numbers should come down. After a while it'll be easy peasy. Note: I'm assuming the normal range for those numbers is less than 20.
  37. Hi, new here! I didn't consider myself to have any extreme symptoms but got tested due to a sibling testing positive and having a positive biopsy. My doctor calls and says "You have celiac disease, your levels are super high". Obviously going to see a gastroenterologist and get the endoscopy, etc. I've been mentally preparing myself for the past few weeks because my brother and I share so many genetic similarities, I kind of knew it was inevitable. I've read all day, seen all the scary things (cancer, lymphoma, I guess that's for another thread but I'm having a hard time coming up with internet info, some really scary, some reassuring), reeling from all the info. But the specific question is: Do really high levels mean really bad disease? I don't even know how to interpret these: TTG IgG ANTIBODIES: <0.8 TTG IgA ANTIBODIES: 30.9 GLIADIN IgG ANTIBODIES: 364.9 DEAMIDATED GLIADIN IgA ANTIBODIES: 143 Thanks and I think I'll be here a lot in the next few months!

  38. Don't Eat

    kareng replied to rc12126's topic in Celiac Disease - Coping With

    We do chicken like that the lazy way on my family, we just layer the pepperoni or ham on top cook in jarred marinara in oven t and add cheese for a few minutes at the end. Lol you can even do it in the crockpot!

  39. Don't Eat

    kareng replied to rc12126's topic in Celiac Disease - Coping With

    Other than yucky Pizza Hut wings, I don't think we even have anyplace that make wings that delivers - gluten or gluten-free. Is all you eat "delivery" and fast food? Not healthy for anyone.
  40. Ennis_TX started following Don't Eat

  41. Don't Eat

    Ennis_TX replied to rc12126's topic in Celiac Disease - Coping With

    Here are some fun ideas I have been playing with really simple Pizza Scramble Hormel Pepperoni, Eggs, Cheese shreds of choic, bit of milk of choice, gluten-free pizza or marinara sauce, Optional, lettuce wraps, chopped veggies/pizza toppings Chop up or tear the pepperoni into pieces and throw in a skillet and heat til the grease comes out and greases the pan Crack in your eggs, and pour a splash of the milk on and scramble like normal (touch of almond or normal milk makes the fluffy/creamy)| Once cooked pour sauce over top and a bit of hte cheese stir up well plate and top with more cheese and serve with wraps or eat with a fork Pizza Chicken, this is a play on chicken cordon bleu but with pepperoni, cheese, and sauce, Cut your chicken breast open almost all the way through so you can open it like a book, stuff the breast with 2 spoons of sauce good pinch of cheese, and 6 slices pep, close the breast and put the same on top. I used a george forman and cooked at 350F for 18 mins but you can use a normal grill, or bake in the oven for 20-30 mins til done. serve with more sauce over the top.

  42. SO OVER eating gluten free!

    Ennis_TX replied to janiney08's topic in Celiac Disease - Coping With

    You must live in some far flung third world country. There are plenty of naturally gluten free foods that taste great...you want desserts? I do great ones in my bakery, amusingly I have been donating and sneaking my left over goods into churches and setting them up at the coffee fellowship for the past 3 weeks...guess what, my baked goods are taken and gone before they even go for the doughnuts from the gluten bakery. My Vanilla Cranberry muffins and chocolate chips cookies are GRAIN FREE and VEGAN in addition to gluten free....years of perfection, and total love and dedication to baking and produced gluten free baked goods that are LOVED more then gluten doughnut by kids and adults.......Though I have not even told them they are gluten free and only a select few know.....next month I am dropping the bomb shell of the truth during service. THE BAKED GOODS ARE GLUTEN FREE! lol Amusingly several naturally made gluten free foods are gluten free, apple gate meats, ore ida hashbrowns, Jennie-O meats....wtf are you one that you do not notices these and have your head so flung up your depressive bung hole that you do not see the light of what you do have. STOP focusing on what you miss and look at what there is and always has been gluten free already. Seriously next time your heading to the Dallas area of Texas tell me I will cook your a great meal free of charge. I just recently got great review from some new meal of ideas I started catering like pizza chicken.

  43. Don't Eat

    cyclinglady replied to rc12126's topic in Celiac Disease - Coping With

    Sounds yummy!

  44. Need help desperately now!

    cyclinglady replied to gluten-free girl 67's topic in Celiac Disease - Coping With

    Packing a lunch was what people did 50 years ago. They took lunch to work, school or on a daily adventure (called picnics). Rarely people ate out. People had dinner parties or BBQs. That was “eating out”. My Dad had an extended lunch break at school so that he could go home to eat at hot meal. That is what kids did in the city. I think you need to re-think bringing food along. Celiac or not! We would probably would not have such a huge obesity problem. Fast food or processed food has surely contributed to a nation of fat people which was rare sight when I was a kid. Start a new trend! Be cool! 😎 I reeled in my hubby as a result of a picnic lunch! I do not think I would have landed him with a fast food burger. 😆
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