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Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.

18,914 topics in this forum

  1. normagain
    trents

    Confused about endoscopy preparation

    By normagain, Last action:
    • 10 replies
    • 1.6k views
    • trents
    • trents
  2. alissar
    jmichelle

    Puffy/swollen Eyelids

    By alissar, Last action:
    • 21 replies
    • 40.3k views
    • jmichelle
    • jmichelle
  3. eeanderson898
    Scott Adams

    All labs normal range except DGP lab

    By eeanderson898, Last action:
    • 4 replies
    • 765 views
    • Scott Adams
    • Scott Adams
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  4. Roseirish
    Scott Adams

    Immunoglobulins test result

    By Roseirish, Last action:
    • 5 replies
    • 701 views
    • Scott Adams
    • Scott Adams
  5. Touche

    Diagnosis using celiac screener while gluten free

    By Touche, Last action:
    • 5 replies
    • 731 views
    • Touche
    • Touche
  6. Rachel SA
    trents

    Seronegative celiac vs gluten intolerance?

    By Rachel SA, Last action:
    • 7 replies
    • 1k views
    • trents
    • trents
  7. Therockfrog
    trents

    Tingling in feet and scalp

    By Therockfrog, Last action:
    • 4 replies
    • 901 views
    • trents
    • trents
  8. KathrynA

    What next?

    By KathrynA, Last action:
    • 4 replies
    • 834 views
    • KathrynA
    • KathrynA
  9. teya
    Scott Adams

    My Doctor Ordered IgE ATTG

    By teya, Last action:
    • 3 replies
    • 691 views
    • Scott Adams
    • Scott Adams
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  11. Sunflowers06
    knitty kitty

    New symptoms after re-introducing gluten?

    By Sunflowers06, Last action:
    • 3 replies
    • 1.1k views
    • knitty kitty
    • knitty kitty
  12. LeahMc
    knitty kitty

    Blood and endoscopy results

    By LeahMc, Last action:
    • 7 replies
    • 892 views
    • knitty kitty
    • knitty kitty
  13. Hannah2907
    Scott Adams

    Allergy test results

    By Hannah2907, Last action:
    • 5 replies
    • 943 views
    • Scott Adams
    • Scott Adams
  14. JustGemi

    SCARED: What Do These Test Results Mean?

    By JustGemi, Last action:
    • 8 replies
    • 861 views
    • JustGemi
    • JustGemi
  15. RILEYW
    Scott Adams

    I don’t have a diagnosis but I’m pretty positive I have celiac and have ongoing GI Problems

    By RILEYW, Last action:
    • 11 replies
    • 1.5k views
    • Scott Adams
    • Scott Adams
  16. Hannah24
    JustGemi

    Negative Test but I have All the Symptoms!

    By Hannah24, Last action:
    • 9 replies
    • 1.2k views
    • JustGemi
    • JustGemi
  17. Rhonda H
    Scott Adams

    Biopsy results from endoscopy show evidence of celiac disease and lab work results in a weak positive TT IgA result of 4

    By Rhonda H, Last action:
    • 5 replies
    • 1.4k views
    • Scott Adams
    • Scott Adams
  18. Kaylee G
    knitty kitty

    Weak Positives for every marker- celiac or not?

    By Kaylee G, Last action:
    • 7 replies
    • 1.1k views
    • knitty kitty
    • knitty kitty
  19. awright24
    Scott Adams

    Gastroscopy??

    By awright24, Last action:
    • 2 replies
    • 1.3k views
    • Scott Adams
    • Scott Adams
  20. mack4m
    CatherineWang

    negative dermatitis herpetiformis skin biopsy

    By mack4m, Last action:
    • 14 replies
    • 1.5k views
    • CatherineWang
    • CatherineWang
  21. Rebeccaj
    Scott Adams

    Uncertain diagnosis

    By Rebeccaj, Last action:
    • 1 reply
    • 1.2k views
    • Scott Adams
    • Scott Adams
  22. Mlsilva
    trents

    Confused lab results

    By Mlsilva, Last action:
    • 3 replies
    • 1.1k views
    • trents
    • trents
  23. Sunflowers06
    Scott Adams

    Negative bloodwork but unsure next steps

    By Sunflowers06, Last action:
    • 6 replies
    • 2.2k views
    • Scott Adams
    • Scott Adams
  24. Daisy23

    Week 6 of eating gluten

    By Daisy23, Last action:
    • 6 replies
    • 1.3k views
    • Daisy23
    • Daisy23
  25. Lrgthrcl
    knitty kitty

    Low ig but normal ttg. But the more I learn about Coeliac the more it would explain my daughters physical and behavioural symptoms.

    By Lrgthrcl, Last action:
    • 8 replies
    • 1.9k views
    • knitty kitty
    • knitty kitty
  26. DMulder47
    knitty kitty

    Weird celiac symptoms

    By DMulder47, Last action:
    • 14 replies
    • 2.4k views
    • knitty kitty
    • knitty kitty

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  • Recent Activity

    1. Bayb
      - Bayb replied to Bayb's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Trying to read my lab results

      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep...
    2. Aussienae
      - Aussienae replied to Aussienae's topic in Coping with Celiac Disease
      65

      Constant low back, abdominal and pelvic pain!

      I agree christina, there is definitely many contributing factors! I have the pain today, my pelvis, hips and thighs ache! No idea why. But i have been sitting at work for 3 days so im thinking its my back. This disease is very mysterious (and frustrating) but not always to blame for every pain.
    3. trents
      - trents replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

      "her stool study showed she had extreme reactions to everything achievement on it long course of microbials to treat that." The wording of this part of the sentence does not make any sense at all. I don't mean to insult you, but is English your first language? This part of the sentence sounds like it was generated by translation software.
    4. trents
      - trents replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

      What kind of stool test was done? Can you be more specific?
    5. mishyj
      - mishyj replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
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  • Posts

    • Bayb
      Trying to read my lab results

      By Bayb · Posted

      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep searching for a cause? 
    • Aussienae
      Constant low back, abdominal and pelvic pain!

      By Aussienae · Posted

      I agree christina, there is definitely many contributing factors! I have the pain today, my pelvis, hips and thighs ache! No idea why. But i have been sitting at work for 3 days so im thinking its my back. This disease is very mysterious (and frustrating) but not always to blame for every pain. 
    • trents
      Why?

      By trents · Posted

      "her stool study showed she had extreme reactions to everything achievement on it long course of microbials to treat that." The wording of this part of the sentence does not make any sense at all. I don't mean to insult you, but is English your first language? This part of the sentence sounds like it was generated by translation software.
    • trents
      Why?

      By trents · Posted

      What kind of stool test was done? Can you be more specific? 
    • mishyj
      Why?

      By mishyj · Posted

      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
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