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Recent Activity
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- Tobo replied to HectorConvector's topic in Related Issues & Disorders333Terrible Neurological Symptoms
I'm 63 and was diagnosed in 2010. Prior to diagnosis I was suspected of having to strokes and medicated according each time. A neurologist called me in to discuss my scan. From that discussion I had a camera down and celiac disease was confirmed. I suffered continued pain and numbness down my left side and was offered amitriptyline, and antidepressants that... -
- trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms13Disaccharide deficient, confusing biopsy results, no blood test
@jenniber, it would be pointless for your brother to get tested for celiac disease if he has already gone gluten free. Doing so invalidates the testing. He would need to undergo a "gluten challenge". That is, he would need to go back to consuming generous amounts of gluten (at least 10g daily, or the amount found in about 4-6 slices of wheat-based bread)... -
- trents replied to Ben Cohen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5
How much gluten do I need to eat prior to testing?
Yes, that might work as well. -
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- Heatherisle replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease31Pain in the right side of abdomen
Think her thyroid levels were fine, she’s had various blood tests since being in hospital. Been started on B12 injections for now instead of the oral medication and more bloods taken to check for pernicious anaemia
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I'm 63 and was diagnosed in 2010. Prior to diagnosis I was suspected of having to strokes and medicated according each time. A neurologist called me in to discuss my scan. From that discussion I had a camera down and celiac disease was confirmed. I suffered continued pain and numbness down my left side and was offered amitriptyline, and antidepressants that was also diagnosed for nerve pain. I said no as I didn't want the stigma of being on antidepressants. Seven years later I begged my GP to prescribe them and my life was changed almost immediately. If I'm glutened accidentally whilst eating out then my nerves pain/symptoms get worse but it's nothing compared to taking the medication and feeling a little drowsy every now and then. The best of luck for the future.
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@jenniber, it would be pointless for your brother to get tested for celiac disease if he has already gone gluten free. Doing so invalidates the testing. He would need to undergo a "gluten challenge". That is, he would need to go back to consuming generous amounts of gluten (at least 10g daily, or the amount found in about 4-6 slices of wheat-based bread) for several weeks leading up to the day of the blood draw.
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By Heatherisle · Posted
Think her thyroid levels were fine, she’s had various blood tests since being in hospital. Been started on B12 injections for now instead of the oral medication and more bloods taken to check for pernicious anaemia -
Hi Scott, Thanks so much for all this great info! You mentioned the HLAs do more in the immune system. I know little about that. Is there research that explains what those other roles are? I hope Flores gets her funding because whatever the upshot, we'll at least have more information. As to the wheat...when I first heard about it, I thought, "Oh great!" But wouldn't it have to rely on newly built gluten free storage silos, gluten free transport trucks, etc. And then there's still the potential for cross contamination once it gets to a restaurant kitchen. Is it that much more advantageous than the wheat that has gluten extracted from it?
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