Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Parents, Friends and Loved Ones of Celiacs

Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.


7,178 topics in this forum

  1. chrissy
    Guest
    • 16 replies
    • 3.1k views
  2. TCA
    lisabp
    • 13 replies
    • 2.1k views
  3. celiacsmom
    Fiddle-Faddle
    • 15 replies
    • 2.4k views

  4. Celiac.com Sponsor (A8):
    Celiac.com Sponsor (A8):



    Celiac.com Sponsor (A8-M):



  5. Laura--G
    gromer
    • 12 replies
    • 2.2k views
  6. momothree
    TCA
    • 10 replies
    • 1.8k views
  7. jaimi alderson
    marja
    • 4 replies
    • 1.5k views
  8. Guest nini
    Guest
    • 7 replies
    • 1.8k views
  9. misgiss
    shayesmom
    • 4 replies
    • 1.7k views
  10. lilysma
    KayJay
    • 14 replies
    • 2.5k views

  11. Celiac.com Sponsor (A10):
    Celiac.com Sponsor (A10):

  12. Guest DONNAJ
    JakeARoosMommy
    • 6 replies
    • 1.7k views
  13. Maureen73
    aikiducky
    • 8 replies
    • 3.1k views
  14. jaimi alderson
    jerseyangel
    • 4 replies
    • 1.7k views
  15. jaimi alderson
    lonewolf
    • 12 replies
    • 2.9k views
  16. 2Boys4Me
    penguin
    • 8 replies
    • 2.2k views
  17. chrissy
    JakeARoosMommy
    • 3 replies
    • 1.5k views
  18. jaimi alderson
    VydorScope
    • 22 replies
    • 3.3k views
  19. happy4dolphins
    JakeARoosMommy
    • 8 replies
    • 2.3k views
  20. Irishlass
    Guest
    • 6 replies
    • 1.6k views
  21. BamBam
    VegasCeliacBuckeye
    • 2 replies
    • 2.4k views
  22. Guest DONNAJ
    mmaccartney
    • 3 replies
    • 1.5k views
  23. prinsessa
    Carriefaith
    • 2 replies
    • 1.3k views
  24. mrsnj91
    • 6 replies
    • 2k views
  25. mart
    ladyx
    • 30 replies
    • 8.3k views
  26. Guest mother in law
    tammy

    New And Confused

    • 10 replies
    • 3.6k views
  27. StrongerToday
    • 0 replies
    • 1.4k views
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Chris Tonelli's topic in Related Issues & Disorders
      3

      Rampant decay caused by Celiac’s disease

    2. - Wheatwacked replied to Zoe26's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Toddler gluten challenge and vomiting

    3. - knitty kitty replied to AmandaA's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      20

      New and Frustrated

    4. - Barrie9 replied to Sarah8793's topic in Coping with Celiac Disease
      23

      Anyone Have Dumping Syndrome Related To Celiac Disease?

    5. - knitty kitty replied to Zoe26's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Toddler gluten challenge and vomiting


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      124,994
    • Most Online (within 30 mins)
      7,748

    Xuan Nguyen
    Newest Member
    Xuan Nguyen
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.8k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      She should be tested for 25(OH)D vitamin D blood level.  Most newly diagnosed with Celiac Disease are disturbingly low.  Malabsorption syndrome causes poor dietary absorption of vitamin D orally and super high sunscreens block skin production.  Hypervitminosis D which nearly every article written warns of, is a very rare disease. Many these days drink bottled water so do not get the benefit of floridation.  I had lots of cavities as a kid and when they floridated the water I stopped getting cavities.  Of course in those days all we had for sunscreen was baby oil and that "don't be a paleface" stuff, so we actually got vitamin D from the sun.  Celiac Disease uses a lot of vitamin D to control the immune system response to gluten, but we don't get enough. Iodine can help prevent tooth decay and gum disease, and may be more effective when used in combination with fluoride.  Get her medium urinary iodine concentration (Muic) tested for iodine intake deficiency.  In the last 30 years iodine levels have fallen by 50% in the United States.
    • Wheatwacked
      When my son was diagnosed with Celiac Disease in 1976 as soon as he was weaned, his doctor insisted that we feed him only Nutramigen it was the only hyperallergenic with complete nutrition.  Enfamil and Similac were not acceptable if we wanted him to get healthy.  For one thing they had no  choline back then. Given the lawsuits against them now, he was right. He spent about 6 months on the Nutramigen formula exclusively and weaned off of that to a gluten free diet and thrived. He also predicted that by kindergarden the teacher would beg us to put him on Ritalin, which he took all the way through High School.  
    • knitty kitty
      Check the label and tell us what kind of B12 is in your gummies.   If it's Cyanocobalamin, switch to a methylated (active) form of B12.   Some of us need to take the active form of B12 because our bodies have problems turning other forms of B12 into the active methylated form due to MTHFR genetic variations.   Take a B Complex supplement, too, because B12 needs the other B vitamins to function properly.
    • Barrie9
      Hi! I've been gluten free for years. No surgery,  but have dumping syndrome symptoms,  particularly if I've eaten a lot of FODMAP foods, or xanthan gum, or any other gums that are in many gluten free foods. You may want to stop eating foods with gums and see if that helps!
    • knitty kitty
      @Zoe26, Has he been checked for vitamin deficiencies?    Is he pulling up to standing position?  Does he crawl? I ask because delayed development can be associated with nutritional deficiencies.   Having a hoarse low voice is symptomatic of Thiamine deficiency in children and adults.  Complete loss of voice is possible, too.   "He's extremely lethargic, barely moving."  This statement really worries me.  Thiamine deficiency can cause fatigue and loss of energy like this.  Thiamine deficiency can be serious in small children.  Do mention this to the doctor. It's horrible you and your son had to wait so long for an appointment.
×
×
  • Create New...