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Parents, Friends and Loved Ones of Celiacs
Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.
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Recent Activity
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- BadHobit replied to BadHobit's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms10Help! I have to eat gluten :(
H. Pylori is negative. However, I was treated twice for this infection. All of my unknown complaints started with pneumonia and were reinforced with Covid-19. I currently have thyroid disease. However, my thyroid problem receded with synthetic hormones and was almost solved. My body has been on alert for the last year. Especially skin, intestines, eyes. -
- BadHobit replied to BadHobit's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms10
Help! I have to eat gluten :(
It happened like you said, the dermatologist prescribed the creams. He told me to go to gastroenterology and left the door open for immunology. I'm going to immunology because my throat swelled up last yesterday at night for no reason and suddenly I've developed asthma. And I don't have that. I gave up gluten so quickly that I couldn't even start. I am going... -
- Eldene commented on Scott Adams's article in Autumn 2024 Issue1Boosting Satiety with Healthy Fats in a Gluten-Free Diet
Thanks Scott! I eat plant-based, use healthy oils, but cannot afford luxuries like nuts, seeds and more than 2 Avos..... -
- Eldene replied to Eldene's topic in Related Issues & Disorders3
Hunger
I think I have found a partial answer, too long to quote here. Polyphagia, depression, stress, loss of nutrients due to damaged villi. Tx all. -
- knitty kitty replied to cjjones5969's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease1Problems
@cjjones5969, Unintended weight loss is a symptom of Thiamine deficiency. Gluten free processed foods are not required to be enriched with vitamins like gluten containing flours and products made with them. Switching to a gluten free diet can precipitate vitamin deficiencies. Celiac Disease damages the small intestine where vitamins like Thiamine...
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Posts
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H. Pylori is negative. However, I was treated twice for this infection. All of my unknown complaints started with pneumonia and were reinforced with Covid-19. I currently have thyroid disease. However, my thyroid problem receded with synthetic hormones and was almost solved. My body has been on alert for the last year. Especially skin, intestines, eyes.
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It happened like you said, the dermatologist prescribed the creams. He told me to go to gastroenterology and left the door open for immunology. I'm going to immunology because my throat swelled up last yesterday at night for no reason and suddenly I've developed asthma. And I don't have that. I gave up gluten so quickly that I couldn't even start. I am going to have a gene test. In my country, gluten-free food is costly but with a coeliac diagnosis, we can buy it for half the price. That's why I always eat potatoes, bananas and rice.
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By knitty kitty · Posted
@cjjones5969, Unintended weight loss is a symptom of Thiamine deficiency. Gluten free processed foods are not required to be enriched with vitamins like gluten containing flours and products made with them. Switching to a gluten free diet can precipitate vitamin deficiencies. Celiac Disease damages the small intestine where vitamins like Thiamine and the other B vitamins are absorbed. B Vitamins cannot be stored for long in the body, so we need to consume sufficient quantities every day. Thiamine can be stored the least amount of time (21days), and because our bodies require so much of it, thiamine runs out first. Unexplained weight loss is a symptom of Thiamine deficiency disorder. Please discuss supplementation with B vitamins with your doctor and nutritionist. B vitamins are water soluble and any excess is easily excreted if not needed. Thiamine is nontoxic and safe. Benfotiamine, a form of Thiamine, has been scientifically shown to promote intestinal healing. Blood tests for B vitamins are not accurate. The best way to see if you're low in B vitamins is to take them and look for improvement in health. Thiamine works with magnesium to make life sustaining enzymes. Magnesium is also needed to keep calcium in the bones. Magnesium should also be supplemented when taking Calcium. Hope this helps! Keep us posted on your progress! -
By knitty kitty · Posted
Welcome to the forum, @cjjones5969 Are you eating much processed gluten free facsimile foods? Keep in mind that gluten free processed foods, like gluten free breads, pasta and cookies, are not required to be enriched with vitamins and minerals. Flours containing gluten are required to be enriched with vitamins and minerals lost in processing. Eating a diet high in carbohydrates requires additional Thiamine and other B vitamins to turn the carbohydrates into energy. Early Thiamine deficiency can manifest as "Gastrointestinal Beriberi" which results in abdominal pain, bloating and gastroparesis. The Gluten Free diet can be low in essential nutrients, like the B vitamins, Vitamin D, and minerals like iron. Talk to your doctor and nutritionist about supplementing with B vitamins which boosts the absorption of these essential nutrients. @A.C.123, I agree, iron supplements can cause constipation. Have you tried taking iron supplements at bedtime, with a Vitamin C supplement? Taking mine this way helps immensely.
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