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UnhappyCoeliac

"people With A Preexisting Condition"

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Does that mean us?

When referring to a new super strain of flu. I've always wondered are they talking to me? Sadly I get sick all the time mostly from a train carriage full of people :(

Should I get the flu vaccine? It's free in Australia.

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If you get the flu vaccine make sure you know what is in it.  I saw on the website of the Center for Disease Control http://www.cdc.gov/vaccines/vac-gen/additives.htm Thimerosal (mercury) is in it..  They also list fermeldahyde as a possible ingredient in vaccines.    They have a list of each specific vaccine and its contents. 

 

I don't get vaccines  I read the label and consider whether this is for my best health or not.  Just as I would anything I put into my mouth...  I take my health seriously and do follow a careful diet, garden, and exercise. 

 

. You can find literature with each vaccination box.  You Physician should be able to give the list to you as you consider what is in the vaccine.  You may find some surprises if you look carefully into what each ingredient is.

 

 

I found evidence .on the center for Disease Control that abortion materials are  in some vaccines.  I copied the ingredients for Adenovirus. PSAWYER just pointed out that this is not the flu.It is an example of the ingredients in one vaccine:  The adenovirus vaccine.

 

 

sucrose, D-mannose, D-fructose, dextrose, potassium phosphate, plasdone C, anhydrous lactose, micro crystalline cellulose, polacrilin potassium, magnesium stearate, cellulose acetate phthalate, alcohol, acetone, castor oil, FD&C Yellow #6 aluminum lake dye, human serum albumin, fetal bovine serum, sodium bicarbonate, human-diploid fibroblast cell cultures (WI-38), Dulbecco’s Modified Eagle’s Medium

To clarify it is the human-dipoid  cell cultures which I believe are from an aborted fetus.  I have discussed this with a few medical doctors and they did not deny it.

 

Incase you need a to find out what a human diploid cell is I went here to find out about it.http://www.ncbi.nlm.nih.gov/pmc/articles/PMC377233/?page=1  I believe these cells are also called stem cells.

 

I am sorry that I did not fully support this at first.  My wording, I thought, was stronger than it should have been.  I would not have picked this fight here on the forum, but forgot that it was not common knowledge.  I hope that you will forgive this.  I also hope that I have fully supported my position with credible sources.

 

I previously said that there is human ingredients in the vaccine, but I meant some vaccines and now have revised it to be more correct.   I am sorry it was necessary to make this change but my edits have been intended to make the information that I shared more accurate.  I cannot share which vaccines are flu, because I do not know.  I did, however, refer to the CDC for all to check the ingredients.

 

I am perfectly willing to rewrite this with just the link to read the lists of ingredients and a caution to do so if that will be acceptable.  I hesitate to do it now, because some have replied to it and I cannot change those.

 

Diana

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If you get the flu vaccine make sure you know what is in it.  I don't get them because they put in mercury, fermeldahide, and materials derived from abortions.  I take my health seriously and do follow a careful diet, garden, and exercise.  One can find out what they contain by visiting (USA) the Center for Disease Control Website.

Can you post a link for this, please?

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If you are continueing to get glutened, which is the impression I got from another of your posts, your body is going to be so busy fighting the gluten that it won't be able to fight off other stuff.  I have worked in schools and with the public for years and I used to catch everything that was going around pre gluten free but very rarely get ill now. That may off course not be the case for you.

Do what you can to prevent picking up these 'bugs'. Wash your hands a lot and keep them away from your face as much as you can. Hopefully your body will be better able to fight off communicable illnesses once it has healed from gluten.

As far as getting a flu shot talk to your doctor about any concerns you have and then make a decision on whether or not to get one.

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If you are continueing to get glutened, which is the impression I got from another of your posts, your body is going to be so busy fighting the gluten that it won't be able to fight off other stuff.  I have worked in schools and with the public for years and I used to catch everything that was going around pre gluten free but very rarely get ill now. That may off course not be the case for you.

Do what you can to prevent picking up these 'bugs'. Wash your hands a lot and keep them away from your face as much as you can. Hopefully your body will be better able to fight off communicable illnesses once it has healed from gluten.

As far as getting a flu shot talk to your doctor about any concerns you have and then make a decision on whether or not to get one.

 

Yeah I am battling never getting Gluten-Free for more than 4 days at the moment so yeah my body is busy battling gluten. I think it's probably wise I get it!

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I won't get into an argument here on the intelligence of mercury in vaccines, but with one exception it is only in multidose vials as a preservative and can be easily avoided by simply requesting a prefilled syringe injection. As for other preservatives, anyone can contact doctors and pharmacies in their area and see which brand is available and if it is prefilled or not and then go look up the ingredients.

http://www.cdc.gov/flu/protect/vaccine/vaccines.htm

 

Only one company uses mammalian cells to make their flu shots, and they use animal cells. Still, it is quite frankly a huge leap forward to have the shot available to people with egg allergies. I did also see that there is a new insect based one that was approved just this year.

http://www.cdc.gov/flu/protect/vaccine/cell-based.htm

http://thechart.blogs.cnn.com/2012/11/21/fda-approves-new-type-of-flu-shot/

 

The shots are safe for us and soon should be more readily available for people with egg allergies also. This is good news. Many of us have been sick for a long time and are frankly sick of being sick. If a simple shot can save me from the flu, I'll do it.

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Yeah I am battling never getting Gluten-Free for more than 4 days at the moment so yeah my body is busy battling gluten. I think it's probably wise I get it!

It sounds like you are one of us for whom gluten is addictive. You have to beat this! Your life and quality of life depend on it. It is hard and you may go through a form of withdrawl. We are here to help in any way we can. You can do it!

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If you get the flu vaccine make sure you know what is in it.  I don't get them because they put in mercury, fermeldahide, and materials derived from abortions.  I take my health seriously and do follow a careful diet, garden, and exercise.  One can find out what they contain by visiting (USA) the Center for Disease Control Website.

Provide evidence to support this allegation, or withdraw it. Rule 5.

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Provide evidence to support this allegation, or withdraw it. Rule 5.

Thank you, I couldn't type, my jaw fell onto the keyboard.

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Pre-existing conditions: Illness disease or treatment that may result in danger from taking the flu vaccine. This changes depending on which vaccine you receive. Go to: http://www.cdc.gov/vaccines/vpd-vac/should-not-vacc.htm and scroll down for each vaccine.

If you have a milder condition, discuss with you doctor the risks of getting vaccinated and weigh those with the risks of getting sick. 36,000 people die each year from the flu.  

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Since going on the gluten-free diet, I find that I don't get AS sick as I used to.  I still seem to catch colds but I don't end up with fevers for days on end or secondary bronchitis or sinus infections. It could just be a coincidence that I don't get as sick now that I'm gluten-free, but I doubt it.

 

If you are having a tough time staying gluten-free, and have found the flu shot works for you in the past, I would get it. It's always good to have that healthy edge.

 

I am one of those people who tends to get sick for a week every time I get the flu shot so I gave up on them; I actually seemed to get sick less when I skip the shot. Instead I use homeopathy flu "vaccines". It works for me, whether it is the placebo affect or not, but I know it's not for everyone.

 

Good luck, and best wishes getting the gluten out of your life.

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Can you post a link for this, please?

.  Sorry, I forgot that this wasn't common knowledge, I have discussed it with several doctors and a person that used to work in a vaccine lab.  Please see my amended post for a link to the Center for Disease Controls ingredients of vaccines lists.  .

 

http://www.cdc.gov/vaccines/vac-gen/additives.htm  You can find what ingredients are in these vaccines by visiting this sight.  Look for a list which shows the specifics for each vaccine.  Also, they have a general list of some of the ingredients.

 

 

Diana

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First, there is not one "flu shot". It varies from one year to the next depending on which strains of flu are going around. Some years more than one shot is needed if a strain is recognized later than usual.

Then, some vaccines use live virus weakened to a point that can not cause sickness but will cause the body to produce antibodies. Other vaccines do not use live virus. 

Some vaccines are not injections, but tablets or nasal sprays.

Further, people with egg allergy can not take some vaccines but eggs are not used in all vaccines.

All these things are listed on package inserts and can be found on several websites by searching "influenza vaccine package insert".

If anyone decides not to get the flu vaccine, they should avoid contact with people who could be put in danger by the spread of the flu. Unvaccinated persons may be carriers, causing illness or death in "at risk" populations, small children, the elderly, pregnant women, people with compromised immune systems and chronic illnesses to name a few. 

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Provide evidence to support this allegation, or withdraw it. Rule 5.

I failed to support this well at first.  I was rather strong for the audience.  Please forgive this and I did post some links now for people to look into the ingredients for themselves.

 

Get healthy, stay healthy.

Diana

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If you get the flu vaccine make sure you know what is in it.  I saw on the website of the Center for Disease Control http://www.cdc.gov/vaccines/vac-gen/additives.htm Thimerosal (mercury) is in it..  They also list fermeldahyde as a possible ingredient in vaccines.    They have a list of each specific vaccine and its contents. 

 

I don't get vaccines  I read the label and consider whether this is for my best health or not.  Just as I would anything I put into my mouth...  I take my health seriously and do follow a careful diet, garden, and exercise. 

 

. You can find literature with each vaccination box.  You Physician should be able to give the list to you as you consider what is in the vaccine.  You may find some surprises if you look carefully into what each ingredient is.

 

 

I found evidence .on the center for Disease Control that abortion materials in the vaccine.  I copied the ingredients for Adenovirus. 

 

 

sucrose, D-mannose, D-fructose, dextrose, potassium phosphate, plasdone C, anhydrous lactose, micro crystalline cellulose, polacrilin potassium, magnesium stearate, cellulose acetate phthalate, alcohol, acetone, castor oil, FD&C Yellow #6 aluminum lake dye, human serum albumin, fetal bovine serum, sodium bicarbonate, human-diploid fibroblast cell cultures (WI-38), Dulbecco’s Modified Eagle’s Medium

To clarify it is the human-dipoid  cell cultures which I believe are from an aborted fetus.  I have discussed this with a few medical doctors and they did not deny it.

 

Incase you need a to find out what a human diploid cell is I went here to find out about it.http://www.ncbi.nlm.nih.gov/pmc/articles/PMC377233/?page=1  I believe these cells are also called stem cells.

 

I am sorry that I did not fully support this at first.  My wording, I thought, was stronger than it should have been.  I would not have picked this fight here on the forum, but forgot that it was not common knowledge.  I hope that you will forgive this.  I also hope that I have fully supported my position with credible sources.

That is interesting about the Adenovirus vaccine, except that the Adenovirus vaccine is NOT a flu vaccine.

 

On that ingredients page there are six Influenza (flu) vaccines listed, none of which contain the materials in question.

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That is interesting about the Adenovirus vaccine, except that the Adenovirus vaccine is NOT a flu vaccine.

 

On that ingredients page there are six Influenza (flu) vaccines listed, none of which contain the materials in question.

I did look up adenovirus and I thought that it was the flu.  I did express it that I believed it was the flu..  My first intent was to discuss what I do about vaccinations in general and other vaccines have this ingredient.  I hadn't considered the flu vaccine in particular since I am not familiar with it having rejected all vaccines.  The question which I thought was asked was if a certain person should get the flu vaccine.  I thought I would voice an opinion for no.  It would had been better if I just encouraged the person to read the ingredients first as I have done in the past..

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Your statement refers to childhood immunizations, measles, mumps, rubella, hepatitis A and polio for which another method has yet to be found and the use of two (2) cultures from the 1960-70's still exist. Please understand, these are the only two cultures being used. No abortions are being used to harvest cells, no fibroblasts are being created to harvest cells. No research is being funded to allow harvest of aborted cells or to allow cells created for harvest.

Regarding the two cultures from forty years ago, the statement of position most researched and thoughtful comes from the Vatican:

 http://www.immunize.org/concerns/vaticandocument.htm

Please read this entire article with as much thoughtfulness as was given to it's production. Then please let us know your thoughts. Should we stop protecting against deadly childhood diseases?

 

Again, none of this has to do with yearly influenza vaccines.

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Straying back to Unhappy Coeliacs question for a bit.  UC, if you get sick often maybe it's time you changed your diet.  Half way measures don't work for the gluten-free diet.  You need to make a serious commitment to the gluten-free diet and get the gluten out of your body.  Then your immune system can focus it's efforts on fighting germs and other nasties instead of fighting itself.  That frees up antibodies to do something helpful for you instead of hurting you.  Making yourself sick on purpose is not helpful to your health.  It is not hard to stick to the gluten-free diet if you keep at it for a while.  It gets easier as your habits and expectations adjust.  If you want to get a flu shot that's ok.  But it won't change the fact that you are making yourself sick by consuming gluten on a regular basis.  Personally I don't get flu shots and I rarely get the flu.  Just because you haven't stuck to the gluten-free diet so far doesn't mean you can't do it now.  You can do it, if you decide to.  But that's your choice to make.  I do know that I am much happier and healthier on the gluten-free diet than I was eating gluten.  You may be surprised by how much improvement you can get by sticking to it for 6 months 100%.  Some improvements take time to happen.  But they can be very worthwhile.

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To clarify it is the human-dipoid  cell cultures which I believe are from an aborted fetus.  I have discussed this with a few medical doctors and they did not deny it.

 

Incase you need a to find out what a human diploid cell is I went here to find out about it.http://www.ncbi.nlm.nih.gov/pmc/articles/PMC377233/?page=1  I believe these cells are also called stem cells.

 

 

Your claims that "flu vaccines are made from aborted fetuses" is absurd and unfounded.

 

Human stem cells are not always derived from "aborted fetuses". 

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the OP has received solid advice about flu vaccines being safe for celiacs.

That's enough for a celiac to make a decision about what to do.

 

For the record, I do not get one because my arm swells up like a balloon and is sore for a week.

I taught for 22 years (schools are a breeding ground for this thing) and never contracted the flu. Never.

 

My hubs got the shot this year (he is not a celiac, but he is healthy and is gluten free) and he got the flu anyway.

and then, he gave it to me...

 

soo? what??.

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If you get the flu vaccine make sure you know what is in it.  I saw on the website of the Center for Disease Control http://www.cdc.gov/vaccines/vac-gen/additives.htm Thimerosal (mercury) is in it..  They also list fermeldahyde as a possible ingredient in vaccines.    They have a list of each specific vaccine and its contents. 

 

I don't get vaccines  I read the label and consider whether this is for my best health or not.  Just as I would anything I put into my mouth...  I take my health seriously and do follow a careful diet, garden, and exercise. 

 

. You can find literature with each vaccination box.  You Physician should be able to give the list to you as you consider what is in the vaccine.  You may find some surprises if you look carefully into what each ingredient is.

 

 

I found evidence .on the center for Disease Control that abortion materials are  in some vaccines.  I copied the ingredients for Adenovirus. PSAWYER just pointed out that this is not the flu.It is an example of the ingredients in one vaccine:  The adenovirus vaccine.

 

 

sucrose, D-mannose, D-fructose, dextrose, potassium phosphate, plasdone C, anhydrous lactose, micro crystalline cellulose, polacrilin potassium, magnesium stearate, cellulose acetate phthalate, alcohol, acetone, castor oil, FD&C Yellow #6 aluminum lake dye, human serum albumin, fetal bovine serum, sodium bicarbonate, human-diploid fibroblast cell cultures (WI-38), Dulbecco’s Modified Eagle’s Medium

To clarify it is the human-dipoid  cell cultures which I believe are from an aborted fetus.  I have discussed this with a few medical doctors and they did not deny it.

 

Incase you need a to find out what a human diploid cell is I went here to find out about it.http://www.ncbi.nlm.nih.gov/pmc/articles/PMC377233/?page=1  I believe these cells are also called stem cells.

 

I am sorry that I did not fully support this at first.  My wording, I thought, was stronger than it should have been.  I would not have picked this fight here on the forum, but forgot that it was not common knowledge.  I hope that you will forgive this.  I also hope that I have fully supported my position with credible sources.

 

I previously said that there is human ingredients in the vaccine, but I meant some vaccines and now have revised it to be more correct.   I am sorry it was necessary to make this change but my edits have been intended to make the information that I shared more accurate.  I cannot share which vaccines are flu, because I do not know.  I did, however, refer to the CDC for all to check the ingredients.

 

I am perfectly willing to rewrite this with just the link to read the lists of ingredients and a caution to do so if that will be acceptable.  I hesitate to do it now, because some have replied to it and I cannot change those.

 

Diana

I again quote post #2. It has been edited many times, but the edit window is now closed, and this will be the final version. Nevertheless, I am capturing it (again).

The source cited at the CDC lists 51 vaccines. Of those, six (6) are for Influenza (flu). None of those six contain material from human cells.

Material cultured from human stem cells is used to produce vaccines for Hepatitis-A and Rubella (German measles). Viruses must be grown on live cells, and so far research has not found an alternative host for these two viruses.

The Adenovirus vaccine was mentioned. It is not related to flu, and is not in general use, but is made by one manufacturer under contract to the US Department of Defense. If you are in the US military, it may be of concern to you.

To sum up, and end this discussion:

With regard to the original question, there is no reason for someone with celiac disease to avoid the flu vaccine because of celiac disease.

The flu vaccine does not contain material derived from human stem cells.

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    5. Kell CA, Neumann K, von Kriegstein K, Posenenske C, von Gudenberg AW, Euler H, Giraud AL. How the brain repairs stuttering. Brain. 2009 Oct;132(Pt 10):2747-60. Epub 2009 Aug 26.
    6. Galantucci S, Tartaglia MC, Wilson SM, Henry ML, Filippi M, Agosta F, Dronkers NF, Henry RG, Ogar JM, Miller BL, Gorno-Tempini ML. White matter damage in primary progressive aphasias: a diffusion tensor tractography study. Brain. 2011 Jun 11.
    7. Lundgren K, Helm-Estabrooks N, Klein R. Stuttering Following Acquired Brain Damage: A Review of the Literature. J Neurolinguistics. 2010 Sep 1;23(5):447-454.
    8. [No authors listed] Case records of the Massachusetts General Hospital. Weekly clinicopathological exercises. Case 43-1988. A 52-year-old man with persistent watery diarrhea and aphasia. N Engl J Med. 1988 Oct 27;319(17):1139-48
    9. Molteni N, Bardella MT, Baldassarri AR, Bianchi PA. Celiac disease associated with epilepsy and intracranial calcifications: report of two patients. Am J Gastroenterol. 1988 Sep;83(9):992-4.
    10. http://ezinearticles.com/?Food-Allergy-and-Stuttering-Link&id=1235725 
    11. http://www.craig.copperleife.com/health/stuttering_allergies.htm 
    12. https://www.celiac.com/forums/topic/73362-any-help-is-appreciated/
    13. Ford RP. The gluten syndrome: a neurological disease. Med Hypotheses. 2009 Sep;73(3):438-40. Epub 2009 Apr 29.
    14. Hadjivassiliou M, Gibson A, Davies-Jones GA, Lobo AJ, Stephenson TJ, Milford-Ward A. Does cryptic gluten sensitivity play a part in neurological illness? Lancet. 1996 Feb 10;347(8998):369-71.

    Jefferson Adams
    Celiac.com 06/14/2018 - Refractory celiac disease type II (RCDII) is a rare complication of celiac disease that has high death rates. To diagnose RCDII, doctors identify a clonal population of phenotypically aberrant intraepithelial lymphocytes (IELs). 
    However, researchers really don’t have much data regarding the frequency and significance of clonal T cell receptor (TCR) gene rearrangements (TCR-GRs) in small bowel (SB) biopsies of patients without RCDII. Such data could provide useful comparison information for patients with RCDII, among other things.
    To that end, a research team recently set out to try to get some information about the frequency and importance of clonal T cell receptor (TCR) gene rearrangements (TCR-GRs) in small bowel (SB) biopsies of patients without RCDII. The research team included Shafinaz Hussein, Tatyana Gindin, Stephen M Lagana, Carolina Arguelles-Grande, Suneeta Krishnareddy, Bachir Alobeid, Suzanne K Lewis, Mahesh M Mansukhani, Peter H R Green, and Govind Bhagat.
    They are variously affiliated with the Department of Pathology and Cell Biology, and the Department of Medicine at the Celiac Disease Center, New York Presbyterian Hospital/Columbia University Medical Center, New York, USA. Their team analyzed results of TCR-GR analyses performed on SB biopsies at our institution over a 3-year period, which were obtained from eight active celiac disease, 172 celiac disease on gluten-free diet, 33 RCDI, and three RCDII patients and 14 patients without celiac disease. 
    Clonal TCR-GRs are not infrequent in cases lacking features of RCDII, while PCPs are frequent in all disease phases. TCR-GR results should be assessed in conjunction with immunophenotypic, histological and clinical findings for appropriate diagnosis and classification of RCD.
    The team divided the TCR-GR patterns into clonal, polyclonal and prominent clonal peaks (PCPs), and correlated these patterns with clinical and pathological features. In all, they detected clonal TCR-GR products in biopsies from 67% of patients with RCDII, 17% of patients with RCDI and 6% of patients with gluten-free diet. They found PCPs in all disease phases, but saw no significant difference in the TCR-GR patterns between the non-RCDII disease categories (p=0.39). 
    They also noted a higher frequency of surface CD3(−) IELs in cases with clonal TCR-GR, but the PCP pattern showed no associations with any clinical or pathological feature. 
    Repeat biopsy showed that the clonal or PCP pattern persisted for up to 2 years with no evidence of RCDII. The study indicates that better understanding of clonal T cell receptor gene rearrangements may help researchers improve refractory celiac diagnosis. 
    Source:
    Journal of Clinical Pathologyhttp://dx.doi.org/10.1136/jclinpath-2018-205023

    Jefferson Adams
    Celiac.com 06/13/2018 - There have been numerous reports that olmesartan, aka Benicar, seems to trigger sprue‐like enteropathy in many patients, but so far, studies have produced mixed results, and there really hasn’t been a rigorous study of the issue. A team of researchers recently set out to assess whether olmesartan is associated with a higher rate of enteropathy compared with other angiotensin II receptor blockers (ARBs).
    The research team included Y.‐H. Dong; Y. Jin; TN Tsacogianis; M He; PH Hsieh; and JJ Gagne. They are variously affiliated with the Division of Pharmacoepidemiology and Pharmacoeconomics, Department of Medicine, Brigham and Women's Hospital and Harvard Medical School in Boston, MA, USA; the Faculty of Pharmacy, School of Pharmaceutical Science at National Yang‐Ming University in Taipei, Taiwan; and the Department of Hepato‐Gastroenterology, Chi Mei Medical Center in Tainan, Taiwan.
    To get solid data on the issue, the team conducted a cohort study among ARB initiators in 5 US claims databases covering numerous health insurers. They used Cox regression models to estimate hazard ratios (HRs) and 95% confidence intervals (CIs) for enteropathy‐related outcomes, including celiac disease, malabsorption, concomitant diagnoses of diarrhea and weight loss, and non‐infectious enteropathy. In all, they found nearly two million eligible patients. 
    They then assessed those patients and compared the results for olmesartan initiators to initiators of other ARBs after propensity score (PS) matching. They found unadjusted incidence rates of 0.82, 1.41, 1.66 and 29.20 per 1,000 person‐years for celiac disease, malabsorption, concomitant diagnoses of diarrhea and weight loss, and non‐infectious enteropathy respectively. 
    After PS matching comparing olmesartan to other ARBs, hazard ratios were 1.21 (95% CI, 1.05‐1.40), 1.00 (95% CI, 0.88‐1.13), 1.22 (95% CI, 1.10‐1.36) and 1.04 (95% CI, 1.01‐1.07) for each outcome. Patients aged 65 years and older showed greater hazard ratios for celiac disease, as did patients receiving treatment for more than 1 year, and patients receiving higher cumulative olmesartan doses.
    This is the first comprehensive multi‐database study to document a higher rate of enteropathy in olmesartan initiators as compared to initiators of other ARBs, though absolute rates were low for both groups.
    Source:
    Alimentary Pharmacology & Therapeutics

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    • I figured I'd give an update. Shortly after my last post I had a bad sinus infection but was only given prednisone which only made the congestion in my nose go away and some sinus pressure. I continued to feel worse with it pretty much developing into Bronchitis. I called the dr about it and they phone in a z-pac. I thought "well if I have SIBO" which I still wasn't sure of...." this will alleviate the off and on symptoms I had of mushy stools and icky feeling stomach. I would get that feeling whenever I had dairy for the last 9 yrs or so. Sure enough after I was done I felt like my old self. I did take probiotics while I was on the zpac which I hadn't taken for months since it only made things worse.  Everything finally returned to what it was before all this started. I felt so much better and "normal". I tried some aged cheese, brown rice and refried beans over the course of a couple weeks and was able to have those with absolutely no issues. For the next 1.5 months or so I felt great and better than before. I continued to take the probiotics twice a day as I did before and one day had a little stomach issue with some cramping. I then had some trail mix which had soy in it but I didn't really give it much thought and the next day my stomach was hurting pretty bad and worse than before it seemed. This lasted off and on for a week. Now the mushiness has returned and seems to be constant for the last week along with cramping. I'm guessing that the zpac killed off whatever it was I had...SIBO or Candida and now I've relapsed? Not sure but I'm going to call the doctor tomorrow to see if I can get some relief. I've also had some gas return as well.  I stopped taking the pribiotics thinking maybe that's making things bad again too since I wasn't on them before after I stopped gluten and soy and I didnt have this as much as I have now. I do take Gentian with Pepsin when I have protein and that seems to help as I don't have the gas I had way back.  It's so disheartening because I thought I figured out what was going on
    • I was diagnosed almost 3 years ago. I never had any of the usual problems. I had anemia and while trying to find what that was from, my GI found the celiac. I immediately started a gluten free diet, but it has always been a struggle. I am not the healthiest eater and would always seem to get the processed gluten-free items. I am not much for veggies and fruit or fish. So, for the last year it has been very difficult, financially and mentally for me to stick to it, but I did. I hated how I always had to have "special" food at family gatherings. I asked my GI several times what would happen if I stopped. He advised against it of course, but recently I just felt like my quality of life was so diminished. I already have Fibromyalgia, Chronic Fatigue Syndrome, Hashimotos, Arthritis, Pre-diabetes, endometriosis, had my gallbladder out recently and many other issues. So, after much decision making, I decided to go back to my "old life". I started today with a couple regular beers and had some crackers. I was expecting to be running to the bathroom like when I first switched to gluten-free, but nothing has happened and it's been almost 8 hours now. Not sure what to think. I know about the dangers of cancer and etc, but I have so many illnesses, I just want to live a semi-normal life again. 
    • In 2004, I complained to my doc of intestinal problems. I had my gallbladder out in 2003, and things hadn't really returned to normal. He did some testing, and told me, "You're not quite celiac, but you definitely have something going on." He never showed me the numbers, and I never asked. We moved shortly afterwards, and I never really thought about it after that. A few years ago, I went on the Atkins diet. I cut out all starchy carbs & bread carbs for three months. I had one cheat day (Wednesday), and broke out in a rash from neck to ankle. It was Thanksgiving weekend (and my birthday), and I couldn't get in to the doc. I ate a piece of birthday cake on Friday, and had insane stomach cramps. I know, I know. I should've gone to the ER. I finally got in to see the doc the following Wednesday, and the rash was clearing up. She told me it was dermatitis herpetiformis, and to stay away from gluten. No talk of being celiac. No other ramifications. So I go home, look it up, and find out about celiac. I ask for testing, and she tells me I'd have to go on a gluten diet for a month in order to get tested. After the pain I had from one piece of cake, I know I can't tolerate it. I stay off gluten, I don't have a rash. I eat something containing gluten (always in small amounts from cross-contamination--never like a donut or something), and I get a rash. That's proof enough for me. Fast forward to today. I got a copy of my medical records from 2004.
      IGA <20, which is negative
      IGG 79, where 30 is considered a moderate to strong positive. Wouldn't this be a "definite celiac", not a "something going on"? I'm a bit frustrated. I should've been gluten-free for 14 years, not 3. 
    • Hopefully the biopsy results will tell the tale as they say.  I am on rx D myself.  You can find info on vitamin D at the vitamin D  council site.  Seeing they just announced higher levels of vitamin D can help prevent colon cancer it's even a better reason to take some.  You can get natural vitamin D from oily fish like mackeral, sardines, salmon and tuna.  Other than that they do add it to milk and some orange juice in the USA.  The sun is another good source but only during certain hours of the day depending on your local latitude.
    • I dropped 30 lbs after going gluten free in a MONTH.  It seemed to be a lot of water flushing out of my body.  Underneath I was underweight and looked emaciated.  I've since built back 10 lbs of good weight in muscle and probably bone, and much healthier.
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