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Parents, Friends and Loved Ones of Celiacs

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Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.

7,126 topics in this forum

  1. Should I Get Other Dd's Tested?

    • 7 replies
    • 1,227 views
  2. I Feel Like People Don't Get It.

    • 7 replies
    • 1,499 views
  3. Testing Question

    • 7 replies
    • 1,269 views

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  5. Dry Mouth/sore Throat From Gluten?

    • 6 replies
    • 5,875 views
  6. Extreme Reaction To Gluten

    • 7 replies
    • 2,095 views
  7. Blood Test Results Are Negative?

    • 7 replies
    • 1,393 views
  8. Which Caugh Syrups Are Okay?

    • 1 reply
    • 1,441 views
    • 15 replies
    • 3,919 views
  9. New To This - Very Confused

    • 3 replies
    • 889 views
  10. Other Eliminations

    • 8 replies
    • 1,704 views
  11. Hoping For A Dx's

    • 12 replies
    • 1,654 views
  12. How Did You Find Out?

    • 7 replies
    • 2,924 views
  13. So What Can He Eat?

    • 9 replies
    • 1,554 views
  14. We Did The Biopsy....thank Goodness It Is Over 1 2

    • 33 replies
    • 4,859 views
  15. Daughter's Blood Work

    • 1 reply
    • 710 views
  16. My Daughter Was Just Diagnosed

    • 13 replies
    • 1,752 views
  17. Next Round Of Blood Work Is Next Week

    • 0 replies
    • 800 views
  18. Fussy Eater Question Again 1 2

    • 33 replies
    • 4,788 views
  19. ***could My Son Be Allergic To His Diapers? 1 2

    • 33 replies
    • 17,309 views
  20. Not Sure What To Think Of Test Results

    • 10 replies
    • 1,350 views
  21. About Aches And Pains

    • 1 reply
    • 1,836 views
    • 8 replies
    • 1,821 views
    • 5 replies
    • 1,766 views
  22. How Long For Your Kids React To Gluten?

    • 8 replies
    • 1,613 views
  23. Tyler's Test Results

    • 12 replies
    • 1,384 views
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  • Forum Discussions

    Definitely get your doctor’s opinion on this, but give. everything you’ve shared I thing you’ve got two kids who need to be gluten-free. Be sure to share the study on rates of celiac disease among families with your doctor. They may not have the latest info on this.
    Doesn't sound implausible or arrogant at all. I'm almost 10 years in to an endless series of doctors (of varying specialties and levels of competence) leading me around in circles, unwilling to admit they don't know everything...and somehow letting me know there's no way to know what's wrong me, at the same time. Sadly it took me almost all this time to learn how to start asserting myself with these...
    Hi KMS83.  You might ask your doctor for an updated TTG blood test which shows the level of gluten antibodies in your system.  If your gluten antibodies are still high now, a year and a half after your initial diagnosis, that could be an indicator that you are still getting regularly exposed to gluten, whether directly or indirectly (via cross-contamination). Also, my personal advice i...