Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.


19,061 topics in this forum

  1. Mjohnson73
    skbird
    • 6 replies
    • 1.4k views
  2. mohavehiker
    • 9 replies
    • 4.7k views
  3. deejay
    Matilda
    • 7 replies
    • 10.3k views

  4. Celiac.com Sponsor (A8):
    Celiac.com Sponsor (A8):



    Celiac.com Sponsor (A8-M):



  5. GlutenGecko
    Merika
    • 3 replies
    • 1.6k views
  6. brantley999
    • 2 replies
    • 1.5k views
  7. Mjohnson73
    • 5 replies
    • 1.5k views
  8. yokomindy
    KaitiUSA
    • 4 replies
    • 2k views
  9. johnm
    Jnkmnky
    • 21 replies
    • 5.2k views
  10. mamaathome
    • 4 replies
    • 1.3k views

  11. Celiac.com Sponsor (A10):
    Celiac.com Sponsor (A10):

  12. Sasquatch
    Rachel--24
    • 10 replies
    • 2k views
  13. AlwaysHope
    • 26 replies
    • 4.8k views
  14. Rachel--24
    KaitiUSA
    • 1 reply
    • 1.9k views
  15. rohit77
    Merika
    • 11 replies
    • 2.1k views
  16. Rachel--24
    • 11 replies
    • 3k views
  17. CeliacMom
    KaitiUSA
    • 4 replies
    • 1.5k views
  18. aslo
    • 9 replies
    • 2.3k views
  19. jaxonweb
    skbird
    • 5 replies
    • 1.4k views
  20. Ellen2
    KaitiUSA
    • 1 reply
    • 1.6k views
  21. anodyne
    • 13 replies
    • 2.9k views
  22. Rachel--24
    gf4life
    • 14 replies
    • 2.1k views
  23. elephantofsuprise
    tarnalberry
    • 2 replies
    • 16.1k views
  24. kallie
    • 3 replies
    • 4.4k views
  25. elephantofsuprise
    KaitiUSA
    • 3 replies
    • 1k views
  26. healing
    KaitiUSA
    • 15 replies
    • 2.7k views
  27. maddy
    lovegrov
    • 2 replies
    • 1.5k views
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Sarah Grace replied to Sarah Grace's topic in Related Issues & Disorders
      7

      Sarah Grace

    2. - glucel replied to Sarah Grace's topic in Related Issues & Disorders
      7

      Sarah Grace

    3. - glucel replied to glucel's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      abnormal weight loss

    4. - knitty kitty replied to glucel's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      abnormal weight loss

    5. - knitty kitty replied to Neat1's topic in Introduce Yourself / Share Stuff
      7

      Maybe celiac, maybe just ncgs?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      125,078
    • Most Online (within 30 mins)
      7,748

    Graleymary24
    Newest Member
    Graleymary24
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.8k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Sarah Grace
      Many thanks to everyone for the advice received and especially to Knitty Kitty.  I have ordered a one month supply of Benfotiamine and very much look forward to trying it.  The expression "I felt like I was dying" really resonates with me.  I have other symptoms which I didn't mention, such as vertigo and brain fog which are referenced by knitty kitty in her very detailed post. Clearly, there is other stuff that I should be trying, but I can only cope with one thing at a time at present! I will be back to let you know if the Benfotiamine, which should arrive in the next few days, has had any impact.🙂
    • glucel
      OK maybe I will look at future blood test just for historical changes. I am taking b vitamins as I mentioned in my other post to you. Definitely interested in Benfotiaminefor intestinal issues. However I already seem to be feeling some improvement in diverticulosis. Constipation gone but I think that resuming glucosamine may have something to do with that as well as general healing. Beans are antagonizing for me but I eat them anyway every few days in the form of pasta as well as baked beans. gluten-free for 4.5 months so still experimenting. Thanks for the info.
    • glucel
      Thanks @knitty kitty, I read your v b info with much interest for last few months. Here is my weight per event: sept 8, 2022- 181 lbs june 1, 2024 gluten free july 4- 143.5 lbs july31- changed from regular b to methyl folate and b12. oct 8- 150 lbs So weight hopefully coming back albeit very slowly. So probably my villi may be healing and methyl helping although also eating potato chips every few days so that is probably helping too.  Taking 100 mg of b1 along with complex. I took all thiamine maybe 100 or so tablets. Brain fog diminished some and it seems swallowing trouble also diminished. Stopped taking it couple months or so ago and did not notice any reversals. I think I will finally look into bentofothiamine. Also eat 1/2 ounce liver every morning for additional v b support.                                  
    • knitty kitty
      Hello, @glucel, Unintended weight loss is symptomatic of Thiamine deficiency.  Our bodies use more Thiamine when we are ill and stressed.  Switching to a gluten free diet can also result in a lower intake of Thiamine.   Interesting Reading: Coronary Artery Bypass Graft (CABG) surgery depletes plasma thiamine levels https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2874825/ Gluten-free diet intervention reduces thiamine intake in two weeks... https://pubmed.ncbi.nlm.nih.gov/34583628/ This study found normal people, without Celiac Disease and malabsorption concerns, had a drop in Thiamine after starting a gluten free diet.  They went back to eating a gluten containing diet.  We don't get that option.  Gluten free processed foods are not enriched with vitamins like gluten containing counterparts.  Supplementing helps boost your absorption of essential vitamins and minerals.
    • knitty kitty
      Hello, @Neat1, Yes, neck and shoulder pain can be symptoms of Gerd, which is fairly common in Celiac Disease. Ask for a DNA test, too.  Celiac Disease is genetic.  If you've got celiac disease genes, further testing is warranted.  Some people have Celiac genes, but don't have active Celiac Disease.  If you've got symptoms, your genes are probably activated.   Diabetes, anemia and Thiamine deficiency can cause false negatives on antibody tests.  Some people with Celiac Disease are seronegative.   Thiamine deficiency can cause constipation and gastrointestinal symptoms.  Magnesium supplementation can help with that, too.  Nutritional deficiencies like these are common in untreated Celiac Disease. Keep us posted on your progress!
×
×
  • Create New...