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  2. Please call me Kitty. I'm paranoid another K will slip into your abbreviation and then I'll really be in trouble! 😸 I think doctors and especially gastroenterologists should be taught about vitamins and deficiency diseases. I learned about them in the premed courses I took at university. ...
  3. Today
  4. Have any celiacs tried Orgain plant based protein powder? I recently bought it it is labeled gluten-free but came across a post that stated it may not be
  5. Hi, I have had low wbc all my life (I’m 34 now) I tested positive for ANA and anti ro which they thought was Lupus but now think a mild Sjogrens which I don’t have any symptoms just normal hormonal ones after 3 children. I just recently cut out gluten after a bad gastric issue and pain and...
  6. Wow!! Thanks for sharing, KK. That gives me HOPE. I would be ETERNALLY GRATEFUL if my even some of my physical/mental symptoms improve that quickly with extra B/magnesium!!😁 I try not to blame my docs for not FIRST recommending a course of extra vitamins etc. They weren't taught about it...
  7. I say eat first, go to the restaurant and have a nice drink, and when the waiter asks for your order tell him there's nothing you can eat. Celiac disease/Gluten intolerance is widespread enough that restaurants should at least be able to manage a salad or something. I think when your daughter gets...
  8. Sorry, so much information I wanted to impart. The difference I felt was within hours of taking that first 500 mg dose of thiamine. Took another 500 mg at lunch. I kept feeling better and better. I realized I could take 300 mg or 400 mg with each meal and get the same effect. Three or four...
  9. Hi again. KK. How many days/weeks/months??? before you noticed an improvement in how you felt after beginning all those supplements? I asked that Q in my earlier note... Apologies for such a long-winded earlier note.😉
  10. I thought McCormick was gluten-free but recently got sick from a meal of ground turkey with McCormick taco seasoning and I called to confirm it is still gluten free and was told that only the package with the green label that says GLUTEN FREE actually is. Of course none of the stores carry it but...
  11. Yesterday
  12. Wanted to add.... Thiamine needs magnesium to work best, so I take Doctor's Best High Absorption Magnesium. Years ago, I read this book... Niacin, the Real Story... by Dr. Hoffer and it really helped. I had returned to normal niacin intake, but I felt something missing after correcting...
  13. I'm currently taking LifeExtension Benfotiamine with thiamine 100mg capsules (fat soluble form of thiamine) which helps my diabetes. Once or twice a day. And I currently take Now B-1, 100mg tablets, one with every meal. I've tried several fat soluble forms of thiamine like Benfotimine...
  14. If you are losing weight you should consider SIBO or Refeeding Syndrome presenting as a Celiac Crisis.... Here is a study about it....entitled "Refeeding syndrome in adults with celiac crisis: a case report" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5791168/ Thanks for the comments...
  15. “I Be Stumped.” I think too many doctors use an IBS diagnosis as a catch all. They should look for the root cause, like Scott said.
  16. Hi again KK. Thanks for your great words of reassurance, wisdom, and experience. I will definitely give that higher B1 dose a try, esp. knowing small risk of damage due to overdose (as can happen with other vitamins). Did you really notice an improvement after ONLY 3 days on B1?! Awesome! Could...
  17. I found niacin therapy helped me with my PTSD. I read this book by Dr. Hoffer https://www.amazon.com/Niacin-Story-Wonderful-Healing-Properties/dp/1591202752 Here's a site... https://medium.com/@jonathanroseland/vitamin-b3-niacin-a-vitamin-of-hope-for-a-hurting-world-a345bd76c711 ...
  18. Kat333, If you are losing weight you should consider SIBO or Refeeding Syndrome presenting as a Celiac Crisis.... Here is a study about it....entitled "Refeeding syndrome in adults with celiac crisis: a case report" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5791168/ You might...
  19. I don't have an opinion on and MD vs ND, but I also just got an email from imaware, who does at home celiac blood testing kits, and they are offering $20 off through the end of today for celiac disease screening kits: https://imaware.health. So $79 for a screening, which would almost beat my co-pay...
  20. Thank you both so much for the response! @cyclinglady @Scott Adams I think I'll go in and get tested, hopefully this would provide some answers for everything finally... I've tried in the past to have a DR look at the bumps on my hands/elbows, but by the time I actually get into the dr office...
  21. Tamin8, If your Rice is is not fortified or enriched....you might have developed a Thiamine deficiency... Try Parboiling your rice....it helps make it a more nutritious rice. Here is a nice overview from Cornell Edu that explains why this is so... http://thiamine.dnr.cornell...
  22. Your symptoms certainly sound consistent with celiac disease and dermatitis herpetiformis (DH), which is the skin condition associated with celiac disease. @cyclinglady is right, you should request that your doctor give you a blood panel for celiac disease. You also may want to go to a dermatologist...
  23. If you are looking for a gluten-free medication try this site: http://glutenfreedrugs.com/ Sorry, but I can't recommend the type of medication you might be seeking.
  24. I've only used a bread machine a few times as a test for a product review, but the machine I did use had a detailed manual with it that included how to use it. Any chance yours has a manual that covers this in more detail?
  25. IBS was one of the first things I got diagnosed with before they found out I had celiac disease. Once I discovered that IBS was really a description of symptoms and not a disease I continued searching for the real cause of my issues.
  26. High dose thiamine means 500 mg of thiamine a day or above. Some take 500 mg three times a day for several days, then a maintenance dose is set. Thiamine has no upper limit. It is safe. It is water soluble, any excess is flushed out in urine. At most, you may get nauseous. If so back...
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