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Parents, Friends and Loved Ones of Celiacs

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Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.

7,121 topics in this forum

  1. Non-Celiac Gluten Free Withdrawals?

    • 2 replies
    • 2,149 views
  2. Help Me!

    • 6 replies
    • 1,556 views
  3. Should I Pursue Testing?

    • 3 replies
    • 1,299 views

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    • 19 replies
    • 11,127 views
    • 7 replies
    • 1,420 views
  5. Why Do A Biopsy?

    • 6 replies
    • 1,892 views
  6. 504 Plan, What Do You Ask For?

    • 2 replies
    • 1,633 views
    • 3 replies
    • 973 views
  7. Help With Test Results!?

    • 9 replies
    • 1,765 views
  8. Toddler- Undiagnosed But Suffering

    • 11 replies
    • 2,168 views
  9. Just A Feel Good Note :)

    • 3 replies
    • 993 views
  10. Name Of Test

    • 1 reply
    • 1,140 views
  11. Soy Or Casein/lactose Intolerance

    • 7 replies
    • 1,874 views
  12. Glutened At School

    • 14 replies
    • 2,293 views
    • 2 replies
    • 1,872 views
    • 11 replies
    • 3,372 views
  13. Labs To Request?

    • 1 reply
    • 1,079 views
    • 6 replies
    • 1,300 views
  14. A Reward Of Gluten And Lactose

    • 15 replies
    • 2,201 views
    • 10 replies
    • 16,481 views
  15. Grandson Has Been Tested

    • 14 replies
    • 3,021 views
  16. Toddler Just Diagnosed Today

    • 13 replies
    • 1,768 views
    • 1 reply
    • 1,233 views
    • 1 reply
    • 1,258 views
    • 10 replies
    • 1,505 views
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    Each manufacturer of the test has their own range for what is positive.  Do you know the normal range for your test?   Also, some people with celiac disease have normal transglutaminase antibodies but high deamidated gliadin peptide antibodies.  Not all doctors order the test for the latter.
    I'm not sure going back to eating gluten for two weeks before the endoscopy is a long enough period. Was that per GI doc instructions?
    I have had a celiac gene test and was category 4. I went gluten free after they told me my test for celiac was "positive" on the phone but then I had some other GI issues and the specialist I saw wanted to do an endoscopy. After not having any gluten for maybe 9 or 10 months, I ate gluten for 2 weeks and then did an endoscopy. I had a ton of terrible bad burning pain after eating it, I sat with a...

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