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Parents, Friends and Loved Ones of Celiacs

Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.

7,174 topics in this forum

  1. TCA
    jerseyangel

    Megan's Gagging Isn't Any Better 1 2 3 4 36

    By TCA, Last action:
    • 882 replies
    • 88.7k views
    • jerseyangel
    • jerseyangel
  2. Gcbec

    Shocking Story 1 2 3 4 9

    By Gcbec, Last action:
    • 216 replies
    • 36.6k views
    • Gcbec
    • Gcbec
  3. concerned-mom061
    GFBetsy

    Shocking Story #2 1 2 3 4 5

    By concerned-mom061, Last action:
    • 109 replies
    • 15.5k views
    • GFBetsy
    • GFBetsy
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  4. zarfkitty
    buffettbride

    Bento Box Saves School Lunch! Onigiri Rocks! 1 2 3 4

    By zarfkitty, Last action:
    • 96 replies
    • 15.7k views
    • buffettbride
    • buffettbride
  5. Juliebove

    Getting Frustrated With Daughter! 1 2 3 4

    By Juliebove, Last action:
    • 88 replies
    • 10.5k views
    • Juliebove
    • Juliebove
  6. Ridgewalker
    arc

    Doctor Appointment Shocker 1 2 3 4

    By Ridgewalker, Last action:
    • 77 replies
    • 14k views
    • arc
    • arc
  7. EmmyLouWho?

    Anyone Turn Down A Biopsy For Their Child? 1 2 3 4

    By EmmyLouWho?, Last action:
    • 77 replies
    • 15k views
    • EmmyLouWho?
    • EmmyLouWho?
  8. azmom3
    Simply-V

    Dr. Thinks It Might Be Eosinophillic Esophagitis, Not Celiac 1 2 3 4

    By azmom3, Last action:
    • 75 replies
    • 13.8k views
    • Simply-V
    • Simply-V
  9. Slamey24
    once and again

    I Need Some Advice 1 2 3

    By Slamey24, Last action:
    • 69 replies
    • 9.9k views
    • once and again
    • once and again
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  11. wonkabar

    Sensory Integration Dysfunction And Gluten Intolerance 1 2 3

    By wonkabar, Last action:
    • 62 replies
    • 19.2k views
    • wonkabar
    • wonkabar
  12. roddi
    ms-sillyak-screwed

    How Do You Make Then Understand What It Is! 1 2 3

    By roddi, Last action:
    • 62 replies
    • 12.8k views
    • ms-sillyak-screwed
    • ms-sillyak-screwed
  13. andersonfam06
    Luvs to Scrap

    So Frustrated... 1 2 3

    By andersonfam06, Last action:
    • 59 replies
    • 7.9k views
    • Luvs to Scrap
    • Luvs to Scrap
  14. amiller1030
    Aphreal

    Ibs Vs Celiac Disease 1 2 3

    By amiller1030, Last action:
    • 58 replies
    • 31.8k views
    • Aphreal
    • Aphreal
  15. LauraW
    GraceA

    Parents Begging Not To Do Biopsy On Dd 1 2 3

    By LauraW, Last action:
    • 57 replies
    • 7.5k views
    • GraceA
    • GraceA
  16. VydorScope
    Mom2J112903

    Did Celiac Come Back? 1 2 3

    By VydorScope, Last action:
    • 57 replies
    • 6.9k views
    • Mom2J112903
    • Mom2J112903
  17. HappyPlace

    New Here And Need Help With School Policy 1 2 3

    By HappyPlace, Last action:
    • 57 replies
    • 6.6k views
    • HappyPlace
    • HappyPlace
  18. Stulos
    shadycharacter

    Desperately need help with wife and my gluten allergy. 1 2 3

    By Stulos, Last action:
    • 56 replies
    • 6.1k views
    • shadycharacter
    • shadycharacter
  19. Mommy2GlutenFreeChild

    Child Back In Hospital 1 2 3

    By Mommy2GlutenFreeChild, Last action:
    • 56 replies
    • 9.6k views
    • Mommy2GlutenFreeChild
    • Mommy2GlutenFreeChild
  20. dogear
    lau

    Explaining Gf As Lifestyle Choice. 1 2 3

    By dogear, Last action:
    • 56 replies
    • 12.8k views
    • lau
    • lau
  21. MommyOfTwinkies<3
    notme

    Need Help Please 1 2 3

    By MommyOfTwinkies<3, Last action:
    • 55 replies
    • 6.5k views
    • notme
    • notme
  22. HannahBick
    Ennis-TX

    My husband is celiac. We have 10 kids. Is it likely that any of the kids have celiac disease? 1 2 3

    By HannahBick, Last action:
    • 55 replies
    • 11.8k views
    • Ennis-TX
    • Ennis-TX
  23. Niks

    Need Advice, Please! 1 2 3

    By Niks, Last action:
    • 54 replies
    • 9.8k views
    • Niks
    • Niks
  24. heidi b
    GFinDC

    Contamination On Food Boxes 1 2 3

    By heidi b, Last action:
    • 53 replies
    • 9.4k views
    • GFinDC
    • GFinDC
  25. concerned-mom061
    key

    Can Someone Please Help?! 1 2 3

    By concerned-mom061, Last action:
    • 53 replies
    • 6.8k views
    • key
    • key
  26. LePandaRouge
    AVR1962

    People Not Taking You Seriously 1 2 3

    By LePandaRouge, Last action:
    • 52 replies
    • 22.2k views
    • AVR1962
    • AVR1962
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  • Upcoming Events

  • Posts

    • cristiana
      Have this rash forming on the back of my legs. Looking for relief outside of going to the doctor.

      By cristiana · Posted

      HI @Kirbyqueen That's great news your insurance will be kicking in soon.  Sorry to see that you have been dealing with this for six months now, but I do hope you have managed to find some relief with some of the suggestions in the meantime. Perhaps come back and let us know what the doctor says. Cristiana
    • Scott Adams
      Trying to read my lab results

      By Scott Adams · Posted

      I agree, and hopefully your doctor will contact you soon about the next step, which will likely be an endoscopy to confirm your diagnosis. Do you have celiac disease symptoms? 
    • Kirbyqueen
      Have this rash forming on the back of my legs. Looking for relief outside of going to the doctor.

      By Kirbyqueen · Posted

      Still dealing with this rash on my legs. I've eliminated ringworm (through use of topical ointments). And I also know it's not shingles, as I've never had chickenpox before and I'm still fairly young. Through a lot of online research, I'm leaning more towards dermatitis herpetiformis, eczema, or psoriasis. I've actually got a doctor's appointment in May (finally got some insurance) and I'm going to bring it up then. I'm feeling really hopeful and excited to maybe be getting some relief soon.   Big thanks to everyone for the suggestions and positive thoughts!
    • trents
      Trying to read my lab results

      By trents · Posted

      You have three celiac disease specific antibody tests that are positive: Endomysial  Antibody IGA (aka, EMA), tTG-IGA, and tTG_IGG. Furthermore, your Immunoglobulin A at 55 is low, meaning you are IGA deficient. This one is not an antibody test for celaic disease per se but a measure of "total IGA" levels and if low (yours is low) it can suppress the individual antibody scores and even cause false negatives. So, yes, it definitely looks like you have celiac disease.   Do not yet begin a gluten free diet as your physician may refer you to a GI doc for an endoscopy/biopsy of the small bowel lining for confirmation of the antibody testing. This may help:   
    • Bayb
      Trying to read my lab results

      By Bayb · Posted

      Hi, I received my labs via email yesterday and have not heard back from my doctor yet. Can anyone tell me if these results indicate I have Celiac?      Endomysial Antibody IgAPositive  Ft-Transglutaminase (tTG) IgA6  H0-3 (U/mL) - Negative 0 - 3 - Weak Positive 4 - 10 - Positive >10 - Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten-sensitive enteropathy. FImmunoglobulin A, Qn, Serum55  L87-352 (mg/dL) Ft-Transglutaminase (tTG) IgG183  H0-5 (U/mL) - Negative 0 - 5 - Weak Positive 6 - 9 - Positive >9
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