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Digestive enzymes won't help with gluten disorders per se but can often help with pancreatic enzyme deficiency related digestive problems. I'm not sure that having an IGA deficiency necessarily predisposes one to decreases in infection fighting ability but that's a good question to ask your physician.

Thank you for sharing your journey—it sounds like you've been through a lot, and you're being incredibly proactive about your health! Celiac disease and gluten intolerance can be tricky to navigate, especially when there’s conflicting advice from different doctors. It’s great that you’re feeling healthier on a gluten-free diet, but I understand the frustra...

That’s a really interesting idea about IgA deficiency. I’ve had chronic sinus infections for more than 10 years as well. I’ll bring it up next time with my PCM. in the meantime I’m going to supplement B1 and see if there’s any change. I’m also doing l. reuteri plus a regular multistrain probiotic which seems to be helpful. Do digestive enzymes hel...

For what it's worth, at the time of my celiac disease diagnosis I was also diagnosed with H. Pylori and treated for it with antibiotics. The throat swelling sounds like an allergy that may not be associated with celiac disease--if you can recall the foods you ate before this reaction it might help you track down the culprit, but if you can't it might make...

Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The...

H. Pylori is negative. However, I was treated twice for this infection. All of my unknown complaints started with pneumonia and were reinforced with Covid-19. I currently have thyroid disease. However, my thyroid problem receded with synthetic hormones and was almost solved. My body has been on alert for the last year. Especially skin, intestines, eyes.

It happened like you said, the dermatologist prescribed the creams. He told me to go to gastroenterology and left the door open for immunology. I'm going to immunology because my throat swelled up last yesterday at night for no reason and suddenly I've developed asthma. And I don't have that. I gave up gluten so quickly that I couldn't even start. I am going...

Thanks Scott! I eat plant-based, use healthy oils, but cannot afford luxuries like nuts, seeds and more than 2 Avos.....

I think I have found a partial answer, too long to quote here. Polyphagia, depression, stress, loss of nutrients due to damaged villi. Tx all.

@cjjones5969, Unintended weight loss is a symptom of Thiamine deficiency. Gluten free processed foods are not required to be enriched with vitamins like gluten containing flours and products made with them. Switching to a gluten free diet can precipitate vitamin deficiencies. Celiac Disease damages the small intestine where vitamins like Thiamine...

Welcome to the forum, @cjjones5969 Are you eating much processed gluten free facsimile foods? Keep in mind that gluten free processed foods, like gluten free breads, pasta and cookies, are not required to be enriched with vitamins and minerals. Flours containing gluten are required to be enriched with vitamins and minerals lost in processing...

Sorry if I'm doing this wrong, but I've never been in a forum before. I was diagnosed as a celiac when I went to the doctor for unusual weight loss because my children thought it would be a good idea. I have complex PTSD, which I've had since I was 17. They used to call it Maniac Depression then, and I dealt with it through diet, exercise and mediation...

Those iron tablets are probably your current culprit for stomach pain. I am also anemic and was prescribed the iron tablets as well. I wouldn’t wish those things on my worst enemy! They constipate me horribly and cause the most awful abdominal pain! I refuse to take them. I’m trying gentle iron right now and I think it’s still bloating me.

I live in a very small town, we have 2 restaurants and 3 cafes, none of which I go to. All have gluten. To travel even to the next town, I carry pre-prepared food with me and of course water. I have downloaded many lists of gluten free food stuffs, medications and skin care so I do not use any gluten. My doctor put me on iron tablets with Vitamin C and...

Welcome to the forum, @cjjones5969! Just out of curiosity, if you had no symptoms, what led to your diagnosis? You may have developed some additional food intolerances which is very common in the celiac community, particularly with foods whose proteins are similar to gluten. Chief suspects are dairy and oats, even gluten free oats. The protein casein...

Do you eat out in restaurants? This is a common source of contamination. The first step for you would be to re-examine your diet to be sure that it is 100% gluten-free. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):

I was diagnosed celiac January 2023, with no symptoms. I have been on the gluten free diet since, but since the 6th month of the diet to date, I have developed symptoms-stomach pains, bloating, distended stomach, headacres and I am always hungry despite actually eating more. The dietitican says I'm doing great, my doctor is pleased, but I'm confused. Shouldn...

Just a heads up. Not every dermatologist is familiar with dermatitis herpetiformis nor knows how to correctly biopsy it. One common mistake made is to take the sample from the pimple instead of next to it. I agree with Scott. Your reaction to gluten is very strong and you putting your health at risk by trying to go forward with a proper gluten challenge...

If your reaction to gluten is this strong and obvious, do you really need a formal diagnosis? Why not just go gluten-free?

Thank you, I will ask the dermatologist for a biopsy.

@BadHobit, You don't need to eat gluten to have a DNA test for Celiac Disease genes. You need to let your doctors know how severe your reaction to gluten is. It's endangering your health. I could not finish a gluten challenge after having been gluten free for a while beforehand. My doctors diagnosed me by positive genes for celiac disease and...

Thank you very much for your support and information. I came close to eating a slice of bread yesterday but had to take a stomach pill because it caused pain. I went to the toilet 5 times, unbelievable. And I felt drunk, stumbling left and right and getting quite clumsy. The foul-smelling stools started right away. And I was very restless in my sleep...

So, you did have symptoms: vomiting and diarrhea. They are classic symptoms of celiac disease. That must be why they checked you for celiac disease. A colonoscopy cannot be used to diagnose celiac disease. The scope can't reach up into the small bowel from the lower end. The kind of scoping they do to check for celiac disease is called an endoscopy. The go...

I had a colonoscopy and they went up to the small intestine and saw something. Prior to this I was having episodes of vomiting. It would be months apart and diarrhea would come too but always started with vomiting. Just out of the blue I would be attacked. They don't know what that is from.

Welcome to the forum, @BadHobit Were you tested for H. Pylori infection? Sometimes this infection can cause stomach irritation and even ulcers. H. Pylori infection can trigger Celiac Disease. H.Pylori infection is frequently found in celiac disease. Ask for DNA testing to see if you have any of the genes seen in Celiac Disease. Having the genes...