Rate this topic

Recommended Posts

A few funky topics in one :rolleyes:

 

I don't have my follow up visit until next month to discuss any further diagnosing considering I can't help to be gluten-free and feeling wonderful!  But now I'm starting to notice that when I have any bit of dairy besides eggs, I don't seem to have problems with eggs...  I get the severe sharp stomach pains and bloating.  Are my symptoms to other possible food allergies amplified because of a "cleaner diet" transition?  I've always ignored my gi symptoms in the past so I'm wondering if I've always been kind of lactose and just recently noticing or can other post gluten-free reactions to other things exacerbate once you go through process of elimination?  Now I'm nervous I really have to cut out dairy...

 

Last night I was using a massage chair and started getting hives... I have physical/exercise uticaria and was wondering if anyone had something like this and if it would all be linked somehow.  It's not been as bad since I've been off gluten but I still get them sometimes.  Like if I run on the treadmill or run outside I start getting welts in between my thighs, burning itching all over my body.  Or if I get a back massage and the person starts to do the "chopping" massage I get hives as well and if I wash my car with my garden hose the cold water pressure that hits my legs will give me horrible itching, burning, welts :( .

 

Is there any correlation with blood type and celiacs/gluten intolerance?  The "blood type" diet was part of a conversation my co-workers were having and what's interesting is that its suggested that people with blood type 0 should be on more of a "paleo" style diet considering it is the "ancient" blood type, the newer food groups like dairy, grains, etc are difficult for the body to process.  My blood type is 0 and was wondering if there are any celiacs that are as well.  I don't expect this but what some research is saying is that about 50% of type 0 are celiacs.

 

Hope you are all having a wonderful day :lol:

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I'm not surw about your "research" on blood types.   Please share it.  Type 0 is the most common blood type, it might make sense that its the most common type among people with Celiac.

 

http://www.redcrossblood.org/learn-about-blood/blood-types

 

O positive is the most common blood type. Not all ethnic groups have the same mix of these blood types. Hispanic people, for example, have a relatively high number of O’s, while Asian people have a relatively high number of B’s. The mix of the different blood types in the U.S. population is:

 

 
Caucasians
African American
Hispanic
Asian
O +
37%
47%
53%
39%
O -
8%
4%
4%
1%
A +
33%
24%
29%
27%
A -
7%
2%
2%
0.5%
B +
9%
18%
9%
25%
B -
2%
1%
1%
0.4%
AB +
3%
4%
2%
7%
AB -
1%
0.3%
0.2%
0.1%
 
 
This table didn't copy well.  Look at the link.
 
 
 
Edited by kareng

Share this post


Link to post
Share on other sites

This is a link that goes over Dr. Peter J. Adamo's blood type philosophy...  I don't expect it to work for everyone or be followed but I thought it was interesting! :)  Was curious if anyone followed it and it makes sense that a majority of celiacs are type o because of how common the blood type is, I didn't know that! Its geared more towards weight loss but I feel that the layout it provides makes sense if in fact you have some of these food allergies that it suggests you to avoid. I thought it was neat how it lined up to the fact that I started noticing my trouble with dairy, certain grains and how I need to be active and love being active even though I have been suffering from fatigue. There's also information on other blood types.  http://www.dadamo.com/bloodtype_O.htm

Share this post


Link to post
Share on other sites

.

 

.  I don't expect this but what some research is saying is that about 50% of type 0 are celiacs.

 

 

This is a link that goes over Dr. Peter J. Adamo's blood type philosophy...  I don't expect it to work for everyone or be followed but I thought it was interesting! :)  Was curious if anyone followed it and it makes sense that a majority of celiacs are type o because of how common the blood type is, I didn't know that! Its geared more towards weight loss but I feel that the layout it provides makes sense if in fact you have some of these food allergies that it suggests you to avoid. I thought it was neat how it lined up to the fact that I started noticing my trouble with dairy, certain grains and how I need to be active and love being active even though I have been suffering from fatigue. There's also information on other blood types.  http://www.dadamo.com/bloodtype_O.htm

 

 

So basically, there is no research about blood type and Celiac.  As I remember, this guy has no real medical evidence of most of the "info" in his book.  Its was just a fad diet book.

Share this post


Link to post
Share on other sites

What? Another with the same symptoms I get while exercising? And with a name! Awesome, really.

I have tried many diets to help with my AI conditions, blood type included. I found the Arthritis protocol worked well for me as it eliminated all inflammatory foods - gluten, dairy, nightshades, soy, alcohol and it was very low carb, yes I am an O. I was impressed and moved onto the suggested SWAMI which is personalized, I guess, to me. Well, it brought back many of my symptoms and didn't work for me. I am dairy intolerant too and am having a hard time with it. Just tested cheese (mozarella) again today and my face is somewhat burning now (within 10 minutes of consuming). I would have to meet a A type to try both paleo and the blood type to get me fully convinced. My body is pretty sensitive and I can react pretty quickly to foods so on the blood type diet apples are shunned but I don't get a reaction when I eat them - figs are a superfood but I start burning within 10-15 minutes. I still suggest a food journal and elimination diet over anything else.

Share this post


Link to post
Share on other sites
Ads by Google:


So basically, there is no research about blood type and Celiac.  As I remember, this guy has no real medical evidence of most of the "info" in his book.  Its was just a fad diet book.

Sorry I didn't want to provide misleading information just thought it was interesting.

Share this post


Link to post
Share on other sites

What? Another with the same symptoms I get while exercising? And with a name! Awesome, really.

I have tried many diets to help with my AI conditions, blood type included. I found the Arthritis protocol worked well for me as it eliminated all inflammatory foods - gluten, dairy, nightshades, soy, alcohol and it was very low carb, yes I am an O. I was impressed and moved onto the suggested SWAMI which is personalized, I guess, to me. Well, it brought back many of my symptoms and didn't work for me. I am dairy intolerant too and am having a hard time with it. Just tested cheese (mozarella) again today and my face is somewhat burning now (within 10 minutes of consuming). I would have to meet a A type to try both paleo and the blood type to get me fully convinced. My body is pretty sensitive and I can react pretty quickly to foods so on the blood type diet apples are shunned but I don't get a reaction when I eat them - figs are a superfood but I start burning within 10-15 minutes. I still suggest a food journal and elimination diet over anything else.

Yeah the hives with exercise is weird. My mom has it as well! And I agree on the process of elimination diet. I match that of what that diet says but I understand that it's not backed with medical research so it wouldn't apply to everyone. Sucks with the dairy issue because I love cheese on everything ;(

Share this post


Link to post
Share on other sites

I am very familiar with all the heat/exercise related symptoms - for me this continued to get worse even after my celiac diagnosis -- an awful lot of reading and research led me to Histamine Intolerance (HIT) - you see, when we exercise our bodies produce histamine -- in a healthy body histamine is regulated by enzymes that are created in the mucosal lining of the small intestine -- those with celiac disease have damage to the small intestine -- so it makes it very difficult for some of us to regulate histamine. 

 

Limiting histamine containing and histamine inducing foods has helped me tremendously -- still researching as much as I can about "HIT" as it is not something US doctors are very well versed in.

 

As for the blood type diet -- I am familiar with the principles of this -- as far as I know there is no correlation between blood type and celiac disease -- I have O- and my kids/grands have different blood types.

Share this post


Link to post
Share on other sites

As with any other allergy you could possibly eventually have an anaphylaxic reaction right? I mean how can you tell... I get scared sometimes since it gets triggered so differently.. I don't want to be in a Zumba class and collapse.. I notice when I do I turn bright red and feel like I'm on fire then ill have shortness of breath because of activity induced asthma :|.. Is it getting better for you now? I feel like the more I take time to realize all this the more I feel like my list of problems rise lol.. Is it from some brain fog lifting :P so I just checked out your list and it sounds a lot like me! Do you mainly eat whole foods? I looked at a hit food list and it makes gluten-free in addition to this more restricted. This is tough :( if it helped you with your heat intolerance/exercise reactions I really might have to try.

Share this post


Link to post
Share on other sites

Yep - removing histimane foods has helped quite a bit. I can now be out in the sunshine as long as I don't push it. I can ride my bike or run as long as it is under 65F and walk up to low 70s - for me this is a huge improvement.

I am hopeful that I am finally healing my small intestine and will eventually get many of the foods I have removed back - just not anytime soon.

And yes I carry benedryl, inhaler and Epi pens when I excerise - well everywhere - but especially when I am exercising.

Share this post


Link to post
Share on other sites


Ads by Google:


Just so you know...  Eggs are not dairy.  I have always gotten hives easily.  Not always a known cause.  Dairy does make me sick but I don't have celiac.

Share this post


Link to post
Share on other sites

Trxlm, I relate to your point about the fog lifting and finally "seeing things". I has taken me two full years to get to a point where I see a food causing a reaction. I personally react to all inflammatory foods (except red meat and eggs) so the list is pretty extensive. I can have most things in moderation but find soy, peanuts, gluten and dairy (not so much butter) have to be kept out. I do find the more I eliminate and stick to a very restricted diet the better I feel and do. Tough lifestyle though while facing others because they think I am a whacko.

The burning, itchy rash mostly happens when I exercise outside in cooler weather.

Share this post


Link to post
Share on other sites

Just realized that I didn't answer about whole foods -- I often forget my signature is so long perhaps it is not clear what I actually eat.

 

Meat, Fish, Almonds, Vegies that do not contain or induce histamine production -- limited fruits - mostly apples and pears -- occasional other fruits, but never citrus or bananas.

 

I use almond and coconut flour to make muffins and limit my oil to coconut with a touch of olive oil.

 

Life is much better now that I feel much better -- was very difficult to keep losing foods without much improvement -- now that I'm vertical it is easy to make lots of yummy things with my limited food list.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
0

  • Who's Online   17 Members, 1 Anonymous, 470 Guests (See full list)

  • Top Posters +

  • Recent Articles

    Roxanne Bracknell
    Celiac.com 06/22/2018 - The rise of food allergies means that many people are avoiding gluten in recent times. In fact, the number of Americans who have stopped eating gluten has tripled in eight years between 2009 and 2017.
    Whatever your rationale for avoiding gluten, whether its celiac disease, a sensitivity to the protein, or any other reason, it can be really hard to find suitable places to eat out. When you’re on holiday in a new and unknown environment, this can be near impossible. As awareness of celiac disease grows around the world, however, more and more cities are opening their doors to gluten-free lifestyles, none more so than the 10 locations on the list below.
    Perhaps unsurprisingly, the U.S is a hotbed of gluten-free options, with four cities making the top 10, as well as the Hawaiian island of Maui. Chicago, in particular, is a real haven of gluten-free fare, with 240 coeliac-safe eateries throughout this huge city. The super hip city of Portland also ranks highly on this list, with the capital of counterculture rich in gluten-free cuisine, with San Francisco and Denver also included. Outside of the states, several prominent European capitals also rank very highly on the list, including Prague, the picturesque and historic capital of the Czech Republic, which boasts the best-reviewed restaurants on this list.
    The Irish capital of Dublin, meanwhile, has the most gluten-free establishments, with a huge 330 to choose from, while Amsterdam and Barcelona also feature prominently thanks to their variety of top-notch gluten-free fodder.
    Finally, a special mention must go to Auckland, the sole representative of Australasia in this list, with the largest city in New Zealand rounding out the top 10 thanks to its 180 coeliacsafe eateries.
    The full top ten gluten-free cities are shown in the graphic below:
     

    Jefferson Adams
    Celiac.com 06/21/2018 - Would you buy a house advertised as ‘gluten-free’? Yes, there really is such a house for sale. 
    It seems a Phoenix realtor Mike D’Elena is hoping that his trendy claim will catch the eye of a buyer hungry to avoid gluten, or, at least one with a sense of humor. D’Elena said he crafted the ads as a way to “be funny and to draw attention.” The idea, D’Elena said, is to “make it memorable.” 
    Though D’Elena’s marketing seeks to capitalizes on the gluten-free trend, he knows Celiac disease is a serious health issue for some people. “[W]e’re not here to offend anybody….this is just something we're just trying to do to draw attention and do what's best for our clients," he said. 
    Still, the signs seem to be working. D'elena had fielded six offers within a few days of listing the west Phoenix home.
    "Buying can sometimes be the most stressful thing you do in your entire life so why not have some fun with it," he said. 
    What do you think? Clever? Funny?
    Read more at Arizonafamily.com.

    Advertising Banner-Ads
    Bakery On Main started in the small bakery of a natural foods market on Main Street in Glastonbury, Connecticut. Founder Michael Smulders listened when his customers with Celiac Disease would mention the lack of good tasting, gluten-free options available to them. Upon learning this, he believed that nobody should have to suffer due to any kind of food allergy or dietary need. From then on, his mission became creating delicious and fearlessly unique gluten-free products that were clean and great tasting, while still being safe for his Celiac customers!
    Premium ingredients, bakeshop delicious recipes, and happy customers were our inspiration from the beginning— and are still the cornerstones of Bakery On Main today. We are a fiercely ethical company that believes in integrity and feels that happiness and wholesome, great tasting food should be harmonious. We strive for that in everything we bake in our dedicated gluten-free facility that is GFCO Certified and SQF Level 3 Certified. We use only natural, NON-GMO Project Verified ingredients and all of our products are certified Kosher Parve, dairy and casein free, and we have recently introduced certified Organic items as well! 
    Our passion is to bake the very best products while bringing happiness to our customers, each other, and all those we meet!
    We are available during normal business hours at: 1-888-533-8118 EST.
    To learn more about us at: visit our site.

    Jefferson Adams
    Celiac.com 06/20/2018 - Currently, the only way to manage celiac disease is to eliminate gluten from the diet. That could be set to change as clinical trials begin in Australia for a new vaccine that aims to switch off the immune response to gluten. 
    The trials are set to begin at Australia’s University of the Sunshine Coast Clinical Trials Centre. The vaccine is designed to allow people with celiac disease to consume gluten with no adverse effects. A successful vaccine could be the beginning of the end for the gluten-free diet as the only currently viable treatment for celiac disease. That could be a massive breakthrough for people with celiac disease.
    USC’s Clinical Trials Centre Director Lucas Litewka said trial participants would receive an injection of the vaccine twice a week for seven weeks. The trials will be conducted alongside gastroenterologist Dr. James Daveson, who called the vaccine “a very exciting potential new therapy that has been undergoing clinical trials for several years now.”
    Dr. Daveson said the investigational vaccine might potentially restore gluten tolerance to people with celiac disease.The trial is open to adults between the ages of 18 and 70 who have clinically diagnosed celiac disease, and have followed a strict gluten-free diet for at least 12 months. Anyone interested in participating can go to www.joinourtrials.com.
    Read more at the website for Australia’s University of the Sunshine Coast Clinical Trials Centre.

    Source:
    FoodProcessing.com.au

    Jefferson Adams
    Celiac.com 06/19/2018 - Could baking soda help reduce the inflammation and damage caused by autoimmune diseases like rheumatoid arthritis, and celiac disease? Scientists at the Medical College of Georgia at Augusta University say that a daily dose of baking soda may in fact help reduce inflammation and damage caused by autoimmune diseases like rheumatoid arthritis, and celiac disease.
    Those scientists recently gathered some of the first evidence to show that cheap, over-the-counter antacids can prompt the spleen to promote an anti-inflammatory environment that could be helpful in combating inflammatory disease.
    A type of cell called mesothelial cells line our body cavities, like the digestive tract. They have little fingers, called microvilli, that sense the environment, and warn the organs they cover that there is an invader and an immune response is needed.
    The team’s data shows that when rats or healthy people drink a solution of baking soda, the stomach makes more acid, which causes mesothelial cells on the outside of the spleen to tell the spleen to go easy on the immune response.  "It's most likely a hamburger not a bacterial infection," is basically the message, says Dr. Paul O'Connor, renal physiologist in the MCG Department of Physiology at Augusta University and the study's corresponding author.
    That message, which is transmitted with help from a chemical messenger called acetylcholine, seems to encourage the gut to shift against inflammation, say the scientists.
    In patients who drank water with baking soda for two weeks, immune cells called macrophages, shifted from primarily those that promote inflammation, called M1, to those that reduce it, called M2. "The shift from inflammatory to an anti-inflammatory profile is happening everywhere," O'Connor says. "We saw it in the kidneys, we saw it in the spleen, now we see it in the peripheral blood."
    O'Connor hopes drinking baking soda can one day produce similar results for people with autoimmune disease. "You are not really turning anything off or on, you are just pushing it toward one side by giving an anti-inflammatory stimulus," he says, in this case, away from harmful inflammation. "It's potentially a really safe way to treat inflammatory disease."
    The research was funded by the National Institutes of Health.
    Read more at: Sciencedaily.com

  • Forum Statistics

    • Total Topics
      110,274
    • Total Posts
      949,856
  • Member Statistics

    • Total Members
      77,852
    • Most Online
      3,093

    Newest Member
    btvance
    Joined
  • Popular Now

  • Topics

  • Posts

    • There are multiple blood test for the disease, and you have to be eating gluten daily for it to even show up. But some people test negative on the blood test. The gold standard is a Endoscope with biopsies to check for damaged villi.
      https://celiac.org/celiac-disease/understanding-celiac-disease-2/diagnosing-celiac-disease/screening/   Oh for your D issues, higher potassium foods can help dry the stool out and eating stuff like coconut flour in eggs/smoothies/baked goods can help add mass and drier bulk to your stools. Potassium supplements can also help.
       If your flaring try looking at taking Marshmallow Root, Slippery Elm, and AloeVera. They coat the intestines and help sooth them if inflamed or irriated.
    • Hi Nadia, I know my reply is years late. But I am a fellow honey allergic person. I had it since I can remember when my mother used to force feed me honey by slipping a couple of spoons in my milk or creal bowl and it wouldn't take an hour and I would be throwing up uncontrollably in school. My parents wouldnt believe that it was honey as my dad is a an M.D. and he has never heard of a case of honey allergy. I have no other problema with fruites and I am not a fan of jam anyway. So my only source of discomfort over the years has been honey only. I tried different kind and I thought I'd out grow it but I didnt. When i forget to ask or check salad dressings and deserts and I start getting stomachaches I then find out I ate honey by mistake. It sometimes takes me days to get over the stomache pains. I couldnt find an explanation other than being a minority. I do however have a couple more weird allergies, I am allergic sometimes to bell peppers and eggplants and in this case I get a rash on my lips. And I am allergic to Avocados the same way I am to honey.  The only thing I do is stay aware of not eating it.
    • I absolutely love Ann Byrn's book!!!! There is an amazing mix of cakes... absolutely recommend this book!
    • Genetic testing for celiac disease is primarily used to rule out celiac disease. Why?  Some 30% of the population carries the genes that could develop into celiac disease which is not “common” if you crunch the numbers.  In some cases, genetic results can help guide a doctor in diagnosing a patient when test results are negative.  Diagnosing celiac disease is not easy, especially in small children.   I am not sure knowing genetic results for the mass population is a good thing.  For example,  I would hate for my kid to be labeled a potential celiac (genetic test results) when she applies for health, life or disability insurance.  This is still unchartered waters.  At least this is something she does not have to disclose on an application.   Maybe it is because I have been denied health insurance because I had one autoimmune disorder at the time.  It is not like that now, but who knows?   If she was seriously ill, I would not hesitate to ask for genetic testing.    
  • Blog Entries

  • Upcoming Events