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Trixlm

Lab Results Negative. Everything Else Says Positive. Celiac?

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I really need some insight, help, & advice... Warning this is long ;(

So I've suffered from depression in the past & severe fatigue for as long as I can remember. I never took medication for depression. I never used drugs or smoked ever, rarely drink alcohol. I absolutely LOVE sleep. It is my best friend. I am a 23 year old femal at 5'2 and typically 105 lbs. I've always been healthy overall.

The past 7 years I've been more active. I would jog/ run for the most part about 3 times a week.

In 2009 I was having severe chest pains while eating at a birthday party and I thought I was having a heart attack. I was rushed to the hospital and it turned out that I had an esophageal tear from acid reflux and was admitted to the hospital. I was waiting to eventually have surgery but luckily the doctors suggested to allow it to heal on its own under their watch to avoid surgery. I was dx with gerd and was questioned if I was bulimic!!! I was angry and offended but admitted to the fact that I get heartburn pain often and would sometimes vomit because of it. But I am naturally thin and had no reason or desire to that even being the last thing on my mind. I then just watched what I ate and stopped the Prilosec prescribed after a months use.

About 4 years ago I adopted the whole "fitness hype" when bodybuilding was becoming more mainstream popular. I ate more whole foods with exceptions of those "cheat meals." I had an iud (sorry tmi) placed a year after.

Towards my year anniversary of iud placement my symptoms of fatigue worsened and my acne, mood, depression increased. I consulted with my primary care physician about my concerns and was finally put on lexapro. I gave it 6 months and decided it was not for me. During that visit she ordered a comprehensive panel, CBC, c reactive, tsh, for blood work. Everything was fine ruling out anemia or thyroid issues that could cause my problems but I had borderline low mcv, mean platelet volume, mean corpulusculur hgb, and extremely vitamin d deficient. I was instructed to take a high dosage of vitamin d after that...

I then researched iud complications and that it might have been contributing to my condition. Had it removed and went completely hormone free. I decided throughout that year of suffering that I would "better myself" even more. I smiled more often and joined yoga classes, scheduled a more balanced exercise regimen of 3-5x a week, and ate more "healthy" foods (ie: every grain, whole, wheat, pastas, etc.). But I found I just wasn't getting any better.

The past six months I started to journal my food intake through my myfitnesspal for vitamin/macro nutrient purposes and noted my mood/reactions/feelings throughout my eating habits and activities. I consumed more whole foods and added vitamins and excluded any supplements containing fillers, artificial sweeteners... I didn't notice much of a difference. And once again increased my intake of "healthy" alternatives of wheat products.

I still couldn't get a hand on why I was getting worst even though I was getting "better." I searched everything and one day I ordered a jimmy johns sandwich. (I love them!) Had nothing but turkey, lettuce, sprouts, tomatoes, no cheese, no mayo, served on their wheat bread. I ate half and immediately had a distended belly. I had severe stomach pains, nausea, bubbly gas, burping, indigestion, and vomited shortly after. My co worker was there during this episode and joked with me that my tiny body looked like I was 8 months pregnant and asked if I was ok. I had a headache, felt exhausted, and took a nap when I got home. Thankfully that was a Friday and I slept nearly all day the next.

I got to thinking about how my co worker reacted and how all of my coworkers always joked about how gassy and bloated I always was. I'm a jokester so I was always open about talking about my constant diarrhea issues and burping outloud. I just never took it seriously or brought it to my physicians attention because I figured they were normal symptoms because thats what happens when you eat?

I was so discouraged at that point which led me to googling every single symptom I had. I started coming across symptoms of food allergies because of the gi reactions I would have after meals. I looked back at my notes and realized that it matched like a puzzle piece to celiac/gluten allergy symptoms. I had always overlooked this but I have always been bloated, gassy, having diarrhea, mood swings, horrible memory, fatigue, aches, etc the list goes on! What stood out so strongly was the fact that after certain meals was when I would have the episode the strongest. I did my own experiment of excluding gluten completely. I immediately felt better. My acne was a huge indication because my cystic acne stopped and the little breakouts I would have would clear overnight. I had energy, I stopped taking naps at work, I lost 10 lbs(I was 120), tummy was flattest its ever been, and the bloating subsided significantly. But I was still slightly fatigued through it all and decided to make an appointment.

Last week my primary care wasn't available so I saw someone new. I brought up valid concerns that linked to celiacs and he brushed it off and said that there's no way a healthy 23 year old like me would have these problems. He started going over my medical history then went into a spiel about reassuring me I don't have cancer. It was such a waste of time and irritating because I felt that he had a preconceived idea of me that I might've suspected cancer given the fact that I work at the cancer center!!! I never even brought up anything to do with cancer! At the end of it all he felt that my depression was a manifestation of my fatigue even though I wasnt necessarily depressed and to trial different meds to see which would work. He ordered a CBC and celiacs panel but they all came out negative.

Keep in mind he spent 10 minutes with me and I brought up my concern that I had been avoiding gluten for 6 months unknowingly through most healthy eating and the past 3 months nearly gluten free and last month 100% gluten free. Also my gluten free vegan protein supplements contain glutamine in addition to glutamine supplement, I have been taking probiotics, and fish oil which I've read sped the healing process if in fact this is celiacs. I pleaded that this would all probably affect results and he said if in fact I had gluten allergies/celiacs that it didn't matter and results would be positive.... I just wanted to scream...

I'm not doing this because of a trend. I never even knew of this until I went crazy for answers. And I definitely wouldn't waste my time/money for a placebo effect. I am tired. I feel like crap and I'm sick and tired of being sick and tired. It's a physically and mentally painful feeling to go through my 20s knowing there is something wrong with me and that no one can figure it out. I'm hitting dead ends and I want to know as someone who has celiac or dealing with a family member, misdiagnosis, etc what you think. My mom btw is very anemic and diabetes runs in my family. My grandmother passed away from breast cancer. I love pasta, breads, I'm your typical carboholic. But I have no problems like this when I eat white or brown rice carbs. Small amounts of wheat makes me very sick. And I wake up sometimes in the middle of the night because my feet and hands tingle like they're dead and I swore ghosts slept on me even when I slept straight on my back. I get random patches of hives. Raised bumps and sometimes blister fluid filled looking, I ignored them and thought they may have been bug bites-they were extremely itchy and go away after a few days...My weight fluctuates quite a bit.. I don't know what else to add besides the fact that its just straight misery dealing with this and I smile through it as much as I can. I just want to make sure I'm doing the right things and not diagnose myself without further evaluation and valid information. I will list my blood work below. Anything helps. I can't wait to hear from you all!!!

St stands for standard range. I apologize f it's sloppy. It's a lot to type lol! I only posted results that had possible significant value and of course the celiac panel. My comprehensive, glucose, and tsh have beautiful numbers so I didn't add them.

Celiac panel---

Immunoglobulin A- 286 St 66-436

Tt IGA- 4 St 0-19

PEPT IGA- 4 St 0-19

CBC---

White count-7.5 st 4-11.1

Red count-4.75 st 4.18-5.64

Hemoglobin-14.3 st 12.1-16.3

Hematocrit-43 st 35.7-46.7

MCV-90 st 80-100

MC HGB-30.1 st 27.5-35.1

MC HGB CONC- 33.2 st 32-36

Platelet-303 st 150-400

MPV-9.1 st 9.6-12.8

Vitamin D-15 st 30-100

Sed rate-3 st 0-20

C reac- <.5 st <1.0

A1C-4.7 st 4-6

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Welcome...

 

A bit tired here...others will add more info, but

 

Your Vitamin D is extremely low -- indicative of malabsorption.

 

The celiac tests you list are not complete.

 

assuming the Peptide test you list is DGP IGA.

 

Missing are tTG-IgG, DGP-IgG and EMA-IgA -- I'm tired so perhaps you listed Total Serum IgA...but do double check

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Hi there.  I will pick up from the exhausted Lisa.

 

The immunoglubulin is your total serum IgA.  This is normal, as are the other celiac tests performed.  But this is only to be expected if you had not been eating gluten prior to testing.  It is surprising how many doctors do not know this :huh:   Add in the L-glutamine and probiotics and you are well on your way to healing.  Testing at this point is pretty much a nonstarter unless you want to go back and regluten yourself for 6-8 weeks.

 

Your tingling hands are probably a neurological manifestation of gluten, and the fluid-filled bumps are probably DH, the major skin manifestion of gluten intolerance. 

 

You seem to be someone very much in touch with your own body and how it reacts and from reading your account it seems pretty obvious to me that you are gluten intolerant.  Whether or not you would test positive for celiac if you were to go back to eating gluten I do not know.  Regardless, the treatment for any kind of gluten intolerance is strict avoidance of gluten.  There are those who believe it is almost heretical to go gluten free without being tested, but I did what you did, in total exasperation, and have never looked back at that decision and would never consider poisoning myself again to try to get a formal diagnosis.  You must make your own decision.

 

Your vitamin D is massively low and needs immediate and substantial supplementation of Vitamin D3 before you develop osteoporosis.  I would try to get a prescription from your doctor for 50,000 units every week for at least two months, and 5,000 units a day on top of that.  The way my doctor explained it to me, with your tank so empty, if you take the recommended supplementation it is barely enough to get you to the next gas station to buy another gallon.  What you need is to fill your tank first, and then keep topping it up until you can absorb it from your foods.  With the summer coming on spend some time in the sun too.

 

If you were not checked for other nutrient levels, you should be.  Vitamins A, B, E and K, folate, iron/ferritin, magnesium, copper, zinc.  You could be low in any of these.

 

Welcome to the forum and let us know how else we can be of help. :)

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Yep...exactly what she said!

Welcome :)

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All looks like excellent advice to me.

Lots of us struggle to get diagnosed, but the proof for me is in how much better I am without gluten, as you have found. Sadly, yours is not the only doctor with misinformation.

I had problems with hormones, and was way better off the pill.

The good news is you have worked it out while you are still young, and hopefully will see big improvements. You might need to be patient, sometimes there are a few more bits of jigsaw to get in place.

Stick around, ask questions, rant, whatever. You just found some buddies to help you out. Welcome :)

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Vitamin D, just go to the health food store and get the 50,000 unit Vitamin D3.  The kind from the doc is going to be D2, don't want that.  one every 5-7 days and retest in ~ 3 months.

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Welcome...

 

A bit tired here...others will add more info, but

 

Your Vitamin D is extremely low -- indicative of malabsorption.

 

The celiac tests you list are not complete.

 

assuming the Peptide test you list is DGP IGA.

 

Missing are tTG-IgG, DGP-IgG and EMA-IgA -- I'm tired so perhaps you listed Total Serum IgA...but do double check

Thank you much Lisa for your effort! I did post real late so I understand :) the #286 is total iga and I the other two are the only others he ordered :( my doctor put me on only 2,000 iu of vitamin d3 so I'm still taking that...

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Hi there.  I will pick up from the exhausted Lisa.

 

The immunoglubulin is your total serum IgA.  This is normal, as are the other celiac tests performed.  But this is only to be expected if you had not been eating gluten prior to testing.  It is surprising how many doctors do not know this :huh:   Add in the L-glutamine and probiotics and you are well on your way to healing.  Testing at this point is pretty much a nonstarter unless you want to go back and regluten yourself for 6-8 weeks.

 

Your tingling hands are probably a neurological manifestation of gluten, and the fluid-filled bumps are probably DH, the major skin manifestion of gluten intolerance. 

 

You seem to be someone very much in touch with your own body and how it reacts and from reading your account it seems pretty obvious to me that you are gluten intolerant.  Whether or not you would test positive for celiac if you were to go back to eating gluten I do not know.  Regardless, the treatment for any kind of gluten intolerance is strict avoidance of gluten.  There are those who believe it is almost heretical to go gluten free without being tested, but I did what you did, in total exasperation, and have never looked back at that decision and would never consider poisoning myself again to try to get a formal diagnosis.  You must make your own decision.

 

Your vitamin D is massively low and needs immediate and substantial supplementation of Vitamin D3 before you develop osteoporosis.  I would try to get a prescription from your doctor for 50,000 units every week for at least two months, and 5,000 units a day on top of that.  The way my doctor explained it to me, with your tank so empty, if you take the recommended supplementation it is barely enough to get you to the next gas station to buy another gallon.  What you need is to fill your tank first, and then keep topping it up until you can absorb it from your foods.  With the summer coming on spend some time in the sun too.

 

If you were not checked for other nutrient levels, you should be.  Vitamins A, B, E and K, folate, iron/ferritin, magnesium, copper, zinc.  You could be low in any of these.

 

Welcome to the forum and let us know how else we can be of help. :)

Hi neroli! I'm excited to hear from you. So now what I am going to deal with is to either decide to maintain gluten-free or get that formal diagnosis... Everyone including friends don't really understand what I'm going through and not taking it seriously because I have nothing to back my claims of gluten allergy... I even had a friend telling me there's no such thing as gluten intolerance unless its full blown celiacs ;( I may be willing to go through the pain if that's what it takes... I have a follow up appointment next month and was hoping to be referred to a gi specialist. I'm only taking 2,000 iu of vitamin d3 as instructed so far and will bring it up to my pcp next month. Even though I've gone gluten free for a while I still feel tired. I have more energy, no bloating, still a bit of diarrhea, but lost weight and slowly getting over that "not feeling well" feeling. And I am also heat/temperature change sensitive. I would like to stay off but I fear rejection from my peers that its just all in my head. Are those post gluten-free symptoms normal?

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All looks like excellent advice to me.

Lots of us struggle to get diagnosed, but the proof for me is in how much better I am without gluten, as you have found. Sadly, yours is not the only doctor with misinformation.

I had problems with hormones, and was way better off the pill.

The good news is you have worked it out while you are still young, and hopefully will see big improvements. You might need to be patient, sometimes there are a few more bits of jigsaw to get in place.

Stick around, ask questions, rant, whatever. You just found some buddies to help you out. Welcome :)

Yes I definitely feel better without the pill... There's health care vs medicine care and if you can find the root of the problems I am a strong believer that you can heal without synthetic treatment :) I am wanting a proper diagnosis. I know that's a tough thing to ask for considering how its so over looked... I am seeing dramatic improvements but I still don't feel well even though I have more energy. I have a lot of decisions to make :( I'm so excited to have found support here its all a bit clear now, thank you :)

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When you stop eating gluten it is not like turning off the faucet and presto! no more water :)   Well, actually, it is a bit like water,  because while there may be no more gluten, the past effects linger on.  Just as with too much water there is flood damage, with too much gluten in a gluten intolerant there is an aftermath.  The autoantibodies can take a while to leave, but even after they have gone the havoc they have wreaked remains to be cleared up, the healing process.  Depending on the degree of damage and your own body's healing ability (as well as how perfectly you manage your diet) it can take from six months to a couple of years to totally heal.  For some of us even longer. :(   Yes, those post-gluten-free symptoms are perfectly normal.  Lisa is one who is very heat sensitive.  I often imagine her madly tossing off clothes whilst others are sitting shivering :D

 

While it is nice that our friends care about us, it is annoying when they tell us what problems we can and cannot have, what we can and cannot eat, when we know better than they what our bodies need.  I personally don't believe peer pressure should make our decisions for us, but it can be very strong :rolleyes:

 

Of course the GI is going to want to do (if he is worth his salt) a full celiac panel,

 

Anti-Gliadin (AGA) IgA
Anti-Gliadin (AGA) IgG
Anti-Endomysial (EMA) IgA
Anti-Tissue Transglutaminase (tTG) IgA
Deamidated Gliadin Peptide (DGP) IgA and IgG
Total Serum IgA


and then most probably an endoscopy with biopsy.  And for these tests you will need to have been eating a regular gluten diet.  The estimate of the amount of time needed on such a diet varies with the person making the estimate.  But with your strongly gluten free status I would guess 6-8 weeks of at least the equivalent of a couple of slices of bread per day prior to testing.  So the decision about testing needs to be made fairly quickly.  You could still go ahead with the biopsy to rule out any other problems if you wished.

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Trixim,  Hi!

 

I am coming from a super-sensitive viewpoint

 

Feeling for you.  I know the feeling of the struggle to just feel normal and the body's lack of response.  My last 6 years I've spent taking mega doses of supplements, but all the while not knowing about gluten!  I can relate to people around not understanding.  I also try to act normal/content, but oftentimes fail miserably  Did you have brain fog too?  I didn't know it until mine cleared!  I did call it fatigue, though.

 

.  I learned 11 months ago about my problem with gluten.  I still was eating stuff I was intolerant to.  Yet, I do feel better.  Friends and family are starting to come around.  I have been given hope.

 

I hope you will have hope and that you will get well soon  ***

It sounds like my celiac in the above respects,

Diana

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lol....as usual Neroli is very wise and spot on -- including her image of me shedding clothing -- more than once I have had very strange looks as I shed layers down to my sport tank top in cool or even cold weather -- lots of layers is the way I regulate my temperature -- right now I am wearing my all important tank as I never know when I'll need to strip -- then a long sleeve tee, thin lycra type jacket, polertec vest and polartec jacket -- on my walk I will strip to any combo of the above as it is still about 58 outside, but once I start moving my body cannot cool itself -- the easiest way to describe it is I have a broken thermostat -- can't warm up when I get cold and can't cool from exercise or warm environment -- really it has to do with the amount of histamine the body generates.

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I thought as usual that I was just crazy! I live in Denver & I cannot stand the cold but at the same time I am more heat sensitive than anything.  Often times I wake up in the middle of the night sweating then I'd have to shed completely with my air purifier fan blowing straight at me, then by the morning as I get ready for work I start to burn up and even if it's cold outside I'll be in a plain t shirt and get into work almost sweating.  I'm sure the stress that my body feels responds through the sweating, you feel like death... then my blood pressure would drop and I would get really light headed. My body temperature is normally 97.0 or below. Do you have that low of a temp as well? Do you still have to regulate your body temp :P? And I love 40-60 degress outdoors lol anything lower or higher my body freaks out. I could seriously just stroll around naked and have a sheet around if I get a temp drop. It's like i'm going through menopause as what my co workers would say :(

 

lol....as usual Neroli is very wise and spot on -- including her image of me shedding clothing -- more than once I have had very strange looks as I shed layers down to my sport tank top in cool or even cold weather -- lots of layers is the way I regulate my temperature -- right now I am wearing my all important tank as I never know when I'll need to strip -- then a long sleeve tee, thin lycra type jacket, polertec vest and polartec jacket -- on my walk I will strip to any combo of the above as it is still about 58 outside, but once I start moving my body cannot cool itself -- the easiest way to describe it is I have a broken thermostat -- can't warm up when I get cold and can't cool from exercise or warm environment -- really it has to do with the amount of histamine the body generates.

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YES brain fog had been one of my worsening symptoms. I would joke around and say that "my brain is so gassy because I keep having brain farts"... lol along with what I knew deep down was going on with my tummy :(  It's definitely getting better... I had the worst short term memory where I couldn't remember one thing I looked at or if I memorized barely 6 numbers to write down I would write it in a scrambled or almost dyslexic order.  I would stumble on everything, drop everything, walk somewhere I wasn't supposed to. trip on my own shoes. I was horrible at responding to texts and emails. I would think something but not say it and wonder why the person I was mind speaking to wouldn't respond LOL weird things like that... I was always so confused and would be so hard on myself that maybe I'm lazy and careless but my brain to body connection was so bad I was flimsy it was embarassing :blink:  I now have hope to get better and I get excited to jump on the forum everyday. Everyone here is so supportive its such a wonderful community... Thanks Diana I wish the same for you as well :lol:

 

 

Trixim,  Hi!

 

I am coming from a super-sensitive viewpoint

 

Feeling for you.  I know the feeling of the struggle to just feel normal and the body's lack of response.  My last 6 years I've spent taking mega doses of supplements, but all the while not knowing about gluten!  I can relate to people around not understanding.  I also try to act normal/content, but oftentimes fail miserably  Did you have brain fog too?  I didn't know it until mine cleared!  I did call it fatigue, though.

 

.  I learned 11 months ago about my problem with gluten.  I still was eating stuff I was intolerant to.  Yet, I do feel better.  Friends and family are starting to come around.  I have been given hope.

 

I hope you will have hope and that you will get well soon  ***

It sounds like my celiac in the above respects,

Diana

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I've been so disciplined it's becoming habit to steer away from certain products and I use a few handy apps on my iphone to scan items as well :D  I respect your decision to go without diagnosing I feel its pretty evident that these severe reactions could be anything but gluten... I've been contemplating going gluten free without the dx because i'm having a tough time even choosing to eat it.  I naturally just go for an alternative and i'm so in fear of a reaction since they haven't completely subsided that I just won't have it anymore.  It seems once you figure things out its better to keep getting better rather than taking 10 steps back to make wasteful visits to misinformed docs... Still want to get my other vitamins you mentioned checked so I can start supplementing what other deficiencies I may have.  That's a long time for such big amounts of gluten, it makes me nervous thinking about it because I still have plenty of symptoms subsiding.  It's possible to have negative results and have post symptoms but still have antibodies?  

 

When you stop eating gluten it is not like turning off the faucet and presto! no more water :)   Well, actually, it is a bit like water,  because while there may be no more gluten, the past effects linger on.  Just as with too much water there is flood damage, with too much gluten in a gluten intolerant there is an aftermath.  The autoantibodies can take a while to leave, but even after they have gone the havoc they have wreaked remains to be cleared up, the healing process.  Depending on the degree of damage and your own body's healing ability (as well as how perfectly you manage your diet) it can take from six months to a couple of years to totally heal.  For some of us even longer. :(   Yes, those post-gluten-free symptoms are perfectly normal.  Lisa is one who is very heat sensitive.  I often imagine her madly tossing off clothes whilst others are sitting shivering :D

 

While it is nice that our friends care about us, it is annoying when they tell us what problems we can and cannot have, what we can and cannot eat, when we know better than they what our bodies need.  I personally don't believe peer pressure should make our decisions for us, but it can be very strong :rolleyes:

 

Of course the GI is going to want to do (if he is worth his salt) a full celiac panel,

 

Anti-Gliadin (AGA) IgA
Anti-Gliadin (AGA) IgG
Anti-Endomysial (EMA) IgA
Anti-Tissue Transglutaminase (tTG) IgA
Deamidated Gliadin Peptide (DGP) IgA and IgG
Total Serum IgA


and then most probably an endoscopy with biopsy.  And for these tests you will need to have been eating a regular gluten diet.  The estimate of the amount of time needed on such a diet varies with the person making the estimate.  But with your strongly gluten free status I would guess 6-8 weeks of at least the equivalent of a couple of slices of bread per day prior to testing.  So the decision about testing needs to be made fairly quickly.  You could still go ahead with the biopsy to rule out any other problems if you wished.

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.  It's possible to have negative results and have post symptoms but still have antibodies?  

 

There are posters on this board who have returned for a six-month checkup with their doctor and still have positive blood tests for antibodies.  While the numbers have usually markedly declined, they are sometimes accused of not following the diet corrrectly because the antibodies are still active.  Doctors often bully them, tossing the refractory sprue diagnosis at them, but we always tell them, as long as the numbers are continuing to go down not to worry.  Even after a year, in some people whose numbers have been very high, the tests are still in the positive range.  Very few people actually have refractory disease; they just heal slower and sometimes they are the super sensitives to gluten who have to be stricter than the rest of us with the diet.  Some have to eliminate all processed foods altogether because the food  tests for gluten free are not sensitive enough to pick up very low levels (under 5ppm) of gluten.  A member who uses the screen name dillettantesteph is one of these.  These people who still have high antibody levels do still have symptoms.  But if you personally ever had autoimmune antibodies (i.e., celiac and not gluten intolerant) you have shed them already through your dietary elimination of gluten.  Research is still ongoing as to how to test someone who is gluten intolerant but not celiac and therefore does not have these antigliadin antibodies;  i.e., to find a marker which characterizes the condition.   But because of your gluten free status you may not have this marker either by now if there were one.  Just a very long-winded way of saying that healing does not take place immediately :P , whether celiac or not, and that even in the absence of antibodies there is still damage for your body's road crew to work on before you become completely whole again.   I am five years gluten free and still living on the knife edge, hoping my  rheumatoid symptoms stay at bay and that I can ditch my Humira totally (I have used it for only two separate months out of the last 18 or so months, last time in November last year.)  While all my joints have recovered I occasionally get flares of that electrical-type exruciating pain in my fingers and toes, now down to every six months or so or perhaps, we can hope, now gone forever. :rolleyes: My rheumatologist in U.S. does not believe in a dietary connection with RA but is at a loss to understand how I can go without treatment for such long periods.  Certainly it could not be because of my diet :blink:

 

I would be totally supportive of you not further poisoning yourself to satisfy some doctor's craving for certainty, so long as you do not need that certainty for yourself, also.  You must look inside yourself for that answer.

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My results were much the same after 6 months of gluten-free.  Now I know when I eat something I should not by accident, or am weak and think just one bite.  That is why I am here today.  Good luck you will feel better I know.

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    Chop cooled chicken and set aside.
    Heat 1 inch of cooking oil in a small frying pan.
    When oil is hot, use a spatula to submerge a tortilla in the oil and leave only long enough to soften, about 10 seconds or so. 
    Remove soft tortilla to a paper towel and repeat with remaining tortillas.
    Pour enough enchilada sauce to coat the bottom of a large casserole pan.
    Dunk a tortilla into the sauce and cover both sides. Add more sauce as needed.
    Fill each tortilla with bits of chicken, cauliflower, onion, and queso fresco, and roll into shape.
    When pan is full of rolled enchiladas, top with remaining sauce.
    Cook at 350F until sauce bubbles.
    Remove and top with fresh cotija cheese and scallions.
    Serve with rice, beans, and cabbage, and garnish with avocado, cilantro, and sliced grape tomatoes.

     

    Roxanne Bracknell
    Celiac.com 06/22/2018 - The rise of food allergies means that many people are avoiding gluten in recent times. In fact, the number of Americans who have stopped eating gluten has tripled in eight years between 2009 and 2017.
    Whatever your rationale for avoiding gluten, whether its celiac disease, a sensitivity to the protein, or any other reason, it can be really hard to find suitable places to eat out. When you’re on holiday in a new and unknown environment, this can be near impossible. As awareness of celiac disease grows around the world, however, more and more cities are opening their doors to gluten-free lifestyles, none more so than the 10 locations on the list below.
    Perhaps unsurprisingly, the U.S is a hotbed of gluten-free options, with four cities making the top 10, as well as the Hawaiian island of Maui. Chicago, in particular, is a real haven of gluten-free fare, with 240 coeliac-safe eateries throughout this huge city. The super hip city of Portland also ranks highly on this list, with the capital of counterculture rich in gluten-free cuisine, with San Francisco and Denver also included. Outside of the states, several prominent European capitals also rank very highly on the list, including Prague, the picturesque and historic capital of the Czech Republic, which boasts the best-reviewed restaurants on this list.
    The Irish capital of Dublin, meanwhile, has the most gluten-free establishments, with a huge 330 to choose from, while Amsterdam and Barcelona also feature prominently thanks to their variety of top-notch gluten-free fodder.
    Finally, a special mention must go to Auckland, the sole representative of Australasia in this list, with the largest city in New Zealand rounding out the top 10 thanks to its 180 coeliacsafe eateries.
    The full top ten gluten-free cities are shown in the graphic below:
     

    Jefferson Adams
    Celiac.com 06/21/2018 - Would you buy a house advertised as ‘gluten-free’? Yes, there really is such a house for sale. 
    It seems a Phoenix realtor Mike D’Elena is hoping that his trendy claim will catch the eye of a buyer hungry to avoid gluten, or, at least one with a sense of humor. D’Elena said he crafted the ads as a way to “be funny and to draw attention.” The idea, D’Elena said, is to “make it memorable.” 
    Though D’Elena’s marketing seeks to capitalizes on the gluten-free trend, he knows Celiac disease is a serious health issue for some people. “[W]e’re not here to offend anybody….this is just something we're just trying to do to draw attention and do what's best for our clients," he said. 
    Still, the signs seem to be working. D'elena had fielded six offers within a few days of listing the west Phoenix home.
    "Buying can sometimes be the most stressful thing you do in your entire life so why not have some fun with it," he said. 
    What do you think? Clever? Funny?
    Read more at Arizonafamily.com.

    Advertising Banner-Ads
    Bakery On Main started in the small bakery of a natural foods market on Main Street in Glastonbury, Connecticut. Founder Michael Smulders listened when his customers with Celiac Disease would mention the lack of good tasting, gluten-free options available to them. Upon learning this, he believed that nobody should have to suffer due to any kind of food allergy or dietary need. From then on, his mission became creating delicious and fearlessly unique gluten-free products that were clean and great tasting, while still being safe for his Celiac customers!
    Premium ingredients, bakeshop delicious recipes, and happy customers were our inspiration from the beginning— and are still the cornerstones of Bakery On Main today. We are a fiercely ethical company that believes in integrity and feels that happiness and wholesome, great tasting food should be harmonious. We strive for that in everything we bake in our dedicated gluten-free facility that is GFCO Certified and SQF Level 3 Certified. We use only natural, NON-GMO Project Verified ingredients and all of our products are certified Kosher Parve, dairy and casein free, and we have recently introduced certified Organic items as well! 
    Our passion is to bake the very best products while bringing happiness to our customers, each other, and all those we meet!
    We are available during normal business hours at: 1-888-533-8118 EST.
    To learn more about us at: visit our site.

    Jefferson Adams
    Celiac.com 06/20/2018 - Currently, the only way to manage celiac disease is to eliminate gluten from the diet. That could be set to change as clinical trials begin in Australia for a new vaccine that aims to switch off the immune response to gluten. 
    The trials are set to begin at Australia’s University of the Sunshine Coast Clinical Trials Centre. The vaccine is designed to allow people with celiac disease to consume gluten with no adverse effects. A successful vaccine could be the beginning of the end for the gluten-free diet as the only currently viable treatment for celiac disease. That could be a massive breakthrough for people with celiac disease.
    USC’s Clinical Trials Centre Director Lucas Litewka said trial participants would receive an injection of the vaccine twice a week for seven weeks. The trials will be conducted alongside gastroenterologist Dr. James Daveson, who called the vaccine “a very exciting potential new therapy that has been undergoing clinical trials for several years now.”
    Dr. Daveson said the investigational vaccine might potentially restore gluten tolerance to people with celiac disease.The trial is open to adults between the ages of 18 and 70 who have clinically diagnosed celiac disease, and have followed a strict gluten-free diet for at least 12 months. Anyone interested in participating can go to www.joinourtrials.com.
    Read more at the website for Australia’s University of the Sunshine Coast Clinical Trials Centre.

    Source:
    FoodProcessing.com.au

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    • Dear Cyclinglady,   thank you for your help. Yes, I am trying to find out what my underlying condition is. But the doctors don’t help at all (insurance can’t be an issu since I have ful insurance). But they closed my case with the diagnosis: nonfunctional LES with constant taking of ppis for a lifetime. But ppis are making my problems even bigger so I trying to fing out what is happening. I’ve been convincing them to test me for celiac disease and because the result was negative (only IGA testing) they ruled it out. All I have is low vitamin d, low iron, same problems as before taking ppis, nausea with ppis, still bloating with gases and burping. Ppi works only 12 hours - the biggest dose. After 12 hours burping brings more acid to my esophagus. All that doctors say is that ppis should work and don’t believe me that in my case ppis are working just half of the time. I tried to take half dose in the morning and half in the evening but half dose helps only for 6 hours. So their suggestion is: take more ppis and another medicine for motility. and case closed for them letting me desperate and completely lost. Any help appreciated, Aya  
    • Posterboy, thank you sooooo much. I can’t tell you how greatful I am for your long and detailed answer. I have many additional questions (I asked you few more additional questions in my other post about celiac and reflux) I am just trying to find my underlying condition. I am afraid I’ll have to stay with ppi for two additional months, since I have esophagitis grade b, confirmed with biopsy a week ago. It was first time that I have inflamed esophagus. Last endoscopies showed only nonfunctional LES. I think this inflamarion is because od a panic attack after drinking coffee with a lot of sugar and nausea after that. Some coffees make me sick and some don’t. I would just like to find out what relaxes my LES and what is my underlying condition.  Ppis obviously don’t help, since my problema with bloating and gases and reflux are continuing. Stomach hurts when is empty. And I have huge amount of gases 1 hour after eating and during the night 4-6 hours after last meal. Please if you have any additional idea what could it be, tell me!!! Best, aya
    • Oh, wow, thanks, I was told by my doctor that I had the "full" panel but I guess not. Unfortunately I have the type of insurance that means I have to see her again before I can do anything else and she is out on vacation until July 10 so there is almost no point in trying to make another appointment before the specialist one. I doubt urgent care would do it?
    • Thank you all for your help!!! It’s a bit clearer now.  I had problems with gases and bloating and reflux a year ago and doc prescribed Lansoprazol. He said my lower esophageal sphiincter doesn’ t work properly.  I was taking lansoprazol 30mg for half a year with huge problems with nausea and even more bloating. Than I lowered the dose to 15 for next half a year and felt better and than stopped taking them. I’ve been off for a months when I started noticing numb tongue and reflux again. So I started taking ppi again. And it’s worse again. I know I have to stop using ppi, but I think I have underlying condition that is making my bloating and reflux and I have to solve it first so that reflux, which is my biggest concern, will go away. I have been anemic long years before taking ppi, now I have low vitamin d, and quite high result IGA 16 (celiac is >20). Can be reason for low vitamin d in ppi too or is more likely because of celiac? Doctors don’t want to make any additional test because they say celiac disease can’t be the reason since this test is negative. And so I am still searching what could be my primary problem. They just want to operate my LES and that’s it for them. But I know this won’t solve my problem since the reason has to be somewhere else. The problem is that the highest dose of lansoprazole is helping me for 12 hours and not 24 like it should. It’s just making my nausea worse and doesn’t help like it should I get bloated with reflux gases, burping 1 hour after eating. My last meal of the day is at 8 p.m. And the worst reflux attac is usually around midnight and 1 a.m. Aya
    • The full celiac panel includes: TTG IGA
      TTG IGG
      DGP IGA
      DGP IGG
      EMA
      IGA A positive on any one blood test should lead to a gastroenterologist doing an endoscopy /biopsies to see if you have celiac. It looks like you are missing the DGP tests. Perhaps you can get them done while you are waiting for your gastro appointment. You could possibly have a more definitive result from them.  
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