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Parents, Friends and Loved Ones of Celiacs

Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.


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    • Scott Adams
      For what it's worth, at the time of my celiac disease diagnosis I was also diagnosed with H. Pylori and treated for it with antibiotics. The throat swelling sounds like an allergy that may not be associated with celiac disease--if you can recall the foods you ate before this reaction it might help you track down the culprit, but if you can't it might make sense for you to keep a food diary so that you can figure this out. Also, if going through a gluten challenge to get a celiac disease diagnosis will allow you to get gluten-free food at half price, it would be worth it, but just be sure that you don't also have a wheat allergy that is causing your throat to swell, as you could have both an allergy and celiac disease. PS - You should bring up the throat swelling to your doctor, as they may want to have you do allergy tests.
    • Scott Adams
      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
    • BadHobit
      H. Pylori is negative. However, I was treated twice for this infection. All of my unknown complaints started with pneumonia and were reinforced with Covid-19. I currently have thyroid disease. However, my thyroid problem receded with synthetic hormones and was almost solved. My body has been on alert for the last year. Especially skin, intestines, eyes.
    • BadHobit
      It happened like you said, the dermatologist prescribed the creams. He told me to go to gastroenterology and left the door open for immunology. I'm going to immunology because my throat swelled up last yesterday at night for no reason and suddenly I've developed asthma. And I don't have that. I gave up gluten so quickly that I couldn't even start. I am going to have a gene test. In my country, gluten-free food is costly but with a coeliac diagnosis, we can buy it for half the price. That's why I always eat potatoes, bananas and rice.
    • Eldene
      I think I have found a partial answer, too long to quote here. Polyphagia, depression, stress, loss of nutrients due to damaged villi. Tx all.
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