Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Gluten Free Diet And Other Allergies Help


Kimnash

Recommended Posts

Kimnash Newbie

Hi. I am new to this site and I need some help. I have a son who is 7 has Asperger's and ADHD we have tested for allergies and Celiac both were neg. My 4 year old seems fine but then we get to my 1 year old dau. she is very allergic to MILK, EGG, WHEAT, OAT, BARLEY, RYE, BUCKWHEAT, GLUTEN, SOY, TOMATO, POTATO, PEA. PEANUT, CARROT, FISH, SHELLFISH.

I am finding it impossible to feed the poor child. She has not been tested for Celiac I don't know if I should ask for it or not since we already know she is very allergic to Gluten. I have her on a elemental formula Ped. E028 and she does well on it but she needs real food. Having the older two children does not help matters since they want PB&J sandwichs on Whole Wheat Bread (thought we were good parents and started the kids as babies on whole wheat instead of white).

I have looked at a few cookbooks but there never seems to be a receipe that I can use that is safe for my dau. Can anyone tell me what to do or if there is a cookbook that covers all of her problems out there? Right now I have been giving her cooked meat and chicken (doc. wants to take her off Chicken to see if that is giving her leg rashs) I have also found a puffed corn cereal from Arrowmills I think that is ok. PLEASE HELP. Kimberly bkcjnash@yahoo.com

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bluelotus Contributor

Do you use Rice milk? Lundenberg farms makes some, but check the ingrediants - I know they are corn, dairy, and gluten free (my problems). Try Enjoy Life products - they make bagels, breads, cereals, cookies, and snack bars. You can find them online. They don't use the 8 common allergens or corn or potato. Applesauce can be a great snack - Organic Wholekids Apple and Peach sauce is very yummy. Is she allergic to all nuts? There are so many other nut butters out there too to make sandwiches with. Ener-G brand (though not my favorite) makes items that can help with various allergies. They are online too. Check Nana's gluten free cookie bars - they don't use soy or corn either, but I can't recall the other ingrediants. Home made hamburgers might be nice for her with veggies and ketchup/mustard (Annie's naturals makes gluten-free sauces/condiments, though check on other ingrediants) - then again, I don't have children, maybe they don't need/use condiments?. Turkey may be another option, though not sure if that causes a rxn in people with chicken allergies. Will try to think of more ideas for you.

It might be nice to test your daughter for celiac, just so you know for future information/issues. celiac disease has been linked to other health problems (thyroid problems, skin problems, sore joints, mental health issues, tooth enamel probs., etc), so if a doc knows she has celiac disease, it may make future diagnosing easier. Then again, none of those health prob.s is quarenteed, so don't want to cause you more anxiety. Anyway, good luck.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,093
    • Most Online (within 30 mins)
      7,748

    Eva Ann
    Newest Member
    Eva Ann
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Oh, okay. The lower case "b" in boots in your first post didn't lead me in the direction of a proper name. I thought maybe it was a specialty apothecary for people with pedal diseases or something.
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! There are other things that may cause elevated tTg-IgA levels, but in general a reaction to gluten is the culprit:    
    • cristiana
      Hi @trents Just seen this - Boot's is a chain of pharmacies in the UK, originally founded in the 19th Century by a chap with the surname, Boot.  It's a household name here in the UK and if you say you are going to Boot's everyone knows you are off to the pharmacist! Cristiana
    • Denise I
      I am looking to find a Celiac Dietician who is affiliated with the Celiac Disease Foundation who I can set up an appointment with.  Can you possibly give some guidance on this?  Thank you!
    • Posterboy
      Nacina, Knitty Kitty has given you good advice. But I would say/add find a Fat Soluble B-1 like Benfotiamine for best results.  The kind found in most Multivitamins have a very low absorption rate. This article shows how taking a Fat Soluble B-1 can effectively help absorption by 6x to7x times. https://www.naturalmedicinejournal.com/journal/thiamine-deficiency-and-diabetic-polyneuropathy quoting from the article.... "The group ingesting benfotiamine had maximum plasma thiamine levels that were 6.7 times higher than the group ingesting thiamine mononitrate.32" Also, frequency is much more important than amount when it comes to B-Vitamin. These are best taken with meals because they provide the fat for better absorption. You will know your B-Vitamin is working properly when your urine becomes bright yellow all the time. This may take two or three months to achieve this.......maybe even longer depending on how low he/you are. The Yellow color is from excess Riboflavin bypassing the Kidneys....... Don't stop them until when 2x a day with meals they start producing a bright yellow urine with in 2 or 3 hours after the ingesting the B-Complex...... You will be able to see the color of your urine change as the hours go by and bounce back up after you take them in the evening. When this happens quickly......you are now bypassing all the Riboflavin that is in the supplement. The body won't absorb more than it needs! This can be taken as a "proxy" for your other B-Vitamin levels (if taken a B-Complex) ...... at least at a quick and dirty level......this will only be so for the B-1 Thiamine levels if you are taking the Fat Soluble forms with the Magnesium as Knitty Kitty mentioned. Magnesium is a Co-Factor is a Co-factor for both Thiamine and Vitamin D and your sons levels won't improve unless he also takes Magnesium with his Thiamine and B-Complex. You will notice his energy levels really pick up.  His sleeping will improve and his muscle cramps will get better from the Magnesium! Here is nice blog post that can help you Thiamine and it's many benefits. I hope this is helpful but it is not medical advice God speed on your son's continued journey I used to be him. There is hope! 2 Tim 2:7 “Consider what I say; and the Lord give thee understanding in all things” this included. Posterboy by the grace of God,  
×
×
  • Create New...