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Recent Activity
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- knitty kitty replied to Allias's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease3calcium malabsorption that does not resolve with supplementation
Welcome to the forum, @Allias, For the growth and maintenance of bones, more vitamins and minerals are needed than those you are taking. Bones need calcium, as well as magnesium and iron, but also trace elements like zinc, copper, selenium, manganese, and boron. Bones need vitamins like Vitamin D and Folate (not synthetic Folic Acid which... -
- OldNavyWife54 commented on Scott Adams's article in Additional Concerns1Boomer Grandpa's Dangerous Test Leaves Celiac Child Seriously Ill
This man reminds me of my mother and my siblings. They never took my diagnosis seriously and were always dismissive of it. It took me to age 53 to get diagnosed and it made a huge difference in my health once I went 100% gluten free, but they still made light of it. So in 2016 when I was asked to take in my elderly mother, and later my younger brother...- autoimmune disorder
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- RMJ replied to matts's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms15Potential diagnosis
With the range and units it does not make any sense for that test to be for Tissue transglutaminase IgA. That normal range would be very logical for total IgA. Please ask your GP when you see him/her. -
- cristiana replied to matts's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms15Potential diagnosis
Just repeating what my gastroenterologist was saying. Sorry - not a helpful post of mine, as I wasn't even sure what he meant! -
- matts replied to matts's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms15Potential diagnosis
That’s interesting thank you. I’ll definitely be going back to the GP on Monday and I’ll update- 1
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Posts
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By knitty kitty · Posted
Welcome to the forum, @Allias, For the growth and maintenance of bones, more vitamins and minerals are needed than those you are taking. Bones need calcium, as well as magnesium and iron, but also trace elements like zinc, copper, selenium, manganese, and boron. Bones need vitamins like Vitamin D and Folate (not synthetic Folic Acid which the body doesn't utilize well), but bones also need Vitamin A, Vitamin K, Cobalamine B12, Pyridoxine B6, Riboflavin B2, Choline B4, and Thiamine B1. High PTH and high alkaline phosphatase (ALP) levels may indicate a deficiency in Thiamine B1. The enzyme Alkaline phosphatase combines with Thiamine to make Adenosine Triphosphotase (ATP), the "energy coinage" used in the body which is required to build bones or perform any body function. Increased levels of ALP and PTH are produced when there's not sufficient Thiamine to meet the demands. Bones, the liver, the thyroid and the gastrointestinal tract can all make ALP when there's a shortage of Thiamine in each of those organs. The gastrointestinal tract makes ALP when increased thiamine absorption is required. Thiamine is needed to attach to calcium so it can be absorbed. Thiamine deficiency disorders include muscle spasms in muscles like the neck muscles, and neuropathy. What is your Vitamin D level? Do talk to your doctor and nutritionist about supplementing with essential nutrients while recovering. References: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7914453/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7352179/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6459027/ https://pubmed.ncbi.nlm.nih.gov/4003329/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10568373/ https://pubmed.ncbi.nlm.nih.gov/36428888/ https://pubmed.ncbi.nlm.nih.gov/1156856/ https://pubmed.ncbi.nlm.nih.gov/38034619/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10398819/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8451766/ -
With the range and units it does not make any sense for that test to be for Tissue transglutaminase IgA. That normal range would be very logical for total IgA. Please ask your GP when you see him/her.
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Just repeating what my gastroenterologist was saying. Sorry - not a helpful post of mine, as I wasn't even sure what he meant!
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That’s interesting thank you. I’ll definitely be going back to the GP on Monday and I’ll update
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By Scott Adams · Posted
I agree with @trents--Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. Your son may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/
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