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Sorry I am new here and not sure if this has already been posted...

 

I just got a call from my pediatrician and she said my 3 year old son's blood work came back and all the markers were positive for Celiac.  She said the next step is to get a scope and biopsy done to confirm.  She also suggested the whole family get tested for it.  

 

So my questions are....if all the markers are positive is the scope necessary, doesn't that tell us he has it?  Can all the markers be positive and the scope come back negative?  

 

Thanks for any info you all may have!

 

 

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welcome  :)

 

are the genetic markers you're referring to HLA DQ tests or antibody tests (TTG, DGP, EMA)?

 

If it is the genetic markers of HLA DQ you're referring to then the next step should be to get a complete celiac blood panel drawn.  a complete panel consists of:

 

Comprehensive Celiac Panel:

DGP iga/igg

ttg iga/igg

EMA

Total iga serum-this is a control test to make sure you make enough iga to validate the other testing

check out page 12 in this report for testing information:

http://www.worldgastroenterology.org/assets/export/userfiles/2012_Celiac%20Disease_long_FINAL.pdf

 

If this panel has been drawn then an endoscopy with at least 6 samples taken from the small intestines would be the next step.

 

feel free to post any of your lab results here for others to comment.

 

gluten should continue to be consumed until ALL testing is complete.

 

 

 

 

 

Sorry I am new here and not sure if this has already been posted...

 

I just got a call from my pediatrician and she said my 3 year old son's blood work came back and all the markers were positive for Celiac.  She said the next step is to get a scope and biopsy done to confirm.  She also suggested the whole family get tested for it.  

 

So my questions are....if all the markers are positive is the scope necessary, doesn't that tell us he has it?  Can all the markers be positive and the scope come back negative?  

 

Thanks for any info you all may have!

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Well, it would be helpful if you got the lab reports and posted them along with the ranges.

 

IMHO, if the antibodies are positive, there is not likely to be a different cause for that.  Antibodies to gliaden are specific to that protein.  Some of the tests are very specific, like the DGP.  But, most doctors want the endoscopy anyway before they will diagnose celiac disease.  Sometimes a doctor will diagnose based on positive antibodies and symptom resolution on the gluten-free diet. But they aren't all going to do that.

 

Something to consider is the ease of testing now vs later.  Getting an endoscopy now before starting the gluten-free diet is the best choice.  If you were to wait until after he was gluten-free for a year and decide to get testing, he would need to go back to eating gluten again for up to 3 months.  That resumed gluten eating can be very unpleasant and sometimes cause other problems.  Reactions to gluten are sometimes more severe after stopping it for awhile and then eating it again.  It's a lifetime diet and it may be easier to stick with it if there is a complete diagnosis.

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welcome  :)

 

are the genetic markers you're referring to HLA DQ tests or antibody tests (TTG, DGP, EMA)?

 

If it is the genetic markers of HLA DQ you're referring to then the next step should be to get a complete celiac blood panel drawn.  a complete panel consists of:

 

Comprehensive Celiac Panel:

DGP iga/igg

ttg iga/igg

EMA

Total iga serum-this is a control test to make sure you make enough iga to validate the other testing

check out page 12 in this report for testing information:

http://www.worldgastroenterology.org/assets/export/userfiles/2012_Celiac%20Disease_long_FINAL.pdf

 

If this panel has been drawn then an endoscopy with at least 6 samples taken from the small intestines would be the next step.

 

feel free to post any of your lab results here for others to comment.

 

gluten should continue to be consumed until ALL testing is complete.

 

thanks, i will call the doctors office on monday morning and ask for a copy of the results so i can post them and hopefully understand them better.  just so new to this i have no clue :)

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thanks, i will call the doctors office on monday morning and ask for a copy of the results so i can post them and hopefully understand them better.  just so new to this i have no clue :)

Here are the lab results on both of my boys...

Alex

Deam Iga Index 212.3

Gliadin IgA postive

Glia IgG Index 137.9

Gliadin IgG positive

TTG IgA index greater than 100

TTG IgA AB positive

Robert

Deam Iga Index 115.5

Gliadin IgA postive

Glia IgG Index 60.1

Gliadin IgG positive

TTG IgA index greater than 100

TTG IgA AB positive

 

From some studies I have read if the TTG is over 100 there really is no need to do the biopsy.    What do you think?

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I'd say those are some pretty conclusive results for being celiac!  I'd say the biopsy is up to you.  good luck!

 

Here are the lab results on both of my boys...

Alex

Deam Iga Index 212.3

Gliadin IgA postive

Glia IgG Index 137.9

Gliadin IgG positive

TTG IgA index greater than 100

TTG IgA AB positive

Robert

Deam Iga Index 115.5

Gliadin IgA postive

Glia IgG Index 60.1

Gliadin IgG positive

TTG IgA index greater than 100

TTG IgA AB positive

 

From some studies I have read if the TTG is over 100 there really is no need to do the biopsy.    What do you think?

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Wow, it really is unusual to be positive in all celiac tests for an adult, for kids - Wow.

I personally don't think a biopsy is needed but some docs are very by the book and want a patient to jump through hoops before they will diagnose celiac disease. But as you said, when the tTG tests are very high, it is unlikely to be anything else. The DGP and tTG tests are specific to celiac in what causes the villi damage. The AGA tests are positive for gliadin sensitivity. You have blood tests that show damage and indicate gluten sensitivity, unless you suspect other problems or you need a diagnosis for school accommodations that the doc willingly give if biopsies are done, then i would skip the biopsy.

This report discusses the tests on pages 11-12:

http://www.worldgastroenterology.org/assets/export/userfiles/2012_Celiac%20Disease_long_FINAL.pdf

Hope the kids feel better, and I hope your tests are negative.

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