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Dermatitis Herpetiformis

Discussions concerning the skin condition associated with celiac disease.


2,032 topics in this forum

  1. filititi
    alexa11219
    • 28 replies
    • 17.4k views
  2. Guest Stepha
    Guest

    What Is This Condition?

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  3. SadiesMomma
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  5. Guest pear_fairy
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    Make The Itch Go Away Puh-leaseeee!

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  6. Guest pear_fairy
    Guest

    Does It Have To Be An Extreme Rash?

    • 2 replies
    • 4.5k views
  7. Tori
    mom of 5 celiac
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    • 5.6k views
  8. azza
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  • Posts

    • AnnaNZ
      Hi MJ I wonder if you will read this 3 years on... did your burping ever cease? Did you figure it out?
    • Blue Roan
      Hi there! I know that celiac can present in hundreds of different ways, which is why I’m wondering if anyone else has had these same symptoms.  I am a young adult in overall great health. I was diagnosed with celiac in February and have been extremely strict on maintaining a gluten-free diet. Thankfully, my stomach discomfort and other celiac symptoms are non-existent on most days. However, ever since the end of July, I’ve had a completely new set of issues.  I’ve had on and off swelling in my lymph nodes below my jaw and my thyroid (not visibly or when touching my neck, but the sensation is there). I’ve been to my general doctor, endocrinologist and OBGYN. They’ve all said they don’t see/feel anything. I just got my thyroid panel back today and everything is normal (TPOAb is also normal so no Hashimoto’s). All of my other labs (A1C, CBC, glucose, potassium, iron, etc.) have been consistently normal and I’ve had to have them done multiple times this year. IGA is also significantly down since diagnosis. I’m literally at my wits’ end because they keep telling me I’m fine/paranoid but my throat/neck area has felt noticeably different for the past several months.  I also have been taking Claritin consistently for weeks and use a humidifier at night in case it’s from seasonal allergies, but nothing is working. So basically, I’m asking if any other celiacs had/has these symptoms and if so, how you managed them. I know celiac presents in hundreds of ways, but I’ve yet to see anyone mention these symptoms specifically. 
    • Josh8282
      Are there any brands that are certified gluten free 
    • cristiana
      PS  You asked about severe symptoms.  Yes, I can tell you that the one and only time I have taken a really major gluten hit in recent times I had chills, sweats, vomited and thought I was going to pass out.  I also felt my heartbeat was affected.  I was really concerned at the severity of the reaction. And that was down to eating one piece of homemade fruitcake - a relative of mine had made me a lovely cake but thought all Dove flour was gluten-free, it isn't, they also do organic flour!   
    • cristiana
      Hi @Louise Broughton Fellow Brit here! I am sorry to hear of your health issues. If I may chip in here, I think it might be worth your while at least having the blood test to see if you have raised antibodies. Whilst I agree under ideal circumstances people need to eat gluten for a period before both the blood test and endoscopy, it could well be that your antibodies are still raised enough to show that you are a coeliac.  I gave up gluten in 2013 and it took around 8 years before my blood tests were normal again, and I was very strict with my diet. To save time I've just copied this over from a recent post on another thread and adapted it for you - forgive me, but the advice is almost the same I have just given to another UK coeliac whose daughter has been having issues: Generally speaking most UK coeliacs will get a lot of help from the NHS, such as a nutritionist, annual blood tests and reviews with a gastroenterologist to check for dietary compliance and any complications that can arise from coeliac disease, monitoring for osteopenia/porosis, which is something that coeliacs can be prone to, extra vaccinations where required, and in some regions of the UK, gluten-free staple foodstuffs on prescription.  Also, it has been my experience that once being on the books of a gastroenterologist means I have been able to make appointments direct with the hospital to see one, rather than being re-referred by a GP which saves so much time. If for some reason your are finding it to get tested under the NHS you may wish to think of one other option: going private just for the diagnosis.  I did this, with a Nuffield based gastroenterologist, who also works for the NHS.  This sped up the diagnosis process by a few months and once diagnosed by him, he offered to put me straight into the NHS for a nutritionist and the other benefits listed above.  If interested, you can ring their offices and find out how much it will cost.  Usually their secretaries are very conversant with the system so should be able to give you the info you require. I hope this may be of help. Cristiana    
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