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Parents, Friends and Loved Ones of Celiacs
Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.
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Recent Activity
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- RDLiberty commented on Scott Adams's article in Additional Concerns3Hidden Gluten and Soy in Medications: What Patients with Allergies and Celiac Disease Need to Know (+Video)
If this is an issue listed in Portugal, I'm assuming it shouldn't be an issue in the States? I've been careful about checking my medications thru the government informational sites and my doctor wasn't concerned, but just wanting to be sure. (I don't have a soy allergy, so that's not a concern anyway), and the starches were all corn or rice in my meds...- allergy
- celiac disease
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- JD-New to Celiac posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease0Anyone understand genetic testing
Although diagnosed with celiac and dermatitis herpetiformis, I was curious about the celiac genetics and had that testing done on my own. Unfortunately, the lab does not explain the results and any doctor I have asked said I would need to see someone specializing in genetics. I was hoping someone out there might help me understand. Here is what came back... -
- JD-New to Celiac replied to JD-New to Celiac's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3
What should tTG IgA be if Gluten Free?
Understanding that normal is <15, I started off with 250+, then using the same lab it took two years to get to 11, the last test was 3. So, it jumped back up for some reason which is why I suspected gluten in my diet somewhere. I do not do dairy, eggs, oats, or soy. I am vegan and gluten free, and take numerous supplements with the help of this forum. -
- Scott Adams posted a topic in Super Sensitive People0Refractory Celiac Disease Caused by Rogue Immune Cells
I just want to post this new study here--it seems that for those who don't recover on a gluten-free diet may be in this group: https://www.science.org/doi/10.1126/scitranslmed.adp6812 -
- Scott Adams posted a topic in Food Intolerance & Leaky Gut0
Additional Food Intolerances
Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The...
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By JD-New to Celiac · Posted
Although diagnosed with celiac and dermatitis herpetiformis, I was curious about the celiac genetics and had that testing done on my own. Unfortunately, the lab does not explain the results and any doctor I have asked said I would need to see someone specializing in genetics. I was hoping someone out there might help me understand. Here is what came back and although I understand the HLA DQ2 and HLA DQ8, I wasn't sure what the variants mean and why they repeat twice. Someone said it was a double marker meaning both of my parents gave me copies. I also read having this combination makes my celiac potentially much worse. HLA DQ2 - Positive | HLA DQ8 - Negative HLA Variants Detected: HLA DQA1*05 and again HLA DQA1*05 HLA DQB1*0201 and again HLA DQB1*0201 -
By JD-New to Celiac · Posted
Understanding that normal is <15, I started off with 250+, then using the same lab it took two years to get to 11, the last test was 3. So, it jumped back up for some reason which is why I suspected gluten in my diet somewhere. I do not do dairy, eggs, oats, or soy. I am vegan and gluten free, and take numerous supplements with the help of this forum. -
By Scott Adams · Posted
I just want to post this new study here--it seems that for those who don't recover on a gluten-free diet may be in this group: https://www.science.org/doi/10.1126/scitranslmed.adp6812 -
By Scott Adams · Posted
Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: -
By Scott Adams · Posted
It does seem like brushing would be needed, and like anything else, a little daily exposure can lead to serious issues for celiacs.
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