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Parents, Friends and Loved Ones of Celiacs

Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.


7,179 topics in this forum

  1. Kara'sMom
    Offthegrid
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  2. sez
    Electra
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  5. rebeckalyn79
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  6. carecare
    GFinDC
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  8. rebeckalyn79
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  9. Kara'sMom
    shayesmom
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    vanillazeis
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  12. Guhlia
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  14. bbopper
    Juliet
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  15. Kara'sMom
    mamaloca2
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  17. crittermom
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  18. Lollie
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  19. todzwife
    vanillazeis
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  20. skikat
    hayley3
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  21. Krystens mummy
    crittermom
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  22. LuchoWa
    Joyous
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  23. chlobo
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  26. truthsearcher
    crittermom
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  27. jumjum15
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  • Recent Activity

    1. - ognam replied to Tyoung's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Increasing symptoms after going gluten free

    2. - Scott Adams replied to Den Copper's topic in Gluten-Free Restaurants
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      Chili's Gluten-Free Dining Experience – What’s Your Take?

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      Tampere, Finland Celiac Disease Symposium 2025

    4. - Nicbent35 replied to Nicbent35's topic in Related Issues & Disorders
      7

      3 year old gluten intolerance?

    5. - trents replied to Nicbent35's topic in Related Issues & Disorders
      7

      3 year old gluten intolerance?


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  • Posts

    • ognam
      I had a lot of weird/random symptoms for a few months after going gluten free. But eventually they evened out and I felt SO MUCH BETTER. The person above wrote a very detailed message that looks helpful. I'd add don't forget to check for gluten in places like medicine. Advil liquigels, for example, have gluten. It's very frustrating trying to figure out if things are gluten free as us law doesn't require it to be declared. The only labeling rule is that if the product says gluten free, it must have less than 20ppm gluten.
    • Scott Adams
      You had the wrong link to the menu, so I fixed that for you 😉. Trying to eat gluten-free at Chili's is risky due to cross-contamination, even if you go with items marked gluten-free on their menu. Every person with celiac disease has a different level of sensitivity, and you've not mentioned anything about your situation in that regard. Whenever I eat out I take GliadinX (a sponsor here), but of course, the best option would be to avoid eating out. 
    • Nicbent35
      She has had problems with constipation, they actually prescribed miralax for her but I have changed some other things about her diet that seemed to have helped, so I never gave it to her..but she still doesn’t always go daily 
    • trents
      @Nicbent35, are there any other symptoms besides altered mood when your daughter gets "glutened"? Behavior like that in children often belies physical discomfort of some kind. Does she complain of stomach aches? Is she constipated?
    • Nicbent35
      Well I had a moment yesterday morning where I accidentally gave her gluten. She wanted what I was eating and I forgot and let her have a few bites of toast. It was a really bad night last night with her behavior. Will a few bites of bread influence their behavior that much or could it just be a coincidence?
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