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Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.

18,913 topics in this forum

  1. LOWNskater52

    I Suspect I Am Gluten Intolerant. Any Advice? 1 2 3 4 7

    By LOWNskater52, Last action:
    • 164 replies
    • 18.2k views
    • LOWNskater52
    • LOWNskater52
  2. Aprilelayne
    weluvgators

    18M Old - With Genetics Against Her 1 2 3 4 6

    By Aprilelayne, Last action:
    • 137 replies
    • 17.7k views
    • weluvgators
    • weluvgators
  3. kswan08

    Losing Hope... 1 2 3 4 6

    By kswan08, Last action:
    • 135 replies
    • 25k views
    • kswan08
    • kswan08
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  4. powerofpositivethinking

    Need Help With Tests Results Please 1 2 3 4 6

    By powerofpositivethinking, Last action:
    • 131 replies
    • 33.6k views
    • powerofpositivethinking
    • powerofpositivethinking
  5. sonja69

    Devastated! Everything's Fine With Me? 1 2 3 4 6

    By sonja69, Last action:
    • 127 replies
    • 30.1k views
    • sonja69
    • sonja69
  6. no-more-muffins
    IrishHeart

    How Many People Are Actually Self-diagnosed? 1 2 3 4 5

    By no-more-muffins, Last action:
    • 123 replies
    • 39.1k views
    • IrishHeart
    • IrishHeart
  7. researchmomma

    Yet Another Doctor's Opinion 1 2 3 4 5

    By researchmomma, Last action:
    • 122 replies
    • 12.7k views
    • researchmomma
    • researchmomma
  8. NeverLikedRollercoasters

    Been severely let down and at my wits' end 1 2 3 4 5

    By NeverLikedRollercoasters, Last action:
    • 102 replies
    • 18.1k views
    • NeverLikedRollercoasters
    • NeverLikedRollercoasters
  9. zebaldwin
    Marz

    In Desperate Need Of Some Positivity :/ 1 2 3 4

    By zebaldwin, Last action:
    • 91 replies
    • 9.4k views
    • Marz
    • Marz
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  11. dwhite42

    Help With Test Results 1 2 3 4

    By dwhite42, Last action:
    • 87 replies
    • 14.2k views
    • dwhite42
    • dwhite42
  12. ThomasMom
    RiceGuy

    Nice Eyelashes! 1 2 3 4

    By ThomasMom, Last action:
    • 86 replies
    • 32.5k views
    • RiceGuy
    • RiceGuy
  13. confusedks
    little d

    Enterolab 1 2 3 4

    By confusedks, Last action:
    • 85 replies
    • 22k views
    • little d
    • little d
  14. trcn
    Siga

    Hla-dq 1,1 (subtype 6,6) 1 2 3 4

    By trcn, Last action:
    • 81 replies
    • 16.1k views
    • Siga
    • Siga
  15. researchmomma

    Could It Be? 1 2 3 4

    By researchmomma, Last action:
    • 80 replies
    • 10.3k views
    • researchmomma
    • researchmomma
  16. frankenstein
    Stumplet

    Not Celiac.....right? 1 2 3 4

    By frankenstein, Last action:
    • 78 replies
    • 5.1k views
    • Stumplet
    • Stumplet
  17. OrangesAndMelons

    Doctor ran test almost on a whim — tTG-IgA 128?! 1 2 3

    By OrangesAndMelons, Last action:
    • 74 replies
    • 15.2k views
    • OrangesAndMelons
    • OrangesAndMelons
  18. WhatsTheDealiac
    trents

    Do I Have Celiac And Best Test 1 2 3

    By WhatsTheDealiac, Last action:
    • 73 replies
    • 9.7k views
    • trents
    • trents
  19. rcheltrvel
    nvsmom

    Over 25 Years Of Chasing A Diagnosis, Please Help, Elevated Ttg Iga 1 2 3

    By rcheltrvel, Last action:
    • 71 replies
    • 13.7k views
    • nvsmom
    • nvsmom
  20. concernedlady
    kalo

    Enterolab 1 2 3

    By concernedlady, Last action:
    • 71 replies
    • 17.3k views
    • kalo
    • kalo
  21. JerryK
    Ursa Major

    Gluten Withdrawal 1 2 3

    By JerryK, Last action:
    • 68 replies
    • 21.1k views
    • Ursa Major
    • Ursa Major
  22. deanna1ynne

    Interpreting test results 1 2 3

    By deanna1ynne, Last action:
    • 67 replies
    • 9.7k views
    • deanna1ynne
    • deanna1ynne
  23. Fenrir

    Possible Celiac? 1 2 3

    By Fenrir, Last action:
    • 66 replies
    • 8.3k views
    • Fenrir
    • Fenrir
  24. fozbery
    mushroom

    Advice About My Gasroscopy Please.... 1 2 3

    By fozbery, Last action:
    • 65 replies
    • 8.8k views
    • mushroom
    • mushroom
  25. Lovelycherry
    camprunner

    Fingerprints And Celiac Disease/gluten Intolerance 1 2 3

    By Lovelycherry, Last action:
    • 61 replies
    • 36.4k views
    • camprunner
    • camprunner
  26. GalaxyDuster
    Jmg

    Overwhelmed by This Possibility 1 2 3

    By GalaxyDuster, Last action:
    • 60 replies
    • 10.1k views
    • Jmg
    • Jmg
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  • Posts

    • Aussienae
      Constant low back, abdominal and pelvic pain!

      By Aussienae · Posted

      Mine is definitely triggered by inflammation and stress! I do also have arthritis in my spine, but the pain is more in my pelvic area. Im sure i have other food intolerances or other autoimmune isues but the more I focus on it and see doctor after doctor, it just gets worse.  Best thing is get of Gluten! (I also avoid lactose). Try to limit stress and anything that causes inflammation in your body.
    • ButWhatCanIEat
      Constant low back, abdominal and pelvic pain!

      By ButWhatCanIEat · Posted

      Good morning,   I got an email about replies to this post. Some of my doctors had blamed a slipped disc for the pain I had and that contributes, but after meeting with a gastroenterologist AGAIN and trying some lifestyle modifications, I found out I have IBS and can't tolerate corn or excessive fructose to any degree. Cutting out corn AFTER having cut out all gluten containing products was a real pain but I feel much better now!
    • trents
      Isolated DPG-Iga

      By trents · Posted

      So, I contacted Scott Adams, the author of that article and also the creator/admin of this website, and pointed out to him the need to clarify the information in the paragraph in question. He has now updated the paragraph and it is clear that the DGP-IGA does serve the purpose of circumventing the false negatives that IGA deficiencies can generate in the tTG-IGA antibody test.
    • knitty kitty
      Dehydration, dry skin and full body tingling when overheating

      By knitty kitty · Posted

      Here's a link... Thiamine Deficiency Causes Intracellular Potassium Wasting https://www.hormonesmatter.com/thiamine-deficiency-causes-intracellular-potassium-wasting/
    • Soleihey
      Lymph nodes

      By Soleihey · Posted

      Has anyone experimenced enlarged lymph nodes with celiac? Both in the neck and groin area. Imaging of both areas have said that lymph nodes are reactive in nature. However, they have been present for months and just wondering how long this may take to go down. Been gluten-free for about two months. Blood counts are normal.
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