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Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.

19,061 topics in this forum

  1. Iron Jack Kidd

    My Story

    By Iron Jack Kidd, Last action:
    • 3 replies
    • 1.9k views
    • Iron Jack Kidd
    • Iron Jack Kidd
  2. Sarah8793

    Question For Those Who Tricare Paid For Enterolab

    By Sarah8793, Last action:
    • 3 replies
    • 2.1k views
    • Sarah8793
    • Sarah8793
  3. JerryK
    Iron Jack Kidd

    Dang Wheat Is In So Many Things...

    By JerryK, Last action:
    • 3 replies
    • 1.3k views
    • Iron Jack Kidd
    • Iron Jack Kidd
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  4. JerryK
    Guest

    I Wonder Now If My Dad Was Celiac

    By JerryK, Last action:
    • 3 replies
    • 1.4k views
    • Guest
    • Guest
  5. Homegirl

    13yo Son Has Red Ears/face, Bloated Belly..........

    By Homegirl, Last action:
    • 2 replies
    • 2k views
    • Homegirl
    • Homegirl
  6. MrsC

    Going To Gi For First Time Later Today

    By MrsC, Last action:
    • 0 replies
    • 843 views
    • MrsC
    • MrsC
  7. Smunkeemom
    wolfie

    Symptoms?

    By Smunkeemom, Last action:
    • 4 replies
    • 1.7k views
    • wolfie
    • wolfie
  8. JerryK
    CarlaB

    Emotional Impact Of celiac disease

    By JerryK, Last action:
    • 13 replies
    • 2.2k views
    • CarlaB
    • CarlaB
  9. JerryK
    ravenwoodglass

    So When You Are Eating Gluten

    By JerryK, Last action:
    • 2 replies
    • 1.6k views
    • ravenwoodglass
    • ravenwoodglass
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  11. mommyetb
    ArtGirl

    Enterolab!

    By mommyetb, Last action:
    • 4 replies
    • 1.8k views
    • ArtGirl
    • ArtGirl
  12. averyannsmom
    mommida

    Infant Diagnosis

    By averyannsmom, Last action:
    • 4 replies
    • 2.3k views
    • mommida
    • mommida
  13. sweetm79
    jerseyangel

    Symptoms...not Diagnosed Yet...please Help?

    By sweetm79, Last action:
    • 7 replies
    • 1.6k views
    • jerseyangel
    • jerseyangel
  14. TMJ

    Help Me Understand Celiac Panel Results, Please

    By TMJ, Last action:
    • 2 replies
    • 1.3k views
    • TMJ
    • TMJ
  15. JerryK
    wonkabar

    Amount Of Gluten You Eat...

    By JerryK, Last action:
    • 11 replies
    • 2k views
    • wonkabar
    • wonkabar
  16. Cam's Mom
    mommida

    How Common Are False Negatives?

    By Cam's Mom, Last action:
    • 6 replies
    • 2.2k views
    • mommida
    • mommida
  17. ArtGirl
    mouse

    Newbie Here - This Place Is Great!

    By ArtGirl, Last action:
    • 3 replies
    • 1.1k views
    • mouse
    • mouse
  18. Mia H
    mommida

    Can Thryroid Problems Be The Only Symptom?

    By Mia H, Last action:
    • 1 reply
    • 1.7k views
    • mommida
    • mommida
  19. sarahelizabeth
    tiffjake

    Overweight... Could It Still Be Celiac?

    By sarahelizabeth, Last action:
    • 17 replies
    • 4.1k views
    • tiffjake
    • tiffjake
  20. Cheli
    Ursa Major

    Just Got Back Celiac Panel Results Back

    By Cheli, Last action:
    • 11 replies
    • 1.8k views
    • Ursa Major
    • Ursa Major
  21. dog lover

    Which Lab Is Best For Testing

    By dog lover, Last action:
    • 4 replies
    • 1.7k views
    • dog lover
    • dog lover
  22. venice-boy
    penguin

    I'm From Venice(italy),i Have A Important Question

    By venice-boy, Last action:
    • 7 replies
    • 2k views
    • penguin
    • penguin
  23. Ursa Major

    Answer To Inquiry From Enterolab

    By Ursa Major, Last action:
    • 11 replies
    • 2.3k views
    • Ursa Major
    • Ursa Major
  24. MattUK
    Ursa Major

    Need Your Advice

    By MattUK, Last action:
    • 11 replies
    • 1.8k views
    • Ursa Major
    • Ursa Major
  25. mamatide
    key

    So Why Am I Having Symptoms Now?

    By mamatide, Last action:
    • 7 replies
    • 1.8k views
    • key
    • key
  26. JerryK
    penguin

    Getting A Little Scared Now...

    By JerryK, Last action:
    • 9 replies
    • 1.7k views
    • penguin
    • penguin

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  • Recent Activity

    1. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      1

      Sarah Grace

      Have you tried a diet with a lower carb, higher fat content, something similar to the Keto diet? Are you familiar with the ketogenic diet? Fat satisfies and so curbs hunger and levels out blood sugar.
    2. Sarah Grace
      - Sarah Grace posted a topic in Related Issues & Disorders
      1

      Sarah Grace

      I've was diagnosed celiac over 10 years ago when in mid 50s. For a long time I have been getting headaches at night and in the morning and I suffer a lot of insomnia. The headaches can be very severe and sometimes develop into a full migraine but other times they wear off within an hour of getting up and eating breakfast. I have self diagnosed this a hypoglycaemia...
    3. trents
      - trents replied to J1707's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      False reading as of right now

      But that's the point Scott is trying to make. It is up to you. You do not have to go forward with another biopsy simply because your doctor wants you to. They work for you, not the other way around.
    4. Jammer
      - Jammer replied to Kate1990's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      gluten-free supplements in Canada

      Hi Kate, I am unsure if this is helpful or not. I have Webber calcium citrate everyday. I also react to less than 20 ppm of gluten. I have not reacted to Webber ever. (Fingers crossed it stays that way). Also, I get my blood tested every 6 months to ensure I have zero gluten exposure. It consistently comes back negative(0) to gluten. A few...
    5. J1707
      - J1707 replied to J1707's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      False reading as of right now

      Honestly that's a good question, but I would like an official answer since I'm not a professional and my doctor's in my opinion no offense to them I'd say gone about it in a unprofessional way unless other's have been told to go gluten free, get a biopsy, just to go back gluten due to a possible false reading and then gotta go back for another biopsy But...
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  • Posts

    • trents
      Sarah Grace

      By trents · Posted

      Have you tried a diet with a lower carb, higher fat content, something similar to the Keto diet? Are you familiar with the ketogenic diet? Fat satisfies and so curbs hunger and levels out blood sugar.
    • Sarah Grace
      Sarah Grace

      By Sarah Grace · Posted

      I've was diagnosed celiac over 10 years ago when in mid 50s.  For a long time I have been getting headaches at night and in the morning and I suffer a lot of insomnia.  The headaches can be very severe and sometimes develop into a full migraine but other times they wear off within an hour of getting up and eating breakfast.  I have self diagnosed this a hypoglycaemia.  The medical profession in UK, where I live, does not seem to know anything of this and simply tests me for diabetes, which I do not have.  I know this condition is diet related and caused by carbohydrates, I avoid eating in the evenings.  Whatever I do, this condition seems to be getting worse and is very difficult to control.  Any advice would be much appreciated.
    • trents
      False reading as of right now

      By trents · Posted

      But that's the point Scott is trying to make. It is up to you. You do not have to go forward with another biopsy simply because your doctor wants you to. They work for you, not the other way around.
    • Jammer
      gluten-free supplements in Canada

      By Jammer · Posted

      Hi Kate,   I am unsure if this is helpful or not. I have Webber calcium citrate everyday. I also react to less than 20 ppm of gluten. I have not reacted to Webber ever. (Fingers crossed it stays that way). Also, I get my blood tested every 6 months to ensure I have zero gluten exposure. It consistently comes back negative(0) to gluten.  A few years ago, my stomach would feel nauseous after taking Ca+  but thankfully that doesn’t happen anymore. Good luck and I hope you find something that works for you.    all the best,    J 
    • J1707
      False reading as of right now

      By J1707 · Posted

      Honestly that's a good question, but I would like an official answer since I'm not a professional and my doctor's in my opinion no offense to them I'd say gone about it in a unprofessional way unless other's have been told to go gluten free, get a biopsy, just to go back gluten due to a possible false reading and then gotta go back for another biopsy But if it really was up to me per say then I'd definitely stay gluten free like this diet change has really helped me a lot in a lot of ways, not just for health reasons, but discipline toward not indulging to much on things i used too, not to mention being more aware of what I'm intaking by reading labels more and calling the manufacturers to find more answers if needed.
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