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Parents, Friends and Loved Ones of Celiacs

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Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.

7,125 topics in this forum

  1. New Here- Help!

    • 3 replies
    • 1,439 views
  2. Question On Celiac Testing

    • 1 reply
    • 791 views
    • 17 replies
    • 3,173 views

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  4. Son Newly Diagnosed

    • 10 replies
    • 2,310 views
  5. Potty Training

    • 9 replies
    • 5,091 views
  6. Yeast Issues?

    • 4 replies
    • 1,564 views
  7. New Here

    • 1 reply
    • 795 views
  8. Son's Upcoming Blood Draw

    • 9 replies
    • 2,414 views
    • 5 replies
    • 4,281 views
    • 3 replies
    • 1,021 views
  9. Alerting Care Givers

    • 11 replies
    • 2,332 views
  10. Update On Timothy

    • 17 replies
    • 2,787 views
    • 6 replies
    • 1,391 views
    • 1 reply
    • 1,030 views
  11. Cooking For My Fiance

    • 10 replies
    • 2,210 views
  12. Daughter's Gfcf Birthday Cake

    • 7 replies
    • 3,553 views
  13. Why Is The Biopsy Necessary?

    • 17 replies
    • 3,322 views
  14. Brand New To The Celiac Way Of Life

    • 11 replies
    • 3,966 views
  15. Amandas Ct Results

    • 10 replies
    • 2,093 views
    • 0 replies
    • 935 views
  16. New-help!

    • 4 replies
    • 1,869 views
  17. When To Test Kids

    • 2 replies
    • 1,012 views
    • 1 reply
    • 914 views
  18. What Do You Think?

    • 10 replies
    • 1,791 views
  19. Oats And Oat Flour

    • 9 replies
    • 9,306 views
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  • Forum Discussions

    Thank you for this response and this is exactly what his gastro suspects. I have attached the genetic test results that show all the genes they tested for. I was under the impression ALL possible celiac genes were tested, and while most were, it appears there may be some super rare haplotypes that were not. Our gastro said he had never seen this before and neither had his colleagues. They want him...
    I think you are fooling your self when you say, "I was previously gluten intolerant but not quite celiac." Whether it's gluten intolerance or celiac disease you are talking about you don't get over either. They are life-long medical conditions baked into your genes. And gluten intolerance is often a precursor to celiac disease. What kind of testing have you had done anyway in order to arrive at these...
    Very valuable input, ravenwoodglass, as it seems to definitively answer the question of whether or not one can have celiac disease without the classic genetic profile generally associated with the disease.