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Parents, Friends and Loved Ones of Celiacs

Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.


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  • Posts

    • Nikki2777
      Hi  - Anyone have any experience with these? I bought them at Costco thinking they must be gluten-free, but now I see Natural Flavors and Spice in the ingredients. There's no Gluten Free labeling. However the Costco site and two other sites say it's gluten free. Anyone know?
    • Scott Adams
      Yes, I doubt you can find a perfectly safe restaurant--perhaps a dedicated gluten-free restaurant, but in general, very few of them exist, and they tend to be in larger cities. Super sensitive celiacs should probably just avoid eating out.
    • Scott Adams
      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:      
    • trents
      Welcome to the forum, @Kenz! Eating out is the number one threat to anyone with celiac disease. The best advice I can give is "don't"! Especially if you are supersensitive. The biggest problem isn't avoiding gluten in what you order but in how it is prepared and handled back in the kitchen where cross contamination can and does happen at multiple stages before it gets to you. You would need to have conversations with the cooks and receive assurance that your food is cooked on clean surfaces and in clean pans and handled with clean utensils, separate from anything that contains gluten.
    • Kenz
      I am new to this and have severely struggled to find places I can eat where I will not get sick. I am super sensitive to any cross contamination and gluten. I throw up, use the bathroom, get disoriented, can’t walk, can’t even lift my arms, legs, or head. It’s honestly so scary when I come in contact with gluten. I do live in a town where there aren’t many options. I live in Gadsden al. So if anyone has any recommendations of places to eat that would be so helpful . 
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