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Celiac Disease Pre-Diagnosis, Testing & Symptoms

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If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.

17,691 topics in this forum

  1. GI diagnosed without biopsy

    • 6 replies
    • 634 views
  2. Time from eating gluten until symptoms come?

    • 9 replies
    • 948 views
    • 0 replies
    • 175 views

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  4. Rotting Teeth

    • 2 replies
    • 487 views
  5. Gluten Free Prior Endoscopy

    • 5 replies
    • 459 views
  6. Unexplained symptoms- celiac disease?

    • 3 replies
    • 376 views
  7. Neagtive result on Gluten free diet

    • 3 replies
    • 301 views
  8. Biopsy results over the phone

    • 20 replies
    • 1,864 views
  9. endoscopy shows mild damage + high tTG IgG

    • 12 replies
    • 1,056 views
    • 102 replies
    • 10,783 views
  10. To biopsy or not?

    • 6 replies
    • 682 views
    • 1 reply
    • 292 views
    • 6 replies
    • 504 views
  11. Symptoms & False negative result

    • 2 replies
    • 339 views
  12. My nightshade allergy may be celiac.. :-( 1 2

    • 28 replies
    • 3,196 views
  13. TGG IgA >100

    • 10 replies
    • 1,208 views
  14. Should I get the biopsy?

    • 4 replies
    • 361 views
    • 3 replies
    • 334 views
    • 11 replies
    • 885 views
  15. Symptoms for 3 years.

    • 17 replies
    • 1,293 views
  16. Is This Silent Celiac?? 1 2

    • 25 replies
    • 1,712 views
  17. Too many tests and no answers

    • 2 replies
    • 331 views
  18. Help with blood results please

    • 6 replies
    • 754 views
  19. Endoscopy

    • 6 replies
    • 832 views
  20. Where is your pain?

    • 1 reply
    • 484 views
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  • Forum Discussions

    Yogajc, The most accurate test is the erythrocyte transketolase test used to determine how much thiamine has been used by your body.   https://www.hormonesmatter.com/thiamine-deficiency-testing-understanding-labs/ Blood tests for vitamins aren't always accurate because vitamins are used inside cells.  The body likes to keep a certain quantity of vitamins in the blood stream to provide im...
    This article may be helpful, but be sure not to go gluten-free until you find out whether or not your doctor wants you to do a biopsy to confirm the diagnosis:  
    You DGP results, which are the best tests available, are high positive, so it looks like you likely have celiac disease. Many doctors are diagnosing celiac disease via blood tests alone, however, your doctor may also want you to do a endoscope/biopsy to confirm it. Normally you need to keep eating gluten until that part is finished, so be sure to consult with your doctor regarding their interpretation...