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  2. knitty kitty
    Please call me Kitty. I'm paranoid another K will slip into your abbreviation and then I'll really be in trouble! 😸 I think doctors and especially gastroenterologists should be taught about vitamins and deficiency diseases. I learned about them in the premed courses I took at university. ...
  3. aliceperez52 aliceperez52 changed their profile photo
  4. Lindsey Clark Lindsey Clark joined the community
  5. Today
  6. aquamarina2020 aquamarina2020 changed their profile photo
  7. 20021979 20021979 joined the community
  8. 20021979
    Have any celiacs tried Orgain plant based protein powder? I recently bought it it is labeled gluten-free but came across a post that stated it may not be
  9. BlakeGracieKarsen BlakeGracieKarsen joined the community
  10. BlakeGracieKarsen
    Hi, I have had low wbc all my life (I’m 34 now) I tested positive for ANA and anti ro which they thought was Lupus but now think a mild Sjogrens which I don’t have any symptoms just normal hormonal ones after 3 children. I just recently cut out gluten after a bad gastric issue and pain and...
  11. Kate333
    Wow!! Thanks for sharing, KK. That gives me HOPE. I would be ETERNALLY GRATEFUL if my even some of my physical/mental symptoms improve that quickly with extra B/magnesium!!😁 I try not to blame my docs for not FIRST recommending a course of extra vitamins etc. They weren't taught about it...
  12. icon knitty kitty reacted to a post in a topic: Narrow food choices
  13. Guest
    I say eat first, go to the restaurant and have a nice drink, and when the waiter asks for your order tell him there's nothing you can eat. Celiac disease/Gluten intolerance is widespread enough that restaurants should at least be able to manage a salad or something. I think when your daughter gets...
  14. knitty kitty
    Sorry, so much information I wanted to impart. The difference I felt was within hours of taking that first 500 mg dose of thiamine. Took another 500 mg at lunch. I kept feeling better and better. I realized I could take 300 mg or 400 mg with each meal and get the same effect. Three or four...
  15. Kate333
    Hi again. KK. How many days/weeks/months??? before you noticed an improvement in how you felt after beginning all those supplements? I asked that Q in my earlier note... Apologies for such a long-winded earlier note.😉
  16. Liz78 Liz78 joined the community
  17. Liz78
  18. Karen B. started following Is Old El Paso Taco Seasoning Gluten-Free? What About Other Brands of Taco Seasoning?
  19. Karen B.
    I thought McCormick was gluten-free but recently got sick from a meal of ground turkey with McCormick taco seasoning and I called to confirm it is still gluten free and was told that only the package with the green label that says GLUTEN FREE actually is. Of course none of the stores carry it but...
  20. shmeliac shmeliac changed their profile photo
  21. Yesterday
  22. knitty kitty
    Wanted to add.... Thiamine needs magnesium to work best, so I take Doctor's Best High Absorption Magnesium. Years ago, I read this book... Niacin, the Real Story... by Dr. Hoffer and it really helped. I had returned to normal niacin intake, but I felt something missing after correcting...
  23. debg550 debg550 changed their profile photo
  24. knitty kitty
    I'm currently taking LifeExtension Benfotiamine with thiamine 100mg capsules (fat soluble form of thiamine) which helps my diabetes. Once or twice a day. And I currently take Now B-1, 100mg tablets, one with every meal. I've tried several fat soluble forms of thiamine like Benfotimine...
  25. rachaelbaci
    Awesome, good to know! Thank you so much!
  26. Kate333
    If you are losing weight you should consider SIBO or Refeeding Syndrome presenting as a Celiac Crisis.... Here is a study about it....entitled "Refeeding syndrome in adults with celiac crisis: a case report" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5791168/ Thanks for the comments...
  27. cyclinglady started following Celiac Disease Misdiagnosed as IBS
  28. cyclinglady
    “I Be Stumped.” I think too many doctors use an IBS diagnosis as a catch all. They should look for the root cause, like Scott said.
  29. icon cyclinglady reacted to a post in a topic: Celiac Disease Misdiagnosed as IBS
  30. icon cyclinglady reacted to a post in a topic: Various symptoms - should I get tested?
  31. Kate333
    Hi again KK. Thanks for your great words of reassurance, wisdom, and experience. I will definitely give that higher B1 dose a try, esp. knowing small risk of damage due to overdose (as can happen with other vitamins). Did you really notice an improvement after ONLY 3 days on B1?! Awesome! Could...
  32. icon knitty kitty reacted to a post in a topic: Weight Loss/Muscle Wasting on gluten-free Diet
  33. knitty kitty started following Antidepressants
  34. knitty kitty
    I found niacin therapy helped me with my PTSD. I read this book by Dr. Hoffer https://www.amazon.com/Niacin-Story-Wonderful-Healing-Properties/dp/1591202752 Here's a site... https://medium.com/@jonathanroseland/vitamin-b3-niacin-a-vitamin-of-hope-for-a-hurting-world-a345bd76c711 ...
  35. Posterboy started following Narrow food choices and Weight Loss/Muscle Wasting on gluten-free Diet
  36. Posterboy
    Kat333, If you are losing weight you should consider SIBO or Refeeding Syndrome presenting as a Celiac Crisis.... Here is a study about it....entitled "Refeeding syndrome in adults with celiac crisis: a case report" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5791168/ You might...
  37. Scott Adams
    I don't have an opinion on and MD vs ND, but I also just got an email from imaware, who does at home celiac blood testing kits, and they are offering $20 off through the end of today for celiac disease screening kits: https://imaware.health. So $79 for a screening, which would almost beat my co-pay...
  38. icon Posterboy reacted to a post in a topic: Weight Loss/Muscle Wasting on gluten-free Diet
  39. icon Posterboy reacted to a post in a topic: Weight Loss/Muscle Wasting on gluten-free Diet
  40. rachaelbaci
    Thank you both so much for the response! @cyclinglady @Scott Adams I think I'll go in and get tested, hopefully this would provide some answers for everything finally... I've tried in the past to have a DR look at the bumps on my hands/elbows, but by the time I actually get into the dr office...
  41. Posterboy
    Tamin8, If your Rice is is not fortified or enriched....you might have developed a Thiamine deficiency... Try Parboiling your rice....it helps make it a more nutritious rice. Here is a nice overview from Cornell Edu that explains why this is so... http://thiamine.dnr.cornell...
  42. Scott Adams started following Celiac Disease Misdiagnosed as IBS, Various symptoms - should I get tested?, Antidepressants and and 1 other
  43. Scott Adams
    Your symptoms certainly sound consistent with celiac disease and dermatitis herpetiformis (DH), which is the skin condition associated with celiac disease. @cyclinglady is right, you should request that your doctor give you a blood panel for celiac disease. You also may want to go to a dermatologist...
  44. Scott Adams
    If you are looking for a gluten-free medication try this site: http://glutenfreedrugs.com/ Sorry, but I can't recommend the type of medication you might be seeking.
  45. Scott Adams
    I've only used a bread machine a few times as a test for a product review, but the machine I did use had a detailed manual with it that included how to use it. Any chance yours has a manual that covers this in more detail?
  46. icon knitty kitty reacted to a comment: Does Vitamin D Play a Role in Celiac Disease Onset?
  47. Scott Adams
    IBS was one of the first things I got diagnosed with before they found out I had celiac disease. Once I discovered that IBS was really a description of symptoms and not a disease I continued searching for the real cause of my issues.
  48. knitty kitty
    High dose thiamine means 500 mg of thiamine a day or above. Some take 500 mg three times a day for several days, then a maintenance dose is set. Thiamine has no upper limit. It is safe. It is water soluble, any excess is flushed out in urine. At most, you may get nauseous. If so back...
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