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Parents, Friends and Loved Ones of Celiacs

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Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.

7,121 topics in this forum

  1. Can My Child Carry Medication?

    • 6 replies
    • 2,295 views
  2. Ice Cream Truck/snack Bars?

    • 8 replies
    • 4,867 views
  3. Story Land Nh Area Restaurants

    • 3 replies
    • 3,926 views

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  5. Kids Medications

    • 3 replies
    • 2,151 views
  6. New Roommate Has Celiac

    • 8 replies
    • 3,650 views
  7. Anxiety?

    • 3 replies
    • 1,303 views
  8. I Hate My Pediatric Gi...

    • 22 replies
    • 2,445 views
  9. When Did You Notice A Change

    • 6 replies
    • 1,643 views
    • 7 replies
    • 1,683 views
  10. Vent/feeling Frustrated In General

    • 9 replies
    • 1,803 views
  11. Communicating With Camp Director

    • 10 replies
    • 1,400 views
  12. New To Celiac

    • 5 replies
    • 1,444 views
  13. Choking On Food

    • 10 replies
    • 2,657 views
    • 5 replies
    • 4,121 views
  14. Need Low Fat Snack Idea's

    • 17 replies
    • 2,743 views
    • 2 replies
    • 1,364 views
    • 3 replies
    • 1,354 views
  15. School Holiday Fun

    • 0 replies
    • 993 views
    • 4 replies
    • 1,617 views
  16. Traveling... Ugh

    • 7 replies
    • 1,293 views
  17. Pediatric Use Of Miralax

    • 20 replies
    • 11,275 views
  18. Well, We Got Our Prometheus Results...

    • 6 replies
    • 1,559 views
  19. My Son's Story

    • 7 replies
    • 1,577 views
  20. Another Step Backward

    • 7 replies
    • 1,443 views
  21. 5 Year Old -- Does She Need A Biopsy? 1 2

    • 32 replies
    • 4,432 views
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  • Forum Discussions

    Each manufacturer of the test has their own range for what is positive.  Do you know the normal range for your test?   Also, some people with celiac disease have normal transglutaminase antibodies but high deamidated gliadin peptide antibodies.  Not all doctors order the test for the latter.
    I'm not sure going back to eating gluten for two weeks before the endoscopy is a long enough period. Was that per GI doc instructions?
    I have had a celiac gene test and was category 4. I went gluten free after they told me my test for celiac was "positive" on the phone but then I had some other GI issues and the specialist I saw wanted to do an endoscopy. After not having any gluten for maybe 9 or 10 months, I ate gluten for 2 weeks and then did an endoscopy. I had a ton of terrible bad burning pain after eating it, I sat with a...

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